Gothic Gisborne

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Gothic Gisborne

Gothic Gisborne

@Goth_Gisborne

#actuallyautistic self-employed with #EDS #ME/CFS & #ADHD | MRes Psych student | former ODP | theatre graduate Them/They/Autistic/disabled/gamer

ye olde northworthy Katılım Şubat 2016
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Gothic Gisborne
Gothic Gisborne@Goth_Gisborne·
Anti-maskers snooping around my profile and tweets, know this. I mask to protect a severely immunocompromised loved one where ANY infection has a 50% chance of killing him. People wore masks before 2020 for medical purposes and that'll continue. Not everything is about covid.
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Harry Eccles
Harry Eccles@Heccles94·
Please don’t keep sharing Katie Hopkins apology, it’s probably a bit embarrassing for her🙏
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dave lawrence 🐟🐟🐠
dave lawrence 🐟🐟🐠@dave43law·
Streeting deleted all his photo's with Mandelson A shame they exist everywhere.........
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Neena Jha
Neena Jha@DrNeenaJha·
It is truly unbelievable that in the UK, a doctor is more likely to lose their medical license for opposing a genocide than actively participating in one.
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BladeoftheSun
BladeoftheSun@BladeoftheS·
Michael Gove turned up at work to vote completely off his face. It's totally unacceptable, if you turned up to work like that you would be fired on the spot.
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Neena Jha
Neena Jha@DrNeenaJha·
🚨 12 British universities have paid a security firm £440,000 to monitor students & academics’ social media inc those who have expressed solidarity for Palestine The unis: • UCL • Imperial • KCL • Oxford • Sheffield • Leicester • Nottingham • LSE • Manchester • Cardiff
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Leah Hardy 🇺🇦
Leah Hardy 🇺🇦@LeahFHardy·
I tweeted about digital exclusion and how older people (and people with brain injuries & disabilities) are locked out of healthcare services because of multiple complicated apps. This is one of the demands on my mum’s GP app. She has no idea how to film & upload her face.
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Sophia ❣️
Sophia ❣️@KeruboSk·
If you were “a pleasure to have in class”, how are your autoimmune disease(s) and late/undiagnosed neurodivergence treating you?
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Barry Gardiner MP
Barry Gardiner MP@BarryGardiner·
Since privatisation water companies have taken more than £85billion in dividend and piled up more than £60billion of debt. Yet all capital and operational costs are covered by bill payers. So why keep a privatised structure for a natural monopoly like water?
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Gothic Gisborne
Gothic Gisborne@Goth_Gisborne·
I can't help but think that one of the reasons why Frith and co say 'there's no research on masking' is because they don't see qualitative, research as 'real'. Only p values contribute to science kinda thing. Which, of course, is nonsense.
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Gothic Gisborne
Gothic Gisborne@Goth_Gisborne·
@PlanetEarth_HD @elbecp I hadn't even considered this before but it makes so much sense to why my brain fog varies so much. The Fexofenadine is quite something! Just started a box by Zentiva which only looks like 2 e numbers thankfully
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Stephen Davis
Stephen Davis@PlanetEarth_HD·
The difference in quality of meds is scary here, in the picture, I can tolerate the Dr reddys fexafendine 180, the noumed ones make me get severe brain fog and anxiety headaches for hours, they have over 10 e numbered multiple additives and the Dr reddies only 2 I can see.
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Spin Decoders
Spin Decoders@leith1076·
Same old playbook. "Disabled people on benefits are being failed so I must kindly cut their benefits in half while pretending I'm actually investing in support".
BBC Breakfast@BBCBreakfast

'Too many children are being failed' Schools minister Georgia Gould told #BBCBreakfast the government will spend billions to make mainstream schools in England more inclusive for pupils with special educational needs and disabilities bbc.co.uk/news/live/c98q…

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Gothic Gisborne
Gothic Gisborne@Goth_Gisborne·
@FndNope @Emma_h_mua @kirstymecfslife I went suspecting MS and she kept talking about FND. Asked about when my neurological symptoms started, she wasn't interested unless it was in the last year or so. Ive had symptoms for years that continue to be dismissed and rather than look at the bigger picture she didn't care
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FndNope
FndNope@FndNope·
@Emma_h_mua @kirstymecfslife Exactly how it went for us. The neurologist had already assumed Functional Neurological Disorder before even examining my wife , he literally started with his conclusion. Many years later, she was diagnosed with Multiple Sclerosis.
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kirbs 🦋
kirbs 🦋@kirstymecfslife·
There is no hell, Satan walks earth among us
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Gothic Gisborne
Gothic Gisborne@Goth_Gisborne·
@Dan_Wyke Seems to be. Saw a neurologist yesterday for possible trigeminal neuralgia/MS. Left with a 'I think its FND, around half the people I see have it and its very common in people with CFS and Fibro'. Luckily, I am getting an MRI but yeah, frustrating
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Dan Wyke 🦠➡️🧠🔥
Dan Wyke 🦠➡️🧠🔥@Dan_Wyke·
Seeing more and more people with ME being discharged from hospital - or just leaving appointments with consultants - with a diagnosis of FND on their records. Why is this happening? Is there a concerted effort by neurologists etc. to replace ME with FND? If so, who instigated it?
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Gothic Gisborne
Gothic Gisborne@Goth_Gisborne·
for next week. Which is a hell of a coincidence!!! So, did my logging in flag something on the system? If i hadn't logged in, would I have ever received an appointment? Its a bit odd tbh!
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Gothic Gisborne
Gothic Gisborne@Goth_Gisborne·
So my gp referred me to NHS neurology in March last year. I was told id receive an appointment letter by the end of May, then November. Today I just happened across the referral letter and logged in to check the referral still existed. Two hours later, I get an appointment
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Gothic Gisborne
Gothic Gisborne@Goth_Gisborne·
@KShabby16334956 somehow that concept has got lost over recent years, and it's ended up replacing PIP and other forms of proof entirely. I think its because companies are worried about GDPR (seeing sensitive information), so they prefer a 3rd party do everything. Now it's just become ridiculous
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Gothic Gisborne
Gothic Gisborne@Goth_Gisborne·
@KShabby16334956 So when the access card was first created, it was because people who'd been on DLA lost their awards when PIP was introduced. It was meant to ensure that disabled people, who had the evidence, still got reasonable adjustments if they didn't meet the new PIP criteria but 1/2
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KenShabby163
KenShabby163@KShabby16334956·
So instead of just using the evidence youve alrwayd fought hard for (pip), you've had to justify it all again to Nimbus to get what you need. That's against the Equality Act. They have no right inserting themselves as the mandatory middle man.
Jackie Wells@jacwyc

@Chuffin_ell My daughter has a Nimbus Access card and it works well for us. No need to constantly share information or justify your needs with different venues. It shows she needs a plus one, so free carers ticket bookable online without constantly needing to provide proof.

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Keşfet

@Globalistloon @LeahFHardy @Cambridge_Uni @DHSCgovuk @ION_Diversity @ADHDUKcharity @PlanetEarth_HD @elbecp