LongHauler

I have craniocervical instability (CCI). Diagnosed with upright MRI in flexion, extension and rotation. Covid triggered it. This is not new, the surgeon who diagnosed me has seen viruses and other pathogens do this before. Covid is not different. #MEspine #CCI #LongCovid

@inneiennyfas Visst, skicka DM 👍🏻

@HaulerLong Intressant. Skulle du ha något emot om jag skickar DM?

Någon i Sverige med postcovid eller ME som fått undersökt om strukturella problem i nacke/rygg kan bidra till symptomen? Exvis CCI, ryggmärgsvätskeläckage, tethered cord,…?

The Swedish State Epidemiologist talks about the deaths with Covid that have happened within the last couple of weeks in Sweden. Swedish Television Morning News, December 11 2023.

@karenlubell @gezmedinger @doctorasadkhan @jencurtinmd Thank you! I’m still not able to play golf again. Pretty far from it, but now I actually dream of doing it again some day.

@HaulerLong @gezmedinger @doctorasadkhan @jencurtinmd I am so happy for you -- imagine you golfing in some far-flung place. :).

When I started talking about LC in April 2020, I was pretty sure a trilogy would cover it. I can now present the *100th* film on the subject, and no end in sight! 2nd in the series on CCI/tethered cord, thanks @doctorasadkhan & @jencurtinmd ! youtu.be/3pc9xOSiA1Q

@lucimitchellfry @gezmedinger @doctorasadkhan @jencurtinmd Spain.

@HaulerLong @gezmedinger @doctorasadkhan @jencurtinmd Thanks for this helpful info. Did you have treatment in the UK?

@rb_long @gezmedinger @doctorasadkhan @jencurtinmd The neurosurgeon said that he doesn’t know how but he has seen viruses or other pathogens trigger it before.

@HaulerLong @gezmedinger @doctorasadkhan @jencurtinmd Did they give you an idea of cause? Viral damage to that area?

@amgnico1 @HeensArno @Priceless20201 @maurici93852731 @jenbrea Bladder symptoms gone. Digestion better. Able to walk and be upright much much more.

I have craniocervical instability (CCI). Diagnosed with upright MRI in flexion, extension and rotation. Covid triggered it. This is not new, the surgeon who diagnosed me has seen viruses and other pathogens do this before. Covid is not different. #MEspine #CCI #LongCovid

Despite thousands of #LongCovid studies revealing profound biological abnormalities in patients vs controls, & millions globally displaying the same consistent symptoms, still – yes, STILL – you have charlatans pushing the "it's psychological / FND, give them exercise & CBT" line

@Priceless20201 @maurici93852731 @jenbrea Still slowly getting better. Able to walk more and I now work full time. My neck is still bad though so I am looking at different non-invasive treatments for it. Proloteraphy and other similar different options.

@HaulerLong @maurici93852731 @jenbrea Hi, just came across your thread and wondered how you are now?

PART I: Connective Tissue & Immune System #LongCOVID is shedding light on long-ignored, physiological aspects of Post-Viral syndromes (e.g. #MECFS) One fascinating area is the role of connective tissue (and Ehler Danlos Syndrome #EDS) in their pathophysiologies. 1/

@ViccieLeaks Prince

@maurici93852731 @jenbrea I’m not a candidate for neck fusion because my symptoms are ”mild”. I’ve had my occult tethered cord released though. Still early days with ups and downs but overall I think it has helped. Some symptoms are gone.

@HaulerLong @jenbrea if you please, what treatment did your neurosurgeon suggest? They found a seringomelia cavity in my c3, presumably due to covid. I have headache, neck pain and weakness. just wait to see if it goes away.

@ShaneyWright I think the word you are looking for is ”bullshit”.

More 'exercise is great for #LongCovid' nonsense. This time out of Ireland. "Patients carry out circuits consisting of squats, lunges, stretches and other aerobic and strength-based exercises." ....What's the word for the polar opposite of cutting-edge research again? 🤦🤦

@KunstJonas Tethered cord surgery

@DonnellyStephen @stjamesdublin I would laugh if it wasn’t so tragic. Virtual exercise? F*ck off.

@MartinKulldorff @WHO Give him a job at Brownhole institute! Perfect fit. He’s also a full blown narcissist and serial liar.

After his success during the pandemic, Anders Tegnell stepped down as Sweden's state epidemiologist for a job at @WHO. Now WHO rejects him. No deal. Nada. aftonbladet.se/nyheter/a/8Q8K…

@BohumilRajchl I’ve had the tethered cord released. I will not have a surgery for the neck. In the future, if my symptoms get worse, maybe I’ll have to get it. But for now I can manage them. My life is nothing like before but not bad enogh for a neck fusion.

@HaulerLong Will you have operation?

What do you think is the cause of the terrible HEADPRESSURE in long covid? Microclots? Viral persistance? Some kind of damage? #LongCovid #TreatLongCovid