FTDtalk

The EDiT-FTD programme will take place over 1 year with 2 workshops at the start and end and online meetings between. The group includes clinicians, researchers, ethicists, big data scientists and importantly members of FTD families living at risk of FTD.

Great to be at @JPNDeurope meeting on digital technologies in frontotemporal dementia today. A jointly led meeting between @UCLIoN and Erasmus Medical Centre in Rotterdam - @rhianconvery Jackie Poos. EDiT-FTD is a 1 year programme to develop a roadmap for implementation. #endftd

Check out one of our physicians on our SAB @jonrohrer bringing understanding and light to the path forward with families impacted by genetic FTD! #endftd @theftdbrothers

Great to be involved in this documentary along with @jonrohrer - an exploration of the impact of dementia on families including those at risk of developing a genetic form. Anna Richardson: #LoveLossAndDementia Tune in - 2 Oct, 10pm. youtube.com/watch?v=JHsRuj…

I had an amazing time this week at the @isftd conference in Amsterdam, with the team @GENFI1 @FTDtalk. It was great meeting so many new people and hearing insightful, thought-provoking talks. Looking forward to applying what I’ve learned.

Had the most fantastic time @isftd in Amsterdam, with teams @frontlabparis @InstitutCerveau and @FTDtalk @GENFI1 ♥️ Sad it’s already over & have to wait 2 years for the next!! So lovely seeing all our friends and collaborators for 4 consecutive days of #FTD-science-intense fun!

We are looking for a new postdoc to work on digital measures and trials in genetic FTD - come and talk to us at ISFTD @jonrohrer @LucyL_Russell #isftd2024

Amazing three days so far at @isftd meeting in Amsterdam - lots of great posters and presentations from the team and new collaborations made! #isftd2024

It’s been an amazing few days at the @isftd conference in Amsterdam so far! 🧠 I am very excited to have the fantastic opportunity to present a poster (P372) on some preliminary work from my PhD! 🧫Come say hi if you’re around ☺️ #ISFTD2024

Please come to see the posters of our team today - some amazing clinical and biomarker science - @aitanasogorb @KeralaAdamsCarr Eve Ferry-Bolder Katie Thompson Liset de Boer #isftd2024

An exciting orchestral start to #isftd2024 - looking forward to 4 days of new FTD science.

Our team are heading to the #isftd2024 meeting tomorrow - look out for our talks and posters from our digital, imaging and fluid biomarker work @GENFI1 - we look forward to meeting other researchers and members of the FTD community during the week! #endftd

Yet another fantastic fFTD support group meeting today☺️ I had the opportunity to talk about my PhD project & how we are using cerebral organoids to study fFTD 🧠🧫 as always, a fantastic session & super to hear how engaged family members are in helping us push forward research!

@PhoebeFoster_ and I had the pleasure of hosting the first annual GENFI Participant Spring Webinar 💻 Big thanks to our speakers and most importantly to all participants who joined & continue to participate in the GENFI study as without you this research wouldn’t be possible ☺️

First batch of organoids are underway! 🧠🧫

I’m extremely excited to share that I’ve started my PhD in the @WrayLabUCL 🧠I want to say a big thank you to everyone in the Rohrer lab @FTDtalk for all their support over the last two years. I am really looking forward to this next step & can’t wait for what’s to come ☺️

Alongside my amazing colleagues at @drcionucl, I am running the Hackney Half Marathon to raise money for the @BrainAppeal’s campaign to establish the world's first Centre for Rare Dementia Support. @RareDementia Any donation would be hugely appreciated! 😁 justgiving.com/page/sophie-go…

Heading to @mndresearch #alsmndsymp in Basel to speak at the joint FTD-ALS session. Looking forward to an exciting meeting. We are looking for a new research assistant to co-ordinate the @GENFI1 study at UCL - if you are interested come and talk to the team. #endftd

To commemorate World FTD Awareness Week 2023, #AFTD have developed a week-long campaign of steps we can all take in this effort of raising awareness. Check out my latest blog post for @FTDtalk, where I summarise their efforts: ftdtalk.org/2023/09/aftds-…

✍ Check out my latest blog post summarising the team's research highlights from #AAIC23 - lnkd.in/dcA8wB-m - covering a variety of topics such as novel biomarkers, digitalised testing, disease staging measures, advances in neuroimaging, as well as patient engagement.