IACM Patient Council

748 posts

IACM Patient Council

@IACMPatients

An international coalition of patients organisations formed to help give a voice to patients the world over & to protect their rights in the cannabis industry.

Katılım Nisan 2022

395 Takip Edilen449 Takipçiler

IACM Patient Council@IACMPatients·25 Nis

Calling any UK patients with a #medicalcannabis prescription who've experienced harassment or discrimination by the police. @Release_drugs have launched a campaign to support the rights of patients, as reported by @VoltefaceHub #wethepatients buff.ly/3Ju39nT

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IACM Patient Council@IACMPatients·24 Nis

Good news for Polish Patients: 12 new medical cannabis products will soon be on sale in pharmacies. If you're a Polish medical cannabis patient-led association, we'd love to hear from you. #wethepatients #poland #medicalcannabis buff.ly/4b0zSwI

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IACM Patient Council@IACMPatients·23 Nis

Juicy Fields Case: Alleged ring leader detained. Let's hope this will bring some closure for the many patients who invested money in this cannabis investment ponzi scam. If something is too good to be true, it generally is. @CannaReporter #juicyfields buff.ly/3QdtQkK

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IACM Patient Council@IACMPatients·22 Nis

Good luck to our Finnish brothers & sisters.

Aleksi Hupli, PhD@AleksiHupli

Historic day as a citizens initiative to legally regulate #cannabis in Finland @lailliseksi was delivered to the parliament @SuomenEduskunta Signed by over 54 000 Finns, the initiative will at least put the topic on the political agenda, even if it won't pass. #drugpolicy

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IACM Patient Council@IACMPatients·22 Nis

Are UK medical cannabis patients being gas-lighted by pharmacies & clinics when they complain about substandard products containing mould, insects, seeds & even glue? It certainly seems so in this article by @VICEUK. #wethepatients #medicalcannabis buff.ly/3Jq7AQG

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IACM Patient Council@IACMPatients·21 Nis

Medical cannabis usage in Australia: fascinating insights on who (gender/age) uses what & how. Some takeaways: young men prefer inhaled high THC products & older women prefer oral CBD dominant products. buff.ly/49wNPBC

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IACM Patient Council@IACMPatients·20 Nis

Happy 420 day from all at the IACM Patient Council. May all those who can benefit from medicinal cannabis get legal, safe and equitable access. #420 #420day #wethepatients

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IACM Patient Council@IACMPatients·19 Nis

@MaespCanabis It's yet another example of regulation vs reality for patients where medical cannabis has been legalised & a perfect example of the need for harmonisation of medical cannabis law in the EU. @euronews

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IACM Patient Council@IACMPatients·19 Nis

How can Portugal have legal access to #medicalcannabis, be the 2nd biggest producer of cannabis in the EU, and mothers of kids with epilepsy still have to go to the illicit market for the CBD-rich products that control their seizures? @MaespCanabis buff.ly/49Z0w8F

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IACM Patient Council@IACMPatients·19 Nis

Cannabinoids in pediatric #palliativecare: Study finds "certain aspects of quality of life were improved" in 64.5% who were administered cannabinoids for primary diagnosis of neuropediatric, oncologic, metabolic, and cardiologic conditions. buff.ly/3vQOfVI

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IACM Patient Council@IACMPatients·18 Nis

Cannabis & Covid: Retrospective study suggests active cannabis users hospitalized with COVID-19 had better clinical outcomes compared with non-users, including decreased need for ICU admission or mechanical ventilation. #covid #cannabis buff.ly/3J9lhUe

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IACM Patient Council@IACMPatients·18 Nis

@Legalisecanabo I suspect you are right.

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Legalise Cannabis Campaign Scotland@Legalisecanabo·17 Nis

@IACMPatients Maybe they need more THC in the dose?

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IACM Patient Council@IACMPatients·17 Nis

Cannabis & Parkinson's Unlike anecdotal reports of cannabis easing Parkinson's symptoms - this small randomised trial using high CBD/low THC formulation found no benefit in patients with Parkinson's & possible worsening of sleep & cognition. #parkinsons buff.ly/3xzk4To

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IACM Patient Council@IACMPatients·16 Nis

IACM Patient Council members @CarolaPerez, Simón Winistörfer & Gero Kohlhaas meet in person at @IntlCBC Berlin. #wethepatients #icbcberlin

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IACM Patient Council@IACMPatients·16 Nis

New regulations are announced for medicinal #cannabis in #Mexico. Hopefully this will bring more clarity and better access for Mexican patients. Although more often that not, the reality for patients does not reflect the regulations. #wethepatients buff.ly/3JgNYyi

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IACM Patient Council@IACMPatients·15 Nis

As patients & caregivers it's often not financially possible for us to attend international cannabis conferences (even though it's vital we are there). Thank you @IntlCBC for gifting us some tickets for ICBC Berlin this week. #wethepatients #ICBC internationalcbc.com

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IACM Patient Council@IACMPatients·15 Nis

How wonderful to see the IACM Patient Council founder @carolaperez's representation of patients & caregivers recognised by the IACM with her award at the recent @IACM_Bulletin conference. Congratulations Carola!!!

Carola Pérez@carolaperez

It is an honour and a great privilege to be the first patient to receive the IACM Special Award 2024. I would love to thank you to the IACM board for awarding me this 2024 honorary award, specially Franjo Grotenhermen and Manuel Guzmán and my colleagues from @IACMPatients

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IACM Patient Council@IACMPatients·12 Nis

Please read this wonderful interview with Dr. Franjo Grotenhermen, written by @Sarahlsinclair_ . Franjo, who founded the @IACM_bulletin, is an MD & a patient, & has lived with a rare health condition which means he has to lie down for 22 hours a day. buff.ly/49w9tWD

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IACM Patient Council@IACMPatients·11 Nis

From all of us at the IACM Patient Council, thank you @sarahlsinclair_ for writing such a beautiful interview. & yes, this standout quote sums up Franjo completely & why we feel so privileged to count on his support.

Sarah Sinclair@sarahlsinclair_

It was a privilege to interview Franjo Grotenhermen @IACM_Bulletin My fave line: “I simply decided to take the experiences of patients seriously." It shouldn't be remarkable for doctors to have this level of empathy & understanding with patients but sadly it often it is.

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IACM Patient Council@IACMPatients·11 Nis

@IACM_Bulletin Council members will be Simón Winistoerfer (Switzerland) @medcan_schweiz, Mohammad Wasway (UK) @TSanskaraP, Jacqueline Poitras (Greece) @poitras_mamaka & Abigail Dar (Israel). @CarolaPerez (Spain) will be moderating.

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IACM Patient Council@IACMPatients·11 Nis

We are proud to announce that the Patient Council will be participating in a panel tomorrow at 3.15pm CET discussing the patient experience at the IACM's online conference. Registration to view the 2 day conference is free via website. @IACM_Bulletin buff.ly/3ITbDF3

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Keşfet

@Release_drugs @VoltefaceHub @CannaReporter @VICEUK @MaespCanabis @euronews @Legalisecanabo @CarolaPerez