Liam Galvin

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Liam Galvin

Liam Galvin

@IPFthurles

Board Member - Irish Lung Fibrosis Association (@ILFA_Ireland) and European Pulmonary Fibrosis Federation (@EU_IPFF), Patient Co-Chair @ErnLung,

County Tipperary, IRELAND Katılım Eylül 2015
579 Takip Edilen978 Takipçiler
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ERS publications
ERS publications@ERSpublications·
European Respiratory Journal: Fan-to-face therapy is a simple, feasible, low-cost, low-resource nonpharmacological approach to reduce exertional breathlessness during exercise training in adults with chronic lung disease bit.ly/4oMpcbX
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ERS
ERS@EuroRespSoc·
🚨Free educational opportunity: apply now for the ERN-LUNG Academy 2026 We are calling on medical professionals across the EU to apply for the opportunity to develop their knowledge of rare respiratory diseases. Apply by 30 November, 2025 – learn more: bit.ly/3L6KjqY
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European Lung Foundation
European Lung Foundation@EuropeanLung·
The first patient-centered studio session at #ERSCongress! 💙 Co-chaired by patient representatives Helen Parks and Steve Jones, this busy session explored why many patients struggle to access pulmonary rehabilitation globally.
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Trevi Therapeutics
Trevi Therapeutics@TreviThera·
We are pleased to share the positive topline results from the Phase 2b CORAL Trial of Haduvio in Patients with Idiopathic Pulmonary Fibrosis Chronic Cough.   Join our conference call today, June 2nd, at 8:30 a.m. ET.  Read the press release: ow.ly/MCzh50W2spG $TRVI
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Pilar Rivera-Ortega
Pilar Rivera-Ortega@PilarRiveraOrt1·
Dear ILD community, You are cordially invited to this webinar organized by @RespirEffect (REG) tomorrow June 5th at 4 pm BST - UK time (5 pm CEST) 👇 #Screening #EarlyDiagnosis #ILD #PulmonaryFibrosis #PrimaryCare 🫁🌎
RespirEffect (REG)@RespirEffect

REG WEBINARS - REMINDER TO REGISTER 📢 The next REG Webinar is: Screening and early diagnosis of Interstitial Lung Disease: starting the process from Primary Care 🗓️Thursday 5th June 2025 from 5 to 6PM CET 🖥️ Register @ @f7f34ccd-78c8-423c-ad3d-8a0a51a21107" target="_blank" rel="nofollow noopener">events.teams.microsoft.com/event/18cfe402… #rwe #ild #ipf

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Phil Molyneaux
Phil Molyneaux@drphilmol·
Fantastic news for all our patients with IPF who suffer with cough! An overall 43% reduction in cough counts, similar improvement in patient reported cough and benefits seen in 2 weeks. We look forward to the phase 3 study!
Trevi Therapeutics@TreviThera

We are pleased to share the positive topline results from the Phase 2b CORAL Trial of Haduvio in Patients with Idiopathic Pulmonary Fibrosis Chronic Cough.   Join our conference call today, June 2nd, at 8:30 a.m. ET.  Read the press release: ow.ly/MCzh50W2spG $TRVI

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Toby Maher
Toby Maher@TobyMMaher·
Great to see publication of the first positive phase 3 trial in patients with IPF. This represents an important step forward in the treatment of this terrible disease. #cureipf
NEJM@NEJM

Presented at #ATS2025: In the FIBRONEER-IPF phase 3 trial, nerandomilast slowed disease progression in patients with idiopathic pulmonary fibrosis as compared with placebo. Full trial results: nej.md/4mgWcIU @atscommunity

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Liam Galvin@IPFthurles·
Great session on "Enhancing Patient Advocacy through Evidence Based Practices" led by @anmari_russell at the @EU_IPFF 's 1st European PF Patient Advocacy Forum #CurePF
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Liam Galvin@IPFthurles·
Preparations underway for the 1st European PF Patient Advocacy Forum - 4 days of learning & collaborative discussions led by the European #PulmonaryFibrosis Federation @EU_IPFF #CurePF
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Sachsenhausen-Süd, Frankfurt am Main 🇩🇪 English
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Liam Galvin@IPFthurles·
@ErnLung 's Elisabeth Humbert-Dorfmüller talking Registries & the ERN-Lung Academy in Dublin at the @rare_trial conference
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Liam Galvin@IPFthurles·
Attending the 2nd Irish Rare Disease Clinical Trial Network Conference representing @ILFA_Ireland and the @EU_IPFF - kicking off with sessions on ERN Registries
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ERN-LUNG
ERN-LUNG@ErnLung·
ERN-LUNG's network coordination team member Gergely Meszaros giving an insight on most recent and ongoing communication and dissemination activities
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Rare Disease Clinical Trial Network, Ireland
Rare Disease Clinical Trial Network, Ireland@rare_trial·
We are delighted to announce a short extension to the deadline for abstracts for the Rare Disease Research Conference 2025! Don't miss the chance to submit your case study or rare disease research for consideration for poster presentation by 24th February! docs.google.com/forms/d/e/1FAI…
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Action for Pulmonary Fibrosis
Action for Pulmonary Fibrosis@ActionPFcharity·
A new drug, nerandomilast, has shown positive topline results in a clinical trial for people with progressive PF.   The FIBRONEER™-ILD trial suggests this drug could be an important step, potentially leading to a new treatment option in the future. actionpf.org/news/fibroneer…
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Keşfet

@UCDMedicine @UnivParisSaclay @imperialcollege @JerkovicRomana @RespirEffect @anmari_russell @EU_IPFF @ErnLung