Tom

Standing up for workers' rights, social infrastructure, and equity #marangamai rnz.co.nz/news/national/…

We are seeing the consequences of an increasingly imperfect health system on a daily basis now. Kia Manawanui want to collect patient stories to support their efforts for improving the service for people with serious heart issues kmtrust.org.nz

@martinkstiles Yeh wouldn't have to "scramble" if they had listened to the concerns several years ago eh. Or actually provided some regulation to the industry in the first place. Ah well, better late than never?

Hey ⁦@Greasylightbulb⁩ - this is a long time coming. Government scrambles to regulate the ‘Wild West’ of genetic testing by insurers nzherald.co.nz/business/gover…

Aortic Dissection Awareness Day in New Zealand : Fri 20 Sept at The Heart Foundation in Auckland, or online via Teams. Looks great for patients and whānau, but also healthcare professionals too... @88212dc6-df5f-4841-b49f-1eec09c08657" target="_blank" rel="nofollow noopener">events.teams.microsoft.com/event/5f42aebc… #aorticdissection

@upulie I think its the satire that causes the rust

Te Whatu Ora - Health New Zealand staff now have FREE trial access to BMJ Best Practice and its unique Comorbidities Manager. Visit bestpractice.bmj.com/info/new-zeala… for details.

There is now a Pacific scholarship to study Master of Genetic Counselling. The course will be at UTS in Sydney, but can be done remotely. Will be an amazing opportunity for people with the relevant professional and cultural background putahimanawa.ac.nz/our-research/f… #cardiogen

@yeehawtheboys This one for me annualannual.com/shop/biscuits-…

I just signed - will you join me? our.actionstation.org.nz/petitions/prot… via @actionstation

Great illustration of how nursing excellence can, and should, have a key role to play in care pathways for inheritable cardiac conditions #ICCG2024 #cardiogen @TheCIDG #detectprotectenable

The very awesome @RachaelmlStiles presenting at #iccg24 on Nursing of patients with Inherited Arrhythmias in New Zealand

@thecsanz @CSANZ_NZ here we are at #ICCG2024 International Clinical Cardiovascular Genetics Conference at the education day… spreading the knowledge and love for Cardiac Genetics! Stellar talks of complex ideas in simple and impactful ways! @JonSkin81264180 leading the way!

A truly Māori-led agency that has the power to resource and lift up kaupapa Māori, and iwi and hapū health services, can improve health not just for Māori, but all communities in Aotearoa. our.actionstation.org.nz/petitions/prot… via @actionstation

Please consider signing....

@notcapnamerica ROO = Regular Olive Oil. You know, as opposed to EVOO?

WTF is a “roo”? 😭

I do like a fun crowdfund situation! I also like a tasty saison :-) : pledgeme.co.nz/projects/7668-… via @pledgeme

@ashtonjesse @martinkstiles @TheCIDG Yup, well recognized! She got a room full of clinicians to understand the patch clamp technique for assessing cardiac ion channel function; and to think that it is interesting, fun, and also quite hard 👩‍🎓

@Greasylightbulb @martinkstiles @TheCIDG Anika Winbo! ♥️

A favorite time of the year, NZ's heart rhythm meeting (HRNZ) with a great inheritable condition session. Hearing about variant curation, functional assessment, and WGS research, all happening in Aoteaora! Then I'm discussing insurance discrimination. #cardiogen @TheCIDG

This week, @joshburnsmp introduced a motion calling for policy change against genetic discrimination in life insurance. Read our Conversation article about it here: theconversation.com/life-insurers-… You can ask your MP to support this change using our simple tool: discrimination.good.do/ban_genetic_di…

Join us for #CLICC 2023 Part One on Tuesday 12th September! Free to register slcn.nhs.uk/cardiac-odn/wo… @Chiara_Scrocco @manish2107 @JohnWhitaker20 @carolinecoats @2tbueser @elliemquinn @robert_leema @BehrElijah