Wendy Ware

Delighted that the latest episode of Social Work Sessions with @BryonyShannon is now live. We talk about use of language in social care & Bryony’s influential blog ‘Words that make me go hmmm. podcasts.apple.com/gb/podcast/soc… #socialwork #socialworksessions

Carnival season is well underway in Somerset. And tomorrow we start a week of learning and development events in @SomersetCouncil with Carnival of Practice - always a highlight of the year which the L&D Team work so hard to make happen.

@FNDAction You are sadly so right, there is so little support and not enough understanding. There is so much discrimination and prejudice, we have fought for support for our daughter too, but we shouldn’t have too. If our daughter had MS or MND for example she would receive support.

Natalie's mum says "There's not much support. People are abandoned by the system because they don't know what to do with them, so they're just left" Daily we are hearing this happening to others, and it has to change! #FND Functional Neurological Disorder mylondon.news/news/south-lon…

@FndPortal My daughter was diagnosed nearly 7 years ago with FND, life changing was a neonatal nurse before this, she and we have experienced first hand the lack of treatment and support, where she is treated as non-deserving by the medical profession who state there is nothing wrong

A great example of the gap between neurologists’ worldview and patients’ is when they tell a person with FND: good news! You’ve got a clean MRI. Nothing wrong w your brain. And the person is like oh word? Perhaps you’ve noticed I’m having 20 seizures a day and can’t walk though

@jonstoneneuro Unfortunately for my daughter she is disbelieved and this has prevented access to real rehabilitation so great full to prof Jon Stone for raising awareness maybe one day FND will be better understood in primary care

Thanks to Kai Gruhn from Klinisch Relevant for recording this podcast with me on FND. Not a diagnosis of exclusion. bit.ly/2YpHfeV

@jonstoneneuro I found the presentation interesting and it confirmed what we as a family already experience from health professionals involved in my daughter’s care. Despite a diagnosis of FND she doesn’t have access to a neurologist.

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Petition: We would like the government to consider social care as equally important to NHS petition.parliament.uk/petitions/3028… please consider signing this petition to help acknowledge the social care workforce especially now

I’d just like to say a big thank you to all of my team who are busy social care workers, OTs and social workers trying to support very vulnerable people in the community and who are also supporting our NHS colleagues to facilitate speedy discharges from hospital.

I know his is a lovely thing to do, I lost my mum, Shirley Churcher on 13th January 2014 after battling mesothelioma and on 2nd February 2020 my husband lost his mum, Pauline Ware who left us quite suddenly. RIP we miss them

@Mwrites2 @FNDHopeUK Hi I will do, I just wish I could get her treatment,, all the carers do is help to care for her what she needs is rehabilitation so she can find herself again. There is a strong woman inside who I’m sure just wants to find a way back

@ColvinLouise @FightersFnd Thank you for your kindness

@warewendy_ware @FightersFnd Thinking of you tonight. Praying for you and your lovely daughter. Hugs from over the water 🍀

Despite a diagnosis of FND our daughter remains unable to eat, experiences migraines, NEAD, widespread pain and requires a wheelchair. She was a neonatal nurse until 4 years ago. When will the NHS wake up?

@MattHancock @GdnSocialCare It’s great to finally see more discussions regarding social care and the need for reform. However there remains huge gaps in provision. My daughter has FND which has resulted in her giving up her job as a neonatal nurse to being completely dependent on 24 hour care.

Delighted to be reappointed as Secretary of State for Health & Social Care. Here’s why 👇

It’s great to see so much more written about FND. however we still struggle to find the right support for the people we love whose lives are turned upside down as a result of FND. We had to pay privately to get our adult daughter to see specialist, dr Mark Edwards 3 years ago.