EndoEdition

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EndoEdition

EndoEdition

@EndoEdition

🔅 Reliable endometriosis facts, research, and awareness 🔅 Advocating the largest women's health crisis of our time, also affecting trans & non-binary.

West Midlands, England Katılım Nisan 2018
505 Takip Edilen810 Takipçiler
EndoEdition
EndoEdition@EndoEdition·
31,000 more signatures needed before Jan 29th. We need #MentrualLeave debated in parliament. Introduce Statutory Menstrual Leave for People with Endometriosis & Adenomyosis petition.parliament.uk/petitions/7323…
Sky News@SkyNews

Menstrual leave campaigner: 'At 23 I was hospitalised three months in a row' Campaigner Michelle Dewar tells @skysarahjane that women who have a medical diagnosis related to severe period pain should be entitled to paid menstrual leave. 📺 Sky 501 trib.al/Ldqpoo4 #SJUK

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EndoEdition
EndoEdition@EndoEdition·
We call on the UK Government to introduce statutory paid menstrual leave of up to 3 days per month for people with conditions such as endometriosis and adenomyosis, following the model introduced in Portugal in 2025. Help us get to 100,000 signatures 📝 petition.parliament.uk/petitions/7323…
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hate zine
hate zine@hatezine·
Any journalist or commentator talking about PIP being easy to get should see for themselves how hard it is. Far too many people talking about things they know nothing (and don’t care) about.
Anne Greensmith 💙@snowleopardess

If you think PIP is "too easy" to get, I suggest you take a look at a PIP claim form. Then look up how hard it is to get enough "points" to qualify. Finally, take a look at any welfare rights forum to see how many people with serious illness and disability have been turned down.

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Sarah Harris
Sarah Harris@sarahhasendo·
So excited to be starting the next stage of my PhD which will involve interviewing those with a lived experience of #endometriosis about their interactions with primary health care physicians. If you are interested please drop a message to email on poster or scan the QR code 🎗️
Sarah Harris tweet mediaSarah Harris tweet media
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EndoEdition
EndoEdition@EndoEdition·
Records show around three-quarters of a million (755,046) women's health appointments are waiting to happen - up from 360,400 just before the pandemic. This would suggest around 630,000 people - at the very least - are on the list to be seen for problems.
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EndoEdition@EndoEdition·
"The delay in my care has cost me some of my major organs." Waiting lists for gynaecology appointments across the UK have more than doubled since February 2020, BBC research has revealed. @BBCNews bbc.co.uk/news/articles/…
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The BMJ
The BMJ@bmj_latest·
"Studies of how quickly doctors interrupt patients find that the median time is 11 seconds. Nobody feels listened to in 11 seconds." @Richard56 discusses the healing power of being listened to bmj.com/content/385/bm…
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EndoEdition
EndoEdition@EndoEdition·
Deeply saddened to hear Fyah Mummah Jahmby Koikai @JahmbyKoikai has passed away. An incredible person whose advocacy and dedication will continue to inspire us all. 🕊 For more advocacy regards endometriosis beyond the pelvis follow @XtraNotRare. This is a whole body disease.
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EndoEdition
EndoEdition@EndoEdition·
☝🏻Reposting this clip from 2018: Kenyan DJ @JahmbyKoikai suffers from a form of thoracic endometriosis and is an advocate to many suffering with this disease. "This needs to be heard by everyone and we shall overcome this." Discussion by Victoria's Lounge with @VickyRubadiri.
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The Endometriosis Coalition
The Endometriosis Coalition@theendoco·
Our hearts are shattered by the loss of @JahmbyKoikai, an extraordinary endometriosis advocate for all. She was a warrior in every sense of the word. Her passion, strength, & relentless dedication inspired us all and touched the lives of so many in our community and beyond.
The Endometriosis Coalition tweet media
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The Nairobi Times
The Nairobi Times@TheNairobiTimez·
BREAKING NEWS Njambi (Jahmby) Koikai alias Faya Mama has passed away😢💔 Mary Jahmby Koikai passed away following a long fight with endometriosis. Her friends and family have confirmed that she died in hospital on Tuesday morning. Rest In Peace🕊️
The Nairobi Times tweet mediaThe Nairobi Times tweet mediaThe Nairobi Times tweet mediaThe Nairobi Times tweet media
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Endometriosis UK
Endometriosis UK@EndometriosisUK·
Research Opportunity👇👇 This study asks questions on your expectations and experiences of treatments for endometriosis and adenomyosis. Those living with either or both conditions are invited to take part at: forms.office.com/pages/response… #UniversityOfLiverpool #TEPEAstudy
Hapangama Research Group@Hapangama_Lab

Do you have #endometriosis or #adenomyosis? You are invited to take part in research on treatments for endometriosis and adenomyosis, conducted by the #UniversityofLiverpool. This is an online questionnaire that will take 15 minutes to complete: forms.office.com/e/1QY213rJPy #TEPEA

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Keşfet

@PearseDoherty @Kathleen_M_King @AnitaNnekaJones @BBCNews @UniofOxford @EndoSRN @VQ_Birmingham @Richard56