AlbinismAlliance

Right to employment for persons with albinism - Report of the Independent Expert on the enjoyment of huma rights by persons with albinism ohchr.org/en/documents/t…

🎥 Daniël Herter shared his passion project yesterday: the story of Ukerewe, an island in Tanzania where people with albinism are safe. And that contrast hits hard - because in many other places across Tanzania, albinism is still seen as a curse linkedin.com/posts/activity…

This landmark two-day event united some 70 delegates from 30 countries, forging the first-ever global coalition of stakeholders dedicated to combating the preventable crisis of skin cancer in persons with albinism (PWA).

Following intensive post-event deliberations to consolidate insights and chart a unified path forward, the @GlobalAlbinism, @ILDSDerm, & @StandingVoice announce the finalized outcomes of the inaugural World Skin Forum on Skin Cancer Prevention and Management in PWAs

PRESS RELEASE: Global Leaders Finalize Key Outcomes from Inaugural World Forum on Skin Cancer Prevention in Persons with Albinism. albinismalliance.org/news/global-le…

We’re proud to have connected with so many experts and allies, and to keep albinism firmly on the dermatology agenda. We’re excited to continue these conversations in 2026 and to see the impact they will have for persons with albinism worldwide. 💙 #Albinism #Dermatology

For the albinism community, it’s a vital moment to advance research, share knowledge and advocate for better care and understanding of albinism.

🧵The GAA team was thrilled to attend the Journées Dermatologiques de Paris (JDP) last week – our last conference of the year. 🇫🇷✨ This congress brought together francophone leaders in dermatology from across the globe.#RareDiseases #SkinCancerPrevention

Yet attacks continue. Stigma persists. Cancer kills silently. No child should live in fear because of the color of their skin. Stand with us. ✨ #AlbinismAlliance #Albinism #HumanRightsDay #AlbinismIsNotACurse

• UN resolutions condemning attacks • Global reports exposing myths & violence • Legal & policy changes in 10+ countries • A voice at the highest table saying: “Albinism is not a curse. It is a human rights issue.”

🧵 On #HumanRightsDay, we celebrate a historic victory for people with albinism worldwide. In 2015, the @UN created the Independent Expert on albinism - the world’s first & only human rights mandate dedicated to protecting one specific genetic condition. Why?

May his story continue to inspire inclusive leadership and higher expectations for what is possible. ✨ If you worked with Mike or were influenced by his advocacy, we’d be grateful if you shared a reflection or lesson you carry forward from him.

One year ago, our we lost an exceptional leader: Mike McGowan As we remember Mike today, we honor his vision: a world where people with albinism are seen, included and allowed to thrive. 💙 #AlbinismAwareness #Inclusion #DisabilityRights #GlobalAlbinismAlliance

The Global Albinism Alliance welcomes the stark warning from UN Independent Expert Muluka-Anne Miti-Drummond on the dire skin cancer crisis affecting people with albinism, as detailed in the recent OHCHR press release 👇 albinismalliance.org/news/global-al…

Doctors & med students with albinism, we’re looking forward to seeing you for our next meeting of Doctors with Albinism on Sunday, December 7th at 9am ET // 6am PT. Join us to connect and share with peers who understand the journey of medicine as a PWA. #doctors" target="_blank" rel="nofollow noopener">albinism.org/NOAH-Connectio…

☀️DYK - Persons with albinism face a staggering 1,000x higher risk of skin cancer. At the Global Albinism Alliance (GAA), we're committed to raising awareness, providing sunscreen access, and advocating for protective policies worldwide. Let's protect and empower our community!

We're excited to share this important update from @IARCWHO on advancing equitable cancer prevention worldwide. As the GAA continues to support cancer awareness and research through our community initiatives, let's all tune in to learn how we can make a difference 👇

🎥 Have a watch of this great video of young people with albinism talking honestly about what it’s like being a PWA in 2025!! @LOOK_UK #iaad2025 #AlbinismDay #albinism #nystagmus #Disability

🌍 Dive into the real story behind the challenges and triumphs of securing sunscreen on the @WHO Essential Medicines List. A huge win for #albinism communities worldwide! 🌍🛡️ #WHO #EML #HealthEquity #AlbinismAwareness