FND FIGHTERS

Our logo. The ‘F’ is crossed out to portray our mission to eradicate the notion that #FND is just a ‘psychological condition’. It also emphasises our (and many others) belief that there is in fact a structural defect (however small) causing the symptoms of FND patients.

New Blog alert!!! matthewnewshamhome.wordpress.com/2019/07/30/sta… @FNDHopeUK @FNDAction #FND #fndmen #Family #FNDWarrior

Inspiring 💪🏻

Hey everyone, here’s my latest vlog. Talking about receiving the FND diagnosis after 4 months, and how I’ve restored a small sense of normality to daily life. #FND youtu.be/OrhiRnU69tc

Here is the next #blog post as promised. This one looks at #family and #fnd @jonstoneneuro @Tim_R_Nicholson @FNDHopeUK matthewnewsham.home.blog/2019/07/28/fam…

@warewendy_ware Hey Wendy. So sorry to hear that. Please don’t lose hope on her getting better though, I’ve seen some amazing turnarounds. I hope, pray and believe your daughter can too

Despite a diagnosis of FND our daughter remains unable to eat, experiences migraines, NEAD, widespread pain and requires a wheelchair. She was a neonatal nurse until 4 years ago. When will the NHS wake up?

@KeynshamAction Thank you very much

@FightersFnd Great Vlog, so clear. Thanks for the follow- have followed back.

My new vlog on my #FND progress, symptoms and doing what I can to help raise awareness youtu.be/2bJa4zF5ca0

NEW BLOG POST: My stay at the wolfson unit 'It is a great place which has certainly had a positive impact on my life.' @FNDHopeUK @FNDAction @FightersFnd @BloggingBed #DisabledBloggers #fnd #queenmaryshospital hannahdeakin.blogspot.com/2019/07/my-sta…

@megjacks_ @FndPortal @FndLifewith Congrats! For the record.... I thoroughly enjoyed your ultrasound joke 😂

And I wasn’t discriminated against for my disability for a first @FndPortal @FightersFnd @FndLifewith ✌🏻

after singing, telling the shit ultrasound joke and completely embarrassing myself in the interview, I’ve been offered the job!! 🥳 🎈 🎉

Had to do a Home Visit to an elderly lady who had a stroke and needed caring for by her husband They don’t qualify for care due to owning their small terraced house,so after years of paying for it themselves they’ve run out of money and he was doing it all It broke my heart💔

Early designs for merchandise available from our website. 100% of profits will go towards funding help for FND sufferers. We will strive to provide free access to CBD oil for starters.

@ShelleyIOWUK In the meantime (if you aren’t already) join the group on Facebook ‘Functional Neurological Disorder’ everyone on there has been really helpful and supportive.

@FightersFnd That would be amazing. It’s hard because you gain new little gems and just don’t realise until you look into it more that it’s all part and parcel. Thank you 🙏

Fellow #FND sufferers! I am in the process of developing our website. What tools, tips and content do you wish you had at your finger tips to help with your symptoms and feelings?

@ShelleyIOWUK I will put together an extensive list of known symptoms and have an interactive feature where people can mark whether it is a symptom they’ve experienced and perhaps the duration (days) it has gone on for (at one time) Would that help/ reassure you? I know the feeling by the way!

@FightersFnd I think maybe if there was a way to list common or not so common symptoms. I have developed so many new symptoms each week if not day a new one pops up and I need to talk on a forum to see if it’s related to FND. Probably not as simple as it sounds but I’d find it helpful 😆

n.neurology.org/content/91/20/… This is interesting. #FND

If only....

Research in four major neurological centre suggests about 1 in 3 people attending #neurology outpatient clinics are diagnosed with #FND. How can CCGS and STPs justify not having dedicated FND services/support across the entire country?

@MatthewNewsham1 Rest up mate, hope you’re feeling better soon.

Not how I wanted to spend my evening, in A&E.... Fell over upstairs and broken my scaphoid and done some tendon damage! Whoop whoop!! As if life wasn't difficult already!!!

Look forward to seeing how useful this is