Hemos Unite!

We have a little giveaway over at H.U. Listen to the podcast or hit the show notes to see how to enter. buff.ly/2AwGkPE p.s. a good start would be to retweet to anyone you know in need of some seriously sweet school supplies. #backtoschool #bleedingdisorder #hemosunite

RareUniversity, our virtual education program, offers FREE expertly-vetted education & advocacy resources for #raredisease advocates! The content is FREE & provided in accessible, easy-to-understand learning modules which let people learn at their own pace ow.ly/n8if30ksImR

Ding! I just got an email from @pjlynch that the new season of #stopthebleeding is out! I know you all probably know this already, but I love help spread the word, because, hemos rock buff.ly/2JbCWc8

Episode 36 with @LAAguayo1 is up on the website. Caution: REAL talk about mental issues some of us face is in the middle of all the fun stuff. If you are triggered by open discussion of depression, skip middle of the pod. If you need help, reach out. buff.ly/2yOFVY0

Episode 35! Have a listen to the amazing @kpeepe from the blog A Touch of Scarlett. I am now one of her biggest fans. I know you will love hearing her story. Thank you all for listening! buff.ly/2st7ShV #bleedingdisorder #hemosunite #cableeds #womenbleedtoo

Hi fellow bleeders! Have you all updated your @amazonsmile beneficiaries? Every penny you spend on those #minecraft toys also helps your foundation of choice. #bleeders #vwd #hemophilia @AZHemophilia @Ebates works with Amazon Smile also!

This looks like a great idea for chapters! Thanks for sharing. I believe that the more we share, the better we become. #hemosunite #hemophilia #vwd #bleedingdisorders x.com/HTCColorado/st…

Register for @HemoSoCal SoCal EmPOWERment Forum and Salsa Challenge on Feb 24th! The lineup is stellar and packed full of useful and inspiring predentations...and yummy salsa! buff.ly/2n2YmiL #hemophilia #vwd #bleedingdisorders

.@PSI4Patients is one of the most helpful and life changing organizations for the #rare community. If you need help call them. If you can give help, call them. I will always support them and their fight to be allowed to help our fellow humans. #hemophilia #hemosunite x.com/PSI4Patients/s…

Have the awesome @vripley on this month's podcast buff.ly/2DTFTzJ

How did Health Transformer @LyndaBrownYVR of @CuratioMe stack up on #CBCDragonsDen? healthtransformer.co/ask-an-investo…

As a young adult it maybe hard to find support. Start here: ow.ly/vpcW30i1Pdj

Congratulations Cooper! We're so happy for you! wtrf.com/community/a-sp…

I know we have some incredible women in our community. Here is an opportunity for you. Go get 'em! #hemophilia #bleedingdisorders #vwd #rare #hemosunite x.com/PCHAlliance/st…

@cchf_sac @Bioverativ @FactorSupport @pfizer @Shireplc @BayerPharma @SoleOrtega_Uy Oh! That looks awesome! What a fantastic program!

We had a great time at the @AZHemophilia @Shireplc educational dinner on Friday at North Italia. Remember to get out and meet your community when your chapter has events. The personal connection is key when nurturing your support system. #hemophilia #hemosunite

We're are looking for volunteer translators that can help us translate the communities names and descriptions into #Japanese. Do you have experience in translation and #rarediseases? Send us an email at info@rareconnect.org

Miss the monthly #raredisease legislative webinar earlier this week? Check out the slides & recording on our website for updates from @acognews, @HELPCmteDems, @EveryLifeOrg & the #Lymphedema Advocacy Group ow.ly/sIbv30i1Fgm

We'd like to give a great, big shout-out to @CSLBehring, Gold Sponsor for our Winter Wine Fest. Thank you for helping us make this event fun, fabulous, and worthwhile for the Nevada bleeding disorders community. Friends: have you gotten your tickets yet? hfnv.org/what-we-do/spe…

Final reminder that tomorrow BombardierBlood.com's EMMY-AWARD winning editor Steven Sander and I will be Facebook Live-ing (is that a word?) from Steven's home in Australia on Saturday 7pmEST/4pmPST! (1/3)