Emma M Smith 💙

@NormalLife7 What a beautiful moment to cherish

When Charlie met Emilia 🥹😭💙🩷

@NormalLife7 Congratulations!

On Friday 24th November at 5:37am we welcomed our beautiful daughter into this World. Emilia Rose, you have completed our family. Forever grateful to IVF for making all our dreams come true, and to my wonderful wife for giving me our son and daughter 💫

Petition: Fund continued access to modulators drugs for Cystic Fibrosis patients petition.parliament.uk/petitions/6506…

@richardm56 what are your thoughts on this? These drugs are life changing, life extending and therefore life saving. Will you be covering this on @GMB. The life line is being taken away from most of the UK CF community #Kaftrio #cysticfibrosis #fightingforalifeunlimited

@CherryBeBop I cried when I read the announcement, my son will continue to receive kaftrio but reading that parents are going to go through the heartbreak of knowing there’s something that can change their child’s life but cost won’t allow broke me. 🤞 for your girl x

@EmmaMSmith2 I’m so upset. My daughter just had all her tests at annual review in prep to start kaftrio in December. Praying she will still be able to start it

This is absolutely awful news, so upsetting! My son has not had a hospital admission for 2 years since he started kaftrio, his medication load has reduced significantly and he now leads a near normal life just like his brother, it has changed his life!

@MrDeanP It doesn’t, but knowing that there’ll potentially be parents out there going through the agony of knowing these drugs are there and their children can’t have them because they’re too expensive is absolutely heartbreaking! I wouldn’t wish that anguish on anyone

@NormalLife7 @WarwickCastle Happy birthday Charlie! 🎂🥳

Happy 4th birthday to my son Charlie! I’ve come out of hospital for the day as I’m not going to miss him have an amazing time at @WarwickCastle ⚔️ 🛡️

@Andyassert So sorry for your loss

It's Andrew's wife. Heartbroken to post this, Andrew passed away on Sunday 22 October. He was the most amazing husband, Dad to Amelia, son and brother. Life won't be the same. We love you Andrew 💔❤️

Everyone in every country has the "Right to breathe" Please watch the video at: instagram.com/p/CsBJrB2tTVI/ Advocate for the global CF community to have access to #Trikafta and all CF modulator therapies Please sign the petition: bit.ly/vsupetition Pass. It. On

@CFcarer I don’t come on here much anymore either! Started a new career as a driving instructor so don’t have time anymore!! We’re all good thanks, hope you are too and hope I is doing well x

@EmmaMSmith2 Very late to seeing this. Excellent news! Kaftrio is the best. Hope you're keeping well x

Fantastic clinic appointment for Will yesterday! Height and weight up, chest clear and no issues to report so at last we can drop his antibiotics and his hypertonic nebs!!! Thank you kaftrio!! #cysticfibrosis #kaftrio

Of course she's brilliant and working with her is the greatest blessing a scruffy music teacher like me could dream of. But Lucy is what happens when you make instrumental tuition available to disadvantaged children. Help us to get this message across to those who decide.

cysticfibrosisnewstoday.com/news/cf-patien… Mind-blowing. "In a scenario where treatment with Kaftrio is initiated between 12&17 years old, a patient’s median estimated lifespan is 82.5 years. That’s 45.4 years longer than estimates for CF patients on best supportive care alone." #cysticfibrosis

cysticfibrosisnewstoday.com/news/cf-patien… Some awesome news here! This is what we were campaigning for. A life unlimited by #cysticfibrosis. @VertexPharma MUST make global access its priority. #CFcantwait.

CF patients should not have to pay for drugs to stay alive. The Government must make all CF patients eligible for a medical exemption certificate. The exemption list was created in 1968, and CF was not included due to patients rarely living into adulthood petition.parliament.uk/petitions/6337…

Do you remember when you joined Twitter? I do! #MyTwitterAnniversary

@mat711 Sorry for your loss ❤️

Mrs Rena Gilday née Cargill 19/08/1944 - 14/02/2023 Yesterday was the saddest of days as my dear Granny passed away. Throughout my life she offered nothing but unconditional love and support. Until we meet again

Eli Parton gave Bill Plant Driving School 5 stars via @Trustpilot trstp.lt/mfiZqP14p Thank you Eli for your lovely words, it was an absolute pleasure to teach you!

Congratulations to Elias for passing your driving test this morning at Stafford DTC on your first attempt! Well deserved pass! It’s been a pleasure being your instructor. Happy car shopping! 🚙🚙