Niki 🏴󠁧󠁢󠁷󠁬󠁳󠁿

16.9K posts

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Niki 🏴󠁧󠁢󠁷󠁬󠁳󠁿

Niki 🏴󠁧󠁢󠁷󠁬󠁳󠁿

@Fizzbw

Life~Pain~Wellbeing Coach (inc prescribed med taper support). Persistent Pain advocate, LEX, Patient Partner. “Recovery is Possible” same handle on 🦋

Wales Katılım Haziran 2009
2K Takip Edilen1.2K Takipçiler
Niki 🏴󠁧󠁢󠁷󠁬󠁳󠁿
@angpeacock1111 @GKasioumi And they interact with other meds used for these things. I had concurrent fentanyl & tricyclic withdrawal and was treated like a mad addict by the HCPs. It was anxiety, health anxiety, and I definitely wasn’t having SI. I survived despite them and because Covid happened.
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Angie Peacock, MSW, CPC
Angie Peacock, MSW, CPC@angpeacock1111·
@GKasioumi Off-label uses are not studied for the most part. They should be. These drugs are not all begnin and benefit everyone all the time and long-term. And patients should be informed of that.
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Giota Kasioumi
Giota Kasioumi@GKasioumi·
Let’s not forget the people taking antidepressants not for depression, but for chronic pain, migraines, or IBS. They’re thousands and often invisible in the conversation about withdrawal.
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Niki 🏴󠁧󠁢󠁷󠁬󠁳󠁿
@evek181818 I got the vet to come to me & it was a beautiful passing. Remember they don’t measure time or death the way we do. They just know the love. I made a video of Apple’s life which helped & helps. I wonder if you could make one for your sweet one? Also, don’t be afraid to talk 🫂
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Niki 🏴󠁧󠁢󠁷󠁬󠁳󠁿
@evek181818 I lost my boy on the 1st May from gastrointestinal cancer. Lots of anticipatory grief, & I honoured it, but used it to trigger me to love on him. We visited fav places, I kept him with me all the time. I loved on him. I miss him horribly, it was just me & him & now it’s just me.
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Niki 🏴󠁧󠁢󠁷󠁬󠁳󠁿
@markhoro @recover2renew I think there is also another population. I was one who investigated but I’ve talked to many who just shrugged & just struggled on, some looked into it, others just carried on even in some pretty gnarly situations. The trust in & ability to see a GP is plummeting.
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Mark Horowitz @markhoro.bsky.social
I think when doctors say they don’t see withdrawal it goes something like this. - The average GP/PCP has 2000 patients under their care, -200 on antidepressants (10% of pop), -studies show 6% of people stop their AD each year (eveleigh, 2018) in regular practice so 12 people stop -4 will have no major issues, -4 will have moderate issues, -4 severe issues. Of the 8 with problems 6 or 7 will be told or think it is relapse and go back on meds (of course textbooks and training say relapse is very common, withdrawal is a minor concern so it would be a pretty rare physician to see what they haven’t been taught to see). 1 or 2 will say this doesn’t make sense, research it, try to work out what is going on and make a point about it to doctor (30% of people on social media groups for withdrawal have graduate degrees). And so the doctor will say ‘I rarely if ever see this’ because drugs are rarely stopped and the correct diagnosis is rarely made. It takes a motivated, thoughtful patient to push the issue. There are currently about 200,000 such patients, and growing rapidly. Given that most studies of withdrawal from relatively long term treatment show 60%+ of patients experience withdrawal syndromes of at least 4 withdrawal symptoms (Rosenbaum 1998) it is simply not plausible that most people are not having pronounced withdrawal effects. And that's before we even talk about the plausibility of the concept of 'relapse'....
Giota Kasioumi@GKasioumi

@angpeacock1111 @washumedicine I relate to this so much. I ended up with “possible early MS,” “maybe lupus,” “maybe another autoimmune disease or cancer”. And on top of that, I was met with unbelievable anger and hostility simply because I kept trying to understand what was happening to me.

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Eli McCann
Eli McCann@EliMcCann·
My husband made me take new headshots for my upcoming book because I've been using the same one for like seven years. I hate pictures of myself. Please just tell me which one of these to use for the back of the book.
Eli McCann tweet mediaEli McCann tweet mediaEli McCann tweet mediaEli McCann tweet media
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Niki 🏴󠁧󠁢󠁷󠁬󠁳󠁿
@LifeIsSkewed @BettingSitesCom I was secretary to the committee overseeing microchips for GB/Irish TBs. The hopes they had of them, none come to fruition 😢 there should have been cradle to grave traceability. More than stallion caps. Inbreeding coefficients, soundness etc. I’d be a big dictator!!!
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Life is Skewed
Life is Skewed@LifeIsSkewed·
@Fizzbw @BettingSitesCom In theory TB’s traceable via their passport but the legal obligation to update when ownership changes open to abuse Change of ownership being the responsibility of the seller or agent (like a V5 vehicle transfer) would help traceability Stallion caps would help with breeding
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Life is Skewed
Life is Skewed@LifeIsSkewed·
@Fizzbw @BettingSitesCom £6 from every sale goes to an RoR levy Would raise much more if it was a percentage Sales houses could take 1% on sales ➡️ TB retirement fund accessible to those that fall into the wrong hands or on hard times and need help
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Niki 🏴󠁧󠁢󠁷󠁬󠁳󠁿
@ShaunLintern My neurosurgeon 🤷🏽‍♀️ thankfully didn’t try to shag me. Shame I always found him very good & professional. Messy stuff, but not fucking your patients is pretty basic ethics. (Nothing to do with his ethnicity for those who are saying that, get out of here with that pathetic stuff)
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Niki 🏴󠁧󠁢󠁷󠁬󠁳󠁿
@Fionas_Story Me too, though on twitter this is a very toxic debate often. I’m interested in the cross over between iatrogenic harm from drugs & neuoplastic changes. But do feel we need to start from a position of harm, yet that is so often denied. The harm can absolutely be mitigated however.
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Fiona
Fiona@Fionas_Story·
I'm finding this a really interesting conversation. Really good to see the different perspectives
Om Prakash, MD@ompsychiatrist

Dr. Moncrieff, your post is sparking a vital debate, but as a psychiatrist seeing patients climb out of severe depression every single week, I can’t stay silent on the one-sided narrative. Here’s my perspective point by point: 1. On harms like severe withdrawal and PSSD: Withdrawal is real and can be tough. We urgently need better & slower tapering protocols. PSSD is a rare but acknowledged risk, and we discuss it openly in consent. With careful, patient-led tapering, the vast majority stop without lasting issues. 2. On effectiveness (“not very effective at best”): Large meta-analyses (Cipriani Lancet 2018 and later network studies) show clear & meaningful benefits over placebo for moderate-to-severe depression i.e. real symptom relief, fewer relapses and better daily functioning for many. They shine brightest alongside with therapy. 3. On not targeting an underlying biological abnormality: The old “chemical imbalance” line is a strawman we’ve moved past. Depression involves complex biology involving genetics, stress responses, inflammation and neuroplasticity. Antidepressants help modulate those pathways, much like treatments for other multifactorial conditions. 4. On growing patient voices describing treatment as misleading or disabling: Every voice matters, especially the painful ones. In clinic, however, the majority of patients report getting their lives back i.e. work, relationships & hope. Untreated depression carries its own heavy costs. Online spaces can sometimes amplify one side. 5. On working together to help the harmed and prevent more harm: I am 100% with you on better surveillance, tapering clinics and more research into alternatives. Real collaboration would be powerful. At the same time, broad discouragement risks leaving many who could benefit stuck in suffering. Thank you for kind attention @joannamoncrieff

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Fiona
Fiona@Fionas_Story·
A great legacy. Flick clearly worked hard to help people living with pain and what I take from that is that if you are in pain, you aren't alone and you aren't forgotten. Many are out there trying to help you
Dr Gillian Chumbley OBE 💙@GillChumbley

Lovely to see @FeliciaJCox obituary in the printed Guardian today. It’s been online for a few weeks. ❤️

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Niki 🏴󠁧󠁢󠁷󠁬󠁳󠁿
@theGROWcompany I used to work in the Racing Dept a looooong time ago. Under staffed, under appreciated, under paid but good people. The wider and competing interests not so much…. We were always firefighting, never innovating.
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Rachel Rosser
Rachel Rosser@theGROWcompany·
@Fizzbw Its a broken, antiquated business model being swallowed up & controlled by gambling, which is surely a conflict of interest for both horse & jock. BHA perhaps never been fit for purpose as they contributed to 'developing' the model. Plenty of people within it equally frustrated.
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Rachel Rosser
Rachel Rosser@theGROWcompany·
Incredibly saddening - Washington Singer listed as deceased as of yesterday, after being pulled up 6th May Fontwell. RIP fella. Another Chris Gordon.
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Niki 🏴󠁧󠁢󠁷󠁬󠁳󠁿 retweetledi
Danny Boy
Danny Boy@Care2much18·
Almost 10,000 likes for straight-up lies by Annunziata Rees-Mogg, quote: "Asylum seekers make up 0.08% of Dorset's population and 44% of alleged sex offences. So unbelievable I had to check. It's true." It's not true, it's utter garbage. I'll go through facts and figures. /1
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Niki 🏴󠁧󠁢󠁷󠁬󠁳󠁿 retweetledi
Classical Studies Memes
Turns out translating polytropos is more complicated than first thought 🤔
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