Glioblastoma Support Network

“It hits you like a ton of bricks…” Janet Fanaki shares what it’s like to hear the words “brain tumor” and how caregivers can find strength, answers, and support. 🎥 Caregiver Chronicles Ep. 2 is now live with @WeTrialshub 📺 Watch full episode on Youtube: youtu.be/KARVD_bbM_U 🔍 Explore clinical trials at wetrials.com/find-trials #BrainTumorAwareness #Caregivers #Glioblastoma #WeTrials @DrAMansouri @IvyBrainTumCtr @theABTA @NBTStweets @theNCI @BrainTumourOrg @ThanksCancer @TheCancerSutra @CancerResearch @BTNcares @GSN_Support @oncodaily

Could it be more than just a tummy ache? Neuroblastoma often starts with subtle signs—abdominal swelling, fatigue, or eye changes. It mostly affects children under 5, and early detection can save lives. 👶 Know the signs. 🔬 Understand the diagnosis. 💛 Support awareness. Explore resources and find clinical trials: linktr.ee/wetrials #Neuroblastoma #ChildhoodCancerAwareness #KnowTheSigns #PediatricOncology #BeatChildhoodCancer #WeTrials #EarlyDetection #ClinicalTrials #ParentSupport #CancerAwareness @NMTRC @beatccorg @DrAMansouri @IvyBrainTumCtr @theABTA @NBTStweets @theNCI @BrainTumourOrg @ThanksCancer @TheCancerSutra @CancerResearch @BTNcares @GSN_Support @oncodaily

🧠 July 16th is Glioblastoma Awareness Day 🧠 Navigating the challenges of a brain tumor diagnosis isn't easy. Join us as we stand with the brave patients and families facing this journey. Finding hope shouldn't require navigating complex medical database 👉Good News: Clinical trial searches just got simpler! 💙 @WeTrialshub offers a patient-focused platform that translates medical jargon into plain language, filters for actively recruiting brain tumor, neuroblastoma, glioblastoma and other studies, and provides real-person support to guide you through your options. Unlike traditional databases built for researchers, WeTrials specializes in brain tumor trials and connects you directly with clinical research professionals who can help. Explore now: wetrials.com/find-trials Read more about how WeTrials is changing the game: wetrials.com/learning-cente… You don't have to search alone. Every patient deserves clear information, relevant results, and compassionate support on their journey. Know someone willing to share their experience and help us improve? Please DM us today! Your story matters. 💬 #GlioblastomaAwarenessDay #BrainCancerAwareness #ClinicalTrials #WeTrials #Hope #PatientSupport #BrainTumor #shareyourstory @NMTRC @beatccorg @DrAMansouri @IvyBrainTumCtr @theABTA @NBTStweets @theNCI @BrainTumourOrg @ThanksCancer @TheCancerSutra @CancerResearch @BTNcares @GSN_Support @oncodaily

🧠 ONE DAY TO GO until Glioblastoma Awareness Day 🧠 Join us as we stand together for the 12,000+ people diagnosed with glioblastoma each year. But today, we're taking action to help YOU navigate one of the most overwhelming aspects of this journey: your finances. 💡 Did you know? The average brain tumor patient faces $100,000+ in medical costs, and 42% of cancer patients exhaust their life savings within 2 years of diagnosis. You don't have to face this alone. We've created the ultimate Financial Planning After Brain Tumor Diagnosis guide—your roadmap for the critical first month when everything feels chaotic. What's inside: ✅How to assess your insurance coverage BEFORE treatment starts ✅Step-by-step checklist for organizing medical bills ✅Hidden financial assistance programs (up to $5,000/year!) ✅Emergency legal safeguards to protect your family ✅Medication assistance programs that can save thousands ✅Work/disability planning essentials Real talk: "I wish I had met with a financial planner a couple of months into it instead of two years later," shares one GBM caregiver. Don't wait—get ahead of the financial stress so you can focus on what matters most: your health and family. Download your FREE comprehensive guide now under Free Downloadable Resources: linktr.ee/wetrials 👆 Stuck or need support? The WeTrials app connects you with real-person help—one click away for advanced treatment. Because no one should navigate this journey alone. Check our Study Finder: wetrials.com/find-trials/ Share this post to help another family get the financial guidance they need. Together, we're stronger. 💪 #GlioblastomaAwarenessDay #BrainTumorSupport #WeTrials #FinancialPlanning #BrainCancer #CancerSupport #GBM #MedicalBills #CancerCare #SupportNetwork #onedaytogo @NMTRC @beatccorg @DrAMansouri @IvyBrainTumCtr @theABTA @NBTStweets @theNCI @BrainTumourOrg @ThanksCancer @TheCancerSutra @CancerResearch @BTNcares @GSN_Support @oncodaily

🧠💜 Glioblastoma Awareness Day: Knowledge is Your Superpower 💜🧠 July 16, 2025 | Today we honor every GBM warrior and the families who fight alongside them. 🎯 NEW DROP ALERT 🎯 Brain Tumor Treatment Travel Checklist is now LIVE in the WeTrials Learning Centre! ✈️ Going the distance for treatment? Whether it's daily radiation 50 miles away or a clinical trial across the country, we've got your back with practical tips to manage costs and logistics. 🗺️ This Checklist Covers: 👍 Free Housing Programs (Hope Lodge, Healthcare Hospitality Network) 👍 Transportation Help (volunteer drivers, medical flight programs) 👍 Travel Grants from foundations like Good Days & HealthWell 👍 Smart Savings on parking, meals & incidentals 👍 Backup Plans for unexpected expenses 💡 Why This Matters Brain tumor treatment shouldn't be limited by geography. Every patient deserves access to the best care, whether it's in their backyard or across the country. This checklist removes the guesswork from medical travel planning. 🔥 Third in Our Series Following our first two financial checklist and first 30 days checklist after Brain tumor diagnosis, we're building a complete resource library to empower patients and families with practical, actionable tools. 👉 Download now at WeTrials Learning Centre or from Free Download Resources in: linktr.ee/wetrials Because when you're fighting GBM, the last thing you should worry about is how to get to treatment. #GBMDay #GlioblastomaAwarenessDay #WeTrials #BrainTumorSupport #MedicalTravel #ClinicalTrials #PatientResources #GBMWarriors #BrainCancerAwareness #TravelForTreatment #PatientAdvocacy #LearningCentre #UseYourBrains #BrainTumorCommunity #MedicalJourney @NMTRC @beatccorg @IvyBrainTumCtr @theABTA @NBTStweets @theNCI @BrainTumourOrg @ThanksCancer @TheCancerSutra @CancerResearch @BTNcares @GSN_Support @oncodaily

As a neurosurgeon-scientist, I've been privileged to work alongside an incredible team dedicated to advancing brain tumor care. Today, we're launching our website to share our research more openly and connect with others who share our mission. Our work focuses on liquid biopsy techniques and surgical clinical trials, always with the hope of improving outcomes for patients facing brain tumors. The website features our ongoing publications, and research initiatives—all aimed at making complex medical research more accessible. Every day, I'm inspired by the patients we serve and humbled by the trust they place in our team. This platform represents our commitment to transparency, collaboration, and advancing compassionate care. Whether you're a fellow clinician, researcher, student, or someone seeking information about brain tumor research, I invite you to explore our work. Together, we continue pushing the boundaries of what's possible in neuro-oncology. Thank you to everyone who has been part of this journey. Your support makes this work possible. 🔗 Visit mansourimd.com 🔗 Find simplified brain tumor clinical trials: mansourimd.com/find-trials/ #BrainTumorResearch #Neurosurgery #ClinicalTrials #LiquidBiopsy #NeuroOncology #PatientCare #Research #Collaboration @NMTRC @beatccorg @IvyBrainTumCtr @theABTA @WeTrialshub @NBTStweets @theNCI @BrainTumourOrg @ThanksCancer @TheCancerSutra @CancerResearch @BTNcares @GSN_Support @oncodaily

🧠 Glioblastoma Awareness Week Continues: Caregivers Are Heroes Too 💜 Day 4 of our series | Because behind every brain tumor warrior is a caregiver who deserves support. 🚨 CHECKLIST #4 JUST DROPPED 🚨 Organizing Caregiver Finances & Support Systems Checklist now available in WeTrials Learning Centre! 💪 To every caregiver reading this: You've rearranged your life, maybe left your job, and put your own needs on hold. This checklist is FOR YOU. 🎯 Your Caregiver Survival Guide Includes: 💡FMLA & Leave Options (protect your job while caring) 💡One-Income Budgeting (when everything changes overnight) 💡Caregiver Financial Assistance (yes, there's help specifically for YOU) 💡Support Network Building (delegate to prevent burnout) 💡Respite Care Planning (you need breaks too) 💡VA & State Programs (compensation for family caregivers) 💡 Real Talk: A stressed, burned-out caregiver can't effectively care for their loved one. Your financial stability and mental health aren't selfish priorities – they're essential for the fight ahead. 🔥 Building Our Resource Library ✅ Financial Planning Checklist (Released) ✅ Travel Treatment Checklist (Released) ✅ Caregiver Support Checklist (NEW!) 📲 Access Simplified Clinical Trials & Download Now (Check Free Downloadable Resources) 👉 Get everything at: linktr.ee/wetrials WeTrials Learning Centre has your back with practical, actionable tools that work in the real world, because caregiving is hard enough without having to figure out finances alone. 👉 Pro Tip: The WeTrials app provides tailored support for extended family too. Whether you're caring for a child, partner, or parent, you're not alone in this journey. #GlioblastomaAwarenessWeek #CaregiverSupport #WeTrials #BrainTumorCaregivers #GBMCaregivers #CaregiverFinances #PatientAdvocacy #BrainCancerSupport #CaregiverResources #LearningCentre #FamilyCaregivers #BrainTumorFamily #CaregiverBurnout #SupportSystems #GBMWarriors #CaregiverWellness @NMTRC @beatccorg @IvyBrainTumCtr @theABTA @NBTStweets @theNCI @BrainTumourOrg @ThanksCancer @TheCancerSutra @CancerResearch @BTNcares @GSN_Support @oncodaily

You don’t have to face brain cancer alone. 💙 Whether you're a patient, caregiver, or family member—support is out there. From emotional guidance to financial aid and clinical trial navigation, these organizations are here to help you every step of the way. 🧠 In our latest guide, we spotlight the top advocacy groups including ABTA, NBTS, GSN, BTN, PBTF, Musella Foundation, and more. 📖 Explore the resources, find community, and take empowered next steps: 🔗wetrials.com/learning-cente… #BrainCancerSupport #GlioblastomaAwareness #CaregiverSupport #ClinicalTrials #WeTrials #BrainTumorAwareness #youarenotalone @NMTRC @beatccorg @IvyBrainTumCtr @theABTA @NBTStweets @theNCI @ThanksCancer @TheCancerSutra @CancerResearch @BTNcares @GSN_Support @oncodaily @PBTF @AlMusella

Brain Tumor Awareness Month A Time to Reflect—and Move Forward Over the years, brain tumor treatment has evolved from one-size-fits-all protocols to personalized therapies, advanced imaging, and precision clinical trials. Today, there’s more hope than ever before—but only if patients can access the options available to them. At WeTrials, we're here to help. Whether you're newly diagnosed or exploring what's next, our platform makes it easier to: 🔍 Find clinical trials that match your condition 📚 Access trustworthy information 🤝 Feel supported through each step This May, we honor how far we’ve come—and continue working toward a future where research is more accessible, and no patient feels lost or alone. 👉 Visit wetrials.com/find-trials/ to explore tools, trials, and trusted resources. #BrainTumorAwarenessMonth #clinicalresearch #wetrials #trialsofhope #NeuroOncology #BetterTogether @DrAMansouri @IvyBrainTumCtr @theABTA @NBTStweets @theNCI @BrainTumourOrg @ThanksCancer @TheCancerSutra @CancerResearch @BTNcares @GSN_Support @oncodaily

💜 Understanding the Path to Hope This Brain Tumor Awareness Month, we’re breaking down what clinical trials really mean—for patients, caregivers, and the future of brain tumor care. Swipe to learn: 🔹 What clinical trials are 🔹 Why they matter 🔹 Who can join 🔹 How safety is ensured 🔹 And how to find one near you Because when knowledge meets compassion, hope becomes possible. 👉Explore trials, learn about your condition, and get support—all in one place: n7xb9.app.link/Study-Finder #TrialsOfHope #BrainTumorAwareness #WeTrials #HopeThroughResearch #ClinicalTrialsExplained #BrainTumorAwarenessMonth #clinicalresearch #wetrials #trialsofhope #NeuroOncology @DrAMansouri @IvyBrainTumCtr @theABTA @NBTStweets @theNCI @BrainTumourOrg @ThanksCancer @TheCancerSutra @CancerResearch @BTNcares @GSN_Support @oncodaily

🔬 Step by Step: The Journey of a Clinical Trial Behind every breakthrough is a question, a patient, and a path paved with hope. This Brain Tumour Awareness Month, discover how trials work—and how they bring us closer to better care, answers, and healing. 🧠 Explore. Learn. Participate. 👉Explore trials, learn about your condition, and get support—all in one place: n7xb9.app.link/Study-Finder @DrAMansouri @IvyBrainTumCtr @theABTA @NBTStweets @theNCI @BrainTumourOrg @ThanksCancer @TheCancerSutra @CancerResearch @BTNcares @GSN_Support @oncodaily #TrialsOfHope #BrainTumourAwarenessMonth #ClinicalTrials #WeTrials #HopeInResearch

💛 Why Join a Clinical Trial? It’s not just about treatment. It’s about impact. Whether you're seeking new options, better care, or a way to give back—clinical trials offer hope for today and breakthroughs for tomorrow. ✨ Discover new treatments 🧠 Take control of your care 🌍 Help advance brain cancer research 📲 Use our Study Finder to see what’s possible: Explore trials, learn about your condition, and get support—all in one place: n7xb9.app.link/Study-Finder Your story could change someone else's future. #TrialsOfHope #BrainTumourAwarenessMonth #ClinicalTrials #WeTrials #HopeInResearch @DrAMansouri @IvyBrainTumCtr @theABTA @NBTStweets @theNCI @BrainTumourOrg @ThanksCancer @TheCancerSutra @CancerResearch @BTNcares @GSN_Support @oncodaily

A conversation we all need to hear. 📷 Lisa Desautels joins death doula Chay Johnson from Embracing Sunset to open space for acceptance, planning & healing. 📷Watch complete Podcast youtu.be/u2RNHk-gyhw #GBM #GriefSupport #DeathDoula #CaregivingMatters #Glioblastoma #Podcast

@2StefanMoore Stefan, your words hold so much truth and emotion. 💜 At Glioblastoma Support Network, we believe that the love and strength of those we've lost should never fade. If you’d like to honor their memory in a meaningful way, we’d love to connect.💜 #LegacyOfLove #HonorTheirMemory

When a parent loses a Child, it is a long & emotional process. It starts on the day your Child passes away & will only end when the parent joins them.

Today, on Rare Disease Day, we stand in solidarity with millions of individuals and families affected by rare conditions. 💜 At WeTrials, we believe every patient deserves access to the latest research and clinical trials that could change lives. With over 300 million people living with a rare disease worldwide, advancing clinical trials and research is more important than ever. 💡 How You Can Help: ✅ Raise Awareness – Share this post and start a conversation. ✅ Support Research – Encourage participation in clinical trials. ✅ Advocate for Change – Push for better policies and treatments. Together, we can turn hope into breakthroughs. Because every patient matters. 💙 📲 Download the WeTrials app today and find the support you deserve: n7xb9.app.link/ClinicalTrials📷 #RareDiseaseDay #ClinicalTrials #WeTrials #ResearchMatters #EveryPatientMatters #HopeForRare @rarediseaseday @IvyBrainTumCtr @DrAMansouri @mcintose @theABTA @NBTStweets @BrainTumourOrg @braincancercan @ThanksCancer @theNCI @StupidCancer @GSN_Support

"Personalized medicine tailors treatments to a patient’s unique biology, often focusing on the biology of their tumor. This approach helps match patients with experimental therapies designed to work best for their specific condition." 🎙️ Dive into the World of Brain Tumor Research and Advocacy! In this powerful episode, Dr. Alireza Mansouri hosts Dr. Nader Sanai, Director of the Ivy Brain Tumor Center and Chief of Neurosurgical Oncology at Barrow Neurological Institute, along with patient advocate Emily McIntosh. Together, they explore: ✅ The future of brain tumor research and personalized medicine ✅ Breakthrough #Clinicaltrial reshaping patient outcomes ✅ The power of #patientadvocacy in driving innovation 💡 Get insights from the experts and hear firsthand stories of resilience and hope. 🎧 Watch the full podcast on YouTube/Spotify and join the conversation! 🔗linktr.ee/wetrials @IvyBrainTumCtr @DrAMansouri @mcintose #braintumorresearch #clinicaltrials #patientadvocacy #podcast #MedicalInnovation #ivybraintumor #wetrials @theABTA @NBTStweets @BrainTumourOrg @braincancercan @ThanksCancer @theNCI @StupidCancer @GSN_Support

🎙️ "What are Window-of-Opportunity Trials?" Have you ever wondered how early-phase clinical trials, like "Phase 0 trials", help shape the future of brain tumor treatments? 🤔 In our latest podcast, patient advocate Emily McIntosh asks the important question: "What does a patient do in a window-of-opportunity trial? And what happens if the results are negative?" Dr. Nader Sanai from the Ivy Brain Tumor Center breaks it down, sharing how these trials provide critical insights into drug effectiveness while minimizing time and risk for patients. 💊✨ 👉 Tune in now to explore the patient journey, the science behind these trials, and why even "negative" findings matter! 📺 Watch the full episode here: linktr.ee/wetrials #braintumorresearch #clinicaltrials #windowofopportunity #Trials #phase0 #patientadvocacy #wetrials #podcast #HopeInResearch @IvyBrainTumCtr @DrAMansouri @mcintose @theABTA @NBTStweets @NMTRC @AmericanCancer @GSN_Support @BrainTumourOrg @ThanksCancer @theNCI @StupidCancer

🌟 Discover the Future of Brain Tumor Treatment! 🌟 Dr. Nader Sanai and his team at the Ivy Brain Tumor Center are breaking barriers with game-changing clinical trials. 🧠 Learn how their innovative approach turned a promising drug, Niraparib, into a global Phase 3 trial—advancing patient outcomes in record time! 🚀 🎧 Listen to the full story now on YouTube or Spotify and get inspired by the cutting-edge science shaping the future of neuro-oncology. 🔗 Click the link to tune in and join the conversation: 📺 linktr.ee/wetrials #braintumorresearch #clinicaltrials #windowofopportunity #Trials #phase0 #patientadvocacy #wetrials #podcast #HopeInResearch @IvyBrainTumCtr @DrAMansouri @mcintose @theABTA @NBTStweets @NMTRC @AmericanCancer @GSN_Support @BrainTumourOrg @ThanksCancer @theNCI @StupidCancer

🌟 Hope, Compassion, and Support for Glioblastoma Caregivers🌟Join Lisa Desautels as she shares her heartfelt journey as a glioblastoma widow and her dedication to empowering caregivers through the Glioblastoma Support Network. glioblastomasupport.org/donate/ #GlioblastomaAwareness

🎄 As the holiday season fills our hearts with gratitude, we’re reminded of the strength and hope our GSN community brings to glioblastoma patients and caregivers. Together, we’ve made a difference—but there’s so much more to do. Click to support: glioblastomasupport.org/donate/