
Please -everyone! Since #Refsum is essentially a genetically linked metabolic disorder with some telltale anatomical anomalies, early diagnosis and reduction of phytanic acid in one's diet can slow the course of neurological decline. The first step is awareness and diagnosis.
Global DARE Foundation@GlobalDAREFound
Support Refsum Awareness Week @ DARE Fest 2023 Research = Knowledge = Better Living Online activities June 10-18. Patient Stories, Refsum Diet Challenge and educational videos from medical experts. Learn More & Register: givebutter.com/DARE-Fest-2023 #CureRefsum #RareDisease
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