hEDStogether

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hEDStogether

@hEDStogether

Putting our #hEDStogether to co-create research with academics, health professionals, third sector, family & people with #HSD #EDS #POTS (& related conditions)

Katılım Kasım 2019
159 Takip Edilen3.3K Takipçiler
Dr Gemma Pearce
Dr Gemma Pearce@GemmaSPearce·
Very proud to have been supervisor to such an amazing student and professional - both for Helen's NIHR-funded MRes and British Heart Foundation funded PhD fellowship. 🙂
hEDStogether@hEDStogether

Helen has lots of fabulous updates about her PhD research supporting people with POTS in this blog hedstogether.com/dr-helen-eftek… You can access a full version of her completed PhD thesis free online. See Helen's new publications. 🥳 More publications to come so watch this space!

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hEDStogether
hEDStogether@hEDStogether·
Helen has lots of fabulous updates about her PhD research supporting people with POTS in this blog hedstogether.com/dr-helen-eftek… You can access a full version of her completed PhD thesis free online. See Helen's new publications. 🥳 More publications to come so watch this space!
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Dr Gemma Pearce
Dr Gemma Pearce@GemmaSPearce·
The fantastic @higo_anna in the top 5 most downloaded 2025 Clinical Communication podcast episodes with @BWhybrowPhysio 🥳 Brilliant episode and highly recommend a listen 😊 @hEDStogether
Ben Whybrow@BWhybrowPhysio

3rd. Is @higo_anna on discussing hypermobility spectrum disorder & hEDS with patients. I’ve literally had people tell me they’ve diagnosed HDS/hEDS from this episode. Shout out to @physiojack for helping spread this. open.spotify.com/episode/0ob8nB…

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hEDStogether@hEDStogether·
Fabulous to see @GemmaSPearce @SallyPezaro & @ndholliday being celebrated as part of #WomenInScienceDay We have lots of fabulous women working in #STEM across #hEDStogether projects hedstogether.com/our-team/ @higo_anna @EftekhariHelen @SabeehaMalek @laurenmpurdy @DrEReinhold
Coventry University Research and Innovation@CovUniResearch

This #WomenInScienceDay, we’re applauding our amazing women researchers in #STEM! 👩‍🔬✨ We're continually inspired by how they are breaking barriers. Past & present, Coventry's women in science shine 🌟 Keep inspiring us - we couldn't be prouder to celebrate you all 🚀👏

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Dr Sarah E. Bennett
Dr Sarah E. Bennett@DrSarahBennett·
Fabulous new open access work by @EftekhariHelen @GemmaSPearce @sophie_stan2 and Kate Seers in partnership with @hEDStogether and @UKPoTS 🎉🥳The first study to provide an in-depth understanding of the experiences of both people with #POTS and health professionals!!🌟
Dr Gemma Pearce@GemmaSPearce

New publication! Free open access to all 😃 POTS is starting to get better recognition now it is associated with Long COVID but there is still not appropriate or consistent healthcare provided system wide. Read more here doi.org/10.1016/j.ijnu…

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Dr Gemma Pearce
Dr Gemma Pearce@GemmaSPearce·
New publication! Free open access to all 😃 POTS is starting to get better recognition now it is associated with Long COVID but there is still not appropriate or consistent healthcare provided system wide. Read more here doi.org/10.1016/j.ijnu…
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Dr Gemma Pearce
Dr Gemma Pearce@GemmaSPearce·
Our survey on hypermobility and the shoulder is closing soon. This is a final push so please do take part and/or share! :) Participants need to be 18+ in UK with a hypermobile diagnosis like hEDS, HSD, EDS type III, EDS-HT, JHS. Find out more here app.onlinesurveys.jisc.ac.uk/s/coventry/the…
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Anna Higo
Anna Higo@higo_anna·
Check this out 😃Please share the survey 🙏🏻 app.onlinesurveys.jisc.ac.uk/s/coventry/the… @ShoulderGeek1 @theshoulderdoc @thecsp @chrissyholmes15 @DrEReinhold @BendyBrain @JGjanegreenMBE
hEDStogether@hEDStogether

Check out Anna Higo's blog with some fantastic news! @higo_anna In the blog she summarises a recent publication on shoulder treatments for hypermobility & launches a NEW SURVEY! Have a look, share with others and take part 😁❤ THANK YOU 🙏 hedstogether.com/annas-blog-abo…

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hEDStogether
hEDStogether@hEDStogether·
Check out Anna Higo's blog with some fantastic news! @higo_anna In the blog she summarises a recent publication on shoulder treatments for hypermobility & launches a NEW SURVEY! Have a look, share with others and take part 😁❤ THANK YOU 🙏 hedstogether.com/annas-blog-abo…
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limbostate
limbostate@limbostate1·
There's this new study which is for EDS and HSD with shoulders. My daughter's shoulder is always on the move😆 If anyone wants to do it @SEDSConnective @TheEDSociety @Dysautonomia @CrohnsColitisUK
Dr Gemma Pearce@GemmaSPearce

Do you have hypermobile #EhlersDanlosSyndrome or a similar diagnosis? Do you have issues with your shoulder? Are you an adult living in the UK? Please complete this survey to let us know your experience & if you might want shoulder support or not 😊 app.onlinesurveys.jisc.ac.uk/s/coventry/the…

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Stickman Communications ltd
Stickman Communications ltd@stickmancrips·
@limbostate1 @GemmaSPearce @higo_anna @hEDStogether @behnam_liaghat @ProfSheaPalmer @jason_tallis @DrSarahBennett @SabeehaMalek @ehlersdanlosuk @TheEDSociety There are loads of possible diagnostic terms - listing them all would take up many characters, and probably still not cover all of them! - symptomatic hypermobility, jhs, hsd, bjhs, possible connective tissue disorder, heritable disorder of connective tissue……etc etc.
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Emma Reinhold
Emma Reinhold@DrEReinhold·
eventbrite.com/e/ehlers-danlo… Announcing the most exciting opportunity for GPs this year! [Drumroll] @ehlersdanlosuk are holding an afternoon event for FREE (thanks to a generous donor). I'm chairing alongside an amazing faculty. Workshop-based practical learning by GPs for GPs!
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@GemmaSPearce @UKPoTS @BlackoutsTrust @DrSarahBennett @UHCW_RandD @TheBHF @higo_anna @BWhybrowPhysio