HDdennomore

Hopeful and inspiring talk from @LaurenByrne7337 @UCLHD at joint @HDAI_ie and @hdani joint conference in Newry. Hi from all to @DrEdWild

Genetic Counsellor Alanna Ward tells us that every year 2.5% of children born will develop a rare disease #rareisnotrare. We need improved services now!

@HDAI_ie @midgeure1 What a song and what a collection of incredible people all working towards treatments, better care and a cure for #HuntingtonsDisease

Hi @midgeure1 there’s a huge meeting for Huntington’s Disease in #Vienna It means lots to us! As does awareness for Huntington’s Disease. We can’t hear the word without hearing the song m.youtube.com/watch?v=xJeWyS… so we are thinking of our friends there and humming along

In preparation for @BritishSciFest you can read my interview with @alanbarker830 here. bit.ly/2wHuYDq Free tickets for my talk are available > > > bit.ly/2wIjq2W

@jaq421 Hi Jackie, just seeing this now. Sorry, we don’t know how to help on this on e.

@HDdennomore please could someone get a #sybilontour photo with Dr Wexler at the conference in London x

A bênção de Deus desça sobre todas as suas famílias, para que elas possam experimentar o amor e o perdão.

Looking for a career in Neurology? Or for confidence in Neurology as part of internal medicine? Now recruiting for CMT Level Clinical Fellow posts at the National Hospital for Neurology to start Feb 2019 (or earlier) Apply now nhs jobs Ref 309-SHB195-PM-RA-M.@ABNTrainees

May God’s blessing come down upon all your families, so that they may be places of love and forgiveness.

@tommjburke @Pontifex in Ireland remembering @HDdennomore and the Irish families struggling with Huntingtons Disease. The Pope mentioned a commitment, not a slogan to those living with Huntingtons Disease. We must honour the families and continue all the vital work

I will be talking about my own experience growing up in an #HuntingtonsDisease family at this amazing event. #HDAwareness

Seeing the #selfie with @Pontifex we are reminded about @LaurenByrne7337 in Rome last year! What a pic! Nothing in this life is perfect, but some moments transcend our usual experience and that creates space for us all to see each other in this one human experience.

@AnatNeuroUCC Still time to win Two Premium Tickets to @officialGAA 🎉🇮🇪🎉🇮🇪Hurling Final could be yours! A 10 euro donation could win you the tix (Value €300!) and help people with Huntingtons Disease! bit.ly/2vMAqoN pls RT entries open until 11am today!

@HDdennomore #sybilontour still working hard to raise awareness of Huntington’s x

@Huntingtons_WA Still time to win Two Premium Tickets to @officialGAA 🎉🇮🇪🎉🇮🇪Hurling Final! Win the tix (Value €300!) and help people with Huntingtons Disease! bit.ly/2vMAqoN pls RT entries open until 11am today!

Thank you Thursdays // We'd like to thank Live Nation Australia & New Zealand for their generous donation of two tickets to Def Leppard Friday Nov. 2 for out High Tea for HD fundraiser event!

@HDAI_ie @PresidentIRL @Pontifex A beautiful day. An historic day.

@PresidentIRL Last May, @HDdennomore the Pope met with Irish / international Huntingtons disease patients two days before @PresidentIRL had his meeting.@Pontifex spoke of a commitment, not a slogan to caring for Huntingtons Disease. The first ever Papal mention at the biggest global gathering

Pope Francis' visit to Ireland, this August, will start with a meeting with President Higgins. The two leaders have met before, in 2013 and most recently, in May 2017. In this video, President Higgins speaks about their meeting. youtu.be/hz3Myq8DYos

@PresidentIRL @HDdennomore