Global DARE Foundation

Listen now by visiting AMI.ca/liveaudio! #Refsum

This #DeafblindAwarenessWeek, we honor Helen Keller, who overcame tremendous obstacles to become an influential advocate for the deafblind community. Helen Keller's indomitable spirit and unwavering determination continue to inspire the Foundation's work. #HelenKellerDay

An early diagnosis can make a huge difference for folks with this rare disease. The Global DARE Foundation is funding research to make lives better for those with Refsum. Register for DARE Fest 2023 today and help us reach our goal of $35,000! givebutter.com/DARE-Fest-2023 #DareFest

givebutter.com/DARE-Fest-2023 Register for #DAREFest 2023 and make a difference for people like Sharon who is legally blind because of not receiving an accurate diagnosis for 40 years! She discusses how Global DARE Foundation is making a difference. #refsum youtu.be/S_F0RkgLv4k

Support Refsum Awareness Week @ DARE Fest 2023 Research = Knowledge = Better Living Online activities June 10-18. Patient Stories, Refsum Diet Challenge and educational videos from medical experts. Learn More & Register: givebutter.com/DARE-Fest-2023 #CureRefsum #RareDisease

@GlobalDAREFound @CNIB @guidedogs @RNIB @rarediseaseday @RareDayUS @CNIB_DBCS @fight_blindness @FB_Canada @PBA_savingsight On behalf of the Board of Directors of the @GlobalDAREFound, I'm looking forward to #Darefest2023 activities. Get involved, participate, educate, and if you can, donate a few dollars. Everyone associated with Global DARE is committed to making a difference for #Refsum patients.

Start the summer with impact: DARE Fest 2023 – June 10-18! givebutter.com/DARE-Fest-2023 Refsum is a rare disease that impacts people of all ages and genders changing vision, mobility & many aspects of life. Early diagnosis and diet improve lives! #DareFest2023 #refsum #RareDisease

Refsum is one of 7000 rare diseases. Global DARE Foundation is here to Defeat Adult Refsum Everywhere. Learn about how we are making a difference in improving the quality of life of people with Refsum by enabling earlier diagnosis & more: youtu.be/zxpGPeSEs9o #RareDiseaseDay