Emi
4.2K posts
Emi
@Emi4mm
👋 Melbourne Girl. Mum of 3 😍. Music. Travel 🌎. Health. Laugh. Love. Life...
Katılım Ağustos 2020
334 Takip Edilen259 Takipçiler
From #Fight4Jon on IG
An update on my beautiful boy Jon :
Since his devastating diagnosis, Jon has bravely fought the relentless progression of his condition - ALS [Amyotrophic Lateral Sclerosis] - with extraordinary resilience and dignity. He has defied the statistics of survival by more than two years.
In 2021, Jon lost nearly all function in his arms and hands and eventually his ability to walk.
In 2022, he became fully dependent on his family for all feeding, showering, dressing and personal care.
Over the past year, Jon has required the assistance of a ventilator overnight to help him to breathe as his lung function has dramatically declined. Jon has all but lost his ability to speak due to the weakening of muscles in his tongue, neck and jaw. This also means eating is very challenging, yet he has been valiantly determined to avoid having a feeding tube.
Now, Jon is fully paralysed which keeps him indoors resting most of the time, but he really enjoys getting out in the sun when he can and loves having his mates over to watch footy or cricket and to share a meal and a few beers.
He is constantly researching alternative approaches to his health & wellbeing and is always keen to try anything that may make a difference to his symptoms.
He starts every day with the biggest smile and before going to sleep at night, shares something he's grateful for in his day. His unwavering positive spirit is an inspiration to all who know and love him.
So in the words of Jon himself, "Let's Motor On" and #Fight4Jon 💛🖤
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@plainJaniexx Oh no! Sorry to hear Janie. Hope you have a speedy recovery xx
English
12 hours on an ED trolley… now on ward. Can’t complain though because so far :
• Valium
• Endone
• Fentanyl
• Ketamine
• Panadol
• Ibuprofen
• Lyrica
• Heat packs & laxatives
Can still feel the relentless back pain but I’m off my face which I assume is the idea? 🤪
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@CalamityJanie @gabs247 @MsUnformation @BLUEfingers2021 @artfulbunny @GrousestDad @SquizzSTK @RonniSalt @pierrettec76 @KazzieJean @josiegirl62 @tweeter_vee @Tigers_of_Old @MediaAnalystOz @iampoopsmcgee1 @LlJuju2022 @sassycarrie @DustyPee @strangerous10 @shaeganvishal @emma__jayne14 @dog_feelings @RedJules4 @ladykate_kate @CavaloDeb @SarkySage @ToMyPirateShip @RobertArnol @BelindaJones68 @KymLouC @_Sara_Jade_ @BrentHodgson @thelowdownlow @JustCantEven18 @HaydenJOConnor @saltyskin_ @aristotle1974 @breakglass777 @angi_grace @davidbewart @DaveMilbo 🥰❤️❤️
QME
@gabs247 @MsUnformation @BLUEfingers2021 @artfulbunny @GrousestDad @SquizzSTK @RonniSalt @pierrettec76 @KazzieJean @josiegirl62 @tweeter_vee @Tigers_of_Old @MediaAnalystOz @iampoopsmcgee1 @LlJuju2022 @sassycarrie @DustyPee @strangerous10 @shaeganvishal @emma__jayne14 @dog_feelings @RedJules4 That’s right Gabs ⭐️ @ladykate_kate @CavaloDeb @SarkySage @gabs247 @ToMyPirateShip @RobertArnol @BelindaJones68 @KymLouC @_Sara_Jade_ @BrentHodgson @thelowdownlow @JustCantEven18 @HaydenJOConnor @saltyskin_ @aristotle1974 @Emi4mm @breakglass777 @angi_grace @davidbewart @DaveMilbo
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Tomorrow - a new world, a new start 🤞🤞
Let’s hope it all works
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Heat warning for next few days. First real heat this summer so please check in on those most at risk - elderly, very young, those with chronic conditions and don’t forget pets! And never leave kids in hot cars. Oh, and Merry Christmas!
Victorian Department of Health@VicGovDH
A severe heat health warning has been issued across Victoria from Sunday, 25 December to Tuesday, 27 December. Maximum temperatures will reach the mid to high thirties, and overnight temperatures will reach the high to low twenties.
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In his words, this is my son Jonathan’s story of an MND diagnosis at age 21 💔👇🏼
#Fight4Jon #FightMND #F4J
mycause.com.au/events/fight4j…
Melbourne, Victoria 🇦🇺 English
@CalamityJanie Oh Janie, he's such an amazing and inspiring young man.
Sending love to you, your son, and your family. ❤️
#Fight4Jon #FightMND #F4J
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QME
Let’s not forget the people that stood by Dan when shit got rough & they were all torn apart by the media…
Cheers to you guys @DanielAndrewsMP @VictorianCHO & Jeroen… 🥂🥳
#DanSlide #VicVotes #IStandWithDan
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Emi retweetledi
This is my son Jonathan, on the day he turned 21. He was diagnosed with ALS, Amyotrophic Lateral Sclerosis, a fatal Motor Neurone Disease, just 6 weeks later 💔
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Melbourne, Victoria 🇦🇺 English
