HD-CAB

🛫 HD-CAB will be present at Huntington's Disease Youth Organization (HDYO) International Young Adults Congress in Prague, next week from 14-16th March! Come by our booth to learn more about our advocacy work and to win some prizes 🏆 See you there 👋 #HDadvocacy

🌎 HD-CAB brings together 40 members from around the world. ✨ Meet Juan Carlos, whose passion for advocacy and personal connection to the HD community drive his commitment to making a difference 🌐 Learn more about HD-CAB at hd-cab.org

🌟 Meet the Team: Jenna Heilman! Jenna is a dedicated advocate and a key member of HD-CAB, bringing passion and expertise to the global Huntington’s disease community. 💙 Want to meet Jenna and the HD-CAB team in person? We’ll be at the HDYO Congress this March! 🎉 Come say hi!

HD-CAB ensures the HD community’s voice is heard in research & drug development. We discuss key topics that matter most—& we can adapt to cover more! 💡 Want patient insights on a specific topic? Let’s talk! #HuntingtonsDisease #ClinicalTrials #PatientVoice #OneVoice4HD

🌐 Check it out now: hd-cab.org

🆕Our website has been renovated and we’ve added a brand-new Advisory Boards page! Now, you can find even more information about our Ad Boards, and how we’re making a difference in the HD community! #HD #HDCAB #PatientAdvocacy #HDCommunity

🌍 One Voice for the HD Community Our advocates share how being heard & empowered through HD-CAB advisory boards makes a difference for the HD community. ✨ Learn more or schedule your board at hd-cab.org.

📩 Book your Ad Board today ➡️ tina@iha-huntington.org

🎉 New Year's Resolution! By including HD-CAB in this new year, you'll connect with a network dedicated to amplifying the voices of those affected by HD worldwide. Together, we can make a difference! 💪✨ #NewYearsResolution #HuntingtonsDisease #HDCAB

🤗 Thank you to everyone who has been a part of this journey – your support, passion, and dedication continue to inspire us. As we look ahead, we are more excited than ever to build on these achievements and continue pushing boundaries in the year to come.

Reflecting on an Incredible Year: A Look Back at 2024 with HD-CAB ✨ 📈 As we step into the new year, it’s the perfect time to pause and reflect on the journey we've shared over the last 12 months. 2024 has been a year filled with growth, collaboration, and incredible milestones.

📢 What is an Advisory Board and how can HD CAB help? HD-CAB connects the Huntington’s Disease community with industry and researchers, ensuring the voices of those impacted by HD are heard. 🗓️ Book your Ad board today, virtually or at the HDYO Congress, next March!

🌍 One Voice for the HD Community Discover why our global members joined HD-CAB, uniting to strengthen the voice of the Huntington’s disease community worldwide. 💬 Their stories inspire collaboration and drive progress for research and care

📰 HD-CAB will be present at the @HDYOFeed Young Adults Congress in Prague, Czech Republic! The congress will occur in March and if you are interested in booking an advisory board, you can do so by emailing tina@iha-huntington.org. Visit our website at hd-cab.org

#HDCAB #PatientVoices #HuntingtonsDisease

💬 Community Voices from the HD CAB Round Table! Audience members shared inspiring reflections on the power of collaboration in HD research. Their thoughts highlight the impact of bringing patients, families and professionals together to shape the future of HD care.

@HD_CAB hosted a discussion with international HD advocates to share their thoughts and experiences to an audience of industry partners, associations and researchers. 3 advocates talk about their experiences. @EuroHuntington @ihahuntington @EHDN_News youtu.be/sCXGiyBwtMo?fe…

In September, we hosted a discussion with international HD advocates to share their thoughts and experiences to an audience of industry partners, associations and researchers. Three participants, Jessica, Rob and Claudia, discuss their takeaways and impact of this discussion.

✍ Introducing Astri Arnesen from the European Huntington Association, who plays a vital role in the Management Board of HD-CAB, leading and guiding our mission to support the HD community. Discover more about our amazing team here ➡ hd-cab.org