European Huntington Association

🚨Upcoming webinar! Learn about genetic testing & sharing info within HD families. 📅 November 27th, 6pm CET 💻 Register: bit.ly/3CzYW1F #HuntingtonsDisease #GeneticTesting #HDSupport

📢 What is an Advisory Board and how can HD CAB help? HD-CAB connects the Huntington’s Disease community with industry and researchers, ensuring the voices of those impacted by HD are heard. 🗓️ Book your Ad board today, virtually or at the HDYO Congress, next March!

🌍 One Voice for the HD Community Discover why our global members joined HD-CAB, uniting to strengthen the voice of the Huntington’s disease community worldwide. 💬 Their stories inspire collaboration and drive progress for research and care

In September, we hosted a discussion with international HD advocates to share their thoughts and experiences to an audience of industry partners, associations and researchers. Three participants, Jessica, Rob and Claudia, discuss their takeaways and impact of this discussion.

✍️ Call on your regional MEPs to pledge their support for the MEP Interest Group on Brain Health and Neurological Conditions by signing here ➡ bit.ly/3UmInML

In recognition of the need to address the challenges posed by neurological conditions in the EU, join us in calling for more MEPs support to prioritise neurological health, support patient-centred policies and join the MEP Interest Group on #BrainHealth & Neurological Conditions

✍ Introducing Astri Arnesen from the European Huntington Association, who plays a vital role in the Management Board of HD-CAB, leading and guiding our mission to support the HD community. Discover more about our amazing team here ➡ hd-cab.org

🔬 There will be representatives from the companies that have ongoing or already finalized clincial trials in HD. Prilenia, uniQure, PTC Therapeutics, Inc., SOM Biotech and Wave Life Sciences will be sharing key insights on research updates.

🙌 Join us for the upcoming webinar about the latest developments in ongoing clinical trials, moderated by professor Åsa Petersén, HD clinician and researcher, who will start the session with an introduction. Register here 🔗 bit.ly/3Y4Bwsv

🎥 The Importance of HD CAB 🌍 HD-CAB operational and management team highlight the significance of having a global advisory board for HD, the role of young advocates, and the impact of advisory board meetings. Don’t miss out on the discussion! 💙 youtu.be/ptUNbjP-EYQ

🧠 World Mental Health Day reminds us how essential mental health is for everyone, especially those impacted by HD. That's why we continue advocating for accessible psychological support and resources, helping individuals navigate this journey with care and understanding 💙

🌍We want to hear from you! We've launched a 5-question survey for you to tell us what topics you'd like to see in the programme of the next EHA conference in 2025. We want to take into account your real needs! Find the survey in your language ➡️ lnk.bio/Eurohuntington

📢 Exciting News! FDA has granted Fast Track designation to PTC Therapeutics' PTC518, an investigational treatment for HD. This marks a major step forward in HD research, accelerating the development and review process. Read the full release here ➡️ bit.ly/3ZyXuGu

This collaborative effort is crucial in supporting industry and research partners as they advance studies, trials, and advocacy initiatives. Your contributions make a difference! 🌐 If you want to learn more about HD-CAB and our initiatives, visit hd-cab.org

🙌 This past Sunday, after EHDN, HD-CAB hosted an International Round Table Discussion 🙏 We would like to thank everyone who participated in this innovative format! Together, we created an open and inclusive environment, bringing global perspectives and diverse connections to HD

🔬 As we wrap up this year's EHDN & Enroll-HD Strasbourg, we inform the HD community on the clinical trial updates ☀ The results are very promising and we are hopeful for a brighter future 🇵🇱 See you in 2026 in Krakow! 👋 youtu.be/Ie1B3NX2Jg4

🙌 HD-CAB is present at the EHDN & Enroll-HD Strasbourg 2024! We have a booth, in partnership with the @EuroHuntington, @ihahuntington and @HDYOFeed, where you can spin a fortune wheel and win a small surprise 🎁 Don't forget to stop by! 👋

🙌 Exciting day ahead as EHDN & Enroll-HD 2024 kicks off today! The EHA team is here and ready to welcome everyone! 🎉

Prilenia is delighted to announce the acceptance for review of its #European Marketing Authorisation Application (MAA) for #pridopidine for the treatment of adults with #Huntingtondisease (#HD) by @EMA_News. Read the Prilenia PR: tinyurl.com/3xhr99y3