NBDF Nevada

Our E.D. wrote a letter to encourage @JosephMLombardo to veto #AB259Nevada #PriceControls. Read the letter here: lasvegassun.com/news/2025/jun/…

Nearly 6 out of 10 Nevadans didn’t realize the impact of PBMs to drug costs—but once informed, 87% wanted reform. NV legislators, the public demands transparency and lower drug costs. Pass #SB316! Read the poll 👉bit.ly/4dCFGz1 #PBMReform #NVLeg @FabianDonate

A new poll shows over 90% of Nevadans believe PBMs should have a duty of care to patients, not their profit margins. It’s time to end the hidden rebate schemes that drive up drug prices. Legislators, pass #SB316 now! Read the facts 👉bit.ly/4dCFGz1 #NVLeg @EdgarFloresNV

Nevadans Speak Out! 82% of Nevadans are very or extremely concerned about the lack of oversight for PBMs, and 87% demand rules that lower drug costs. Nevada legislators, please support #SB316 to protect our patients! 👉bit.ly/4dCFGz1 #PBMReform #NVLeg @LangeForSenate

Thank you to Aneil at @RepSusieLee office for meeting with us today and talking about the impact of copay accumulators on the bleeding disorders community in Nevada. @nbd_foundation

Thank you to Mika from @SenJackyRosen office for meeting with us today and talking about how the Senator is working to lower the cost of health care and increase access to care. @nbd_foundation

Thank you to Richard from @MarkAmodeiNV2 office for meeting with us today! We appreciate Rep. Amodei's support & cosponsorship for the HELP Copays Act! @nbd_foundation #allcopayscount

Thank you to Anna & Rayne from @SenCortezMasto office for meeting with us and showing us that Nevada hospitality! @nbd_foundation

This #WorldCancerDay, we are joining @preventcancer and organizations across the country in calling on @LeaderMcConnell & @SenSchumer to pass the Medicare Multi-Cancer Early Detection Screening Coverage Act. Americans cannot wait any longer.

We're honored to share Phil Gattone has been named our next president and CEO. He'll take the helm Feb. 12 to help advance NBDF’s focus of innovative, inclusive research, education, and advocacy for the inheritable blood and bleeding disorders community. bit.ly/3HFLetF

Read a new interview with @NevadaNHF Executive Director Jacob Murdock at the link below! bit.ly/42YMEIo

Thank you @sabrasireen for taking the time to meet with @NevadaNHF and focusing on the needs of the hemophilia community. #nvleg #WHD2023

Grateful for @duy702's time and commitment during the meeting with @NevadaNHF to address hemophilia-related issues. #nvleg #WHD2023

Thank you @LangeForSenate for your time and commitment to addressing the concerns of the hemophilia community during our meeting with @NevadaNHF. #nvleg #WHD2023

We appreciate @cithom11 for engaging with @NevadaNHF and focusing on the needs of the hemophilia community. #nvleg #WHD2023

Grateful to @EricaMosca14 for taking the time to meet with @NevadaNHF and discussing important healthcare issues. #nvleg #WHD2023

Thank you @Danielle4nv1 for meeting with @NevadaNHF and addressing the challenges faced by the hemophilia community. #nvleg #WHD2023

Thank you @Senatorspearman for your dedication in meeting with @NevadaNHF and discussing the challenges faced by the hemophilia community. #nvleg #WHD2023

Did you know? 1-2% of the US population is affected by von Willebrand disease. This #WHD2023, let's raise awareness and promote research to improve the lives of those affected. #nvleg

Thank you @BrittMiller4AD5 for your time and attention during the meeting with @NevadaNHF, focusing on the needs of the hemophilia community. #nvleg #WHD2023