FSHD Global Research

Very fortunate to meet with the leader of the opposition the Hon. @PeterDutton about our requests to partner with the Federal Government to deliver improved diagnostics and clinical trial infrastructure for Australia. #parliamentaryfriendsoffshd #fshd #curefshd

A big thank you @billshortenmp for opening the Parliamentary Friends of FSHD. Thank you to the Co-Chairs Mike Freelander MP & @BridgetArcherMP for their continued support in sharing our message to government.

Attending the #SydneyChocolateBall? Well, you are most certainly in for a treat. Thank you to @LukeWMangan and his team for treating us to today’s tasting of this stunning menu with delicate chocolatey undertones. sydneychocolateball.com.au

On behalf of the team at #FSHD Global Research Foundation, we would like to thank you for your ongoing support, and wish you a Merry Christmas and Happy New Year.

Give the gift of hope this season on joining our monthly giving program. By becoming a monthly donor, you give the gift of hope to those living with #FSHD around the world, and become a long-term partner in finding treatments and an ultimate cure for FSHD.

'I am hopeful they will find a treatment for FSHD if not for me then for the next generation.' - Michael Stories from the community are critical in raising awareness of FSHD. To read Michael's story visit fshdglobal.org/wp-content/upl… #fshdglobal #FSHD

Cryptocurrency, NFTs, and Web 3 are all global technologies. Philanthropy and charity is global as well. We'd like to extend a special thank you to all our International Nonprofits for making The Giving Block and Crypto Philanthropy a reality around the globe! #CryptoIsGood🚀♥️

Crypto donations fight FSHD! Help us fund medical research to find a treatment and cure for FSHD which affects an estimated 1 million adults and children worldwide robbing them of the ability to walk, stand, smile or even eat. #GiveCrypto #BagSeason #FSHD @TheGivingBlock

Crypto donations fight FSHD!  Give the gift of HOPE - help us fund medical research to find a treatment and cure for FSHD which affects an estimated 1 million adults and children worldwide robbing them of the ability to walk, stand, smile or even eat. #GiveCrypto #BagSeason #FSHD

Looking for gift ideas? Show your support for #FSHDGlobal this Christmas with an #FSHD Global Awareness Ribbon! We offer international shipping, and if you're ordering from Australia, place your order today to receive your ribbon order before Christmas. fshdglobal.org/fshd-global-or…

We are excited to announce that we now accept cryptocurrency for payments and donations! To donate cryptocurrency or find more more visit fshdglobal.org/donatecrypto #fshd #fshdglobal #thegivingblock #ausmerchant

Our #GivingTuesday 24 hour fundraising challenge will be ending at 11:59pm AEDT tonight! Giving Tuesday is a global generosity movement unleashing the power of people and organisations to transform their communities and the world today and every day! Visit fshdglobal.org/donate/

Our #GivingTuesday 24 hour fundraising challenge has begun! Help us raise as many $10 donations as we can today at fshdglobal.org/donate #FSHD #fshdglobal 🧡💙

#GivingTuesday IS TOMORROW! Our 24 hour fundraising challenge will start at 12:00am on Tuesday 30th November 2021 and end at 11:59pm AEDT. To support #FSHD Global Research Foundation this Giving Tuesday simply make a donation of at least $10.

Next Tuesday 30 November 2021 is #GivingTuesday As part of this global movement #FSHD Global will be running a 24 hour fundraising challenge to see how many $10 donations we can get in 24 hours! Help us make a difference by making a donation at fshdglobal.org/donate

We are thrilled to announce that #FSHD Global Research Foundation have been recognised for Outstanding Achievement (OAA) in The Australian Charity Awards 2021! Thank you to our supporters, sponsors and #FSHDGlobal community who helped make this award possible.

Thank you to Just Cause Bunch for their donation to #FSHD Global. The Brisbane based florist donated profits from July - September, raising a total of $9,625! 💐 To support #justcausebunch and their wonderful mission visit justcausebunch.com.au

FSHD Global is proud to announce our partnership and investment with Altay Therapeutics to support their anti-DUX4 program. For more information go to altaytherapeutics.com #fshdglobal #FSHD #altaytherapeutics

Did you know you can help us fundraise by purchasing an Entertainment Membership? Help us achieve our fundraising goal by sharing this link with your friends and family. Thanks for your support! lnkd.in/gXuyaZiN #fundraising #FSHD #fshdglobal

We are thrilled to announce the 2021 Wyndham Destinations Corporate Surf Challenge! Made possible by @WyndhamAP, the fun-filled event will support #fshdglobal and everyone from out community is invited to participate or enter a team.