Fariel Good

You were the "problem child." The difficult one. Here's what life was like for you:

The first steps in addressing a problem is recognising there is one. Palliative care research is inadvertently racist. We must face our research shadow face and make changes. Please read and reflect. journals.sagepub.com/eprint/AZYNRNQ…

From 1 November pupils in East Dunbartonshire can swim or use the gym for FREE as part of a support package announced by the Council. In EDLC centres between Nov and March, primary pupils can enjoy swimming and secondary students can access gym sessions > crowd.in/0he1NH

My son was talking about how he interacts with a minimally verbal child in his class. "You just have to listen mum. He's telling you things but not with words. You have to do the same, then you can play" #SonOfASpeechie #CommunicationAbility

It costs £1k a month to cover the costs of caring for Louie. DLA covers just £350. His mum Kerry is terrified for the winter. Alongside @contactfamilies, @scope and other orgs, we have written to @RishiSunak & @trussliz calling for urgent action. togetherforshortlives.org.uk/changing-lives…

@TheAPPMuk Thank you @TheAPPMuk 🦋

Powerful blog post and video from @BirdgirlUK as @GreenpeaceUK and @RunnymedeTrust launch their report on racism and the environmental emergency greenpeace.org.uk/news/environme…

Let us join hands to change our practice in Childhood Disability!  Join the International Alliances of Academies of Childhood Disability for the launching of the first-of-its-kind Community of Practice sessions within #IAACD.

This summer is going to be tough for a lot of families, please #RT it may help someone

Are you a health professional in a Paediatric Intensive Care Unit? *WE NEED YOUR HELP* ...on study design, outcome measures + recruitment for our end-of-life care research Join us for an online meeting on Friday 24 June, 1-3pm (via Zoom) Contact: dohs-enhance@york.ac.uk

Don’t be so quick to judge or label. You may have a theory, but work to confirm or deny it through conversations that are compassionate and seek to understand, based on curiosity and care.

EPNS Educational Webinar Wed 8 June 2022 17h CET Angelman syndrome: clinical characteristics and the promise of antisense oligonucleotide (ASO) treatment Professor MYpe Elgersma and Marie Claire Y. de Wit us02web.zoom.us/webinar/regist…

@alesbales I’ve seen mask with glasses look in Spain for the on/off purpose too 😷

Bringing back the glasses with chain look.. 👓 #Glasses #glasseschain

This is such an insightful use of language #AutismAcceptance

@h0pefulmummy @MikeLingPilot @musclewarrior @RAFBF @RAFLossiemouth @PPWHospice Such a wonderful story! Great job Dr Laidlaw 👏🏽👏🏽👏🏽

There are days when my job is more awesome than awesome and this was one of them! Thank you to everyone who helped make it happen @MikeLingPilot @musclewarrior @RAFBF @RAFLossiemouth @PPWHospice 😃🛩🦼🥫

@CYPNMCN Chris Kidson Pelican @BACD_tweets @RCPCHtweets

Highlighting the importance of improving transition for young adults with complex and palliative needs.The ONLY poster on transition today. We need to expand interest, services and funding @h0pefulmummy @Fionawylie101 @supportCHAS @PPWHospice @APMPostTweets @TheAPPMuk

@allymit5 Congratulations on your post as Clinical lead for palliative care in Scotland. Can we make transition one of our priorities please?

@leolightdragons So sorry to hear your news. Your book is such a beautiful legacy and will remind of how brave and special he is.

We are devastated to share the news that our brave knight Leo passed away on 16th March at Rachel House Children’s Hospice in Kinross. He was six and a half years old. We are gutted but it is such a huge comfort that after a difficult life, his death was truly peaceful.