Tom Kindlon-IrishME

4.5K posts

Tom Kindlon-IrishME

Tom Kindlon-IrishME

@IrishMECFS

Focuses on Irish news on #MyalgicE/#ChronicFatigueSyndrome, #LongCovid or related (+ some personal news). #MEcfs #LC. Main (international) account: @TomKindlon

My MEpedia entry Katılım Aralık 2012
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Tom Kindlon-IrishME retweetledi
Tom Kindlon-IrishME retweetledi
Irish ME/CFS Association
Irish ME/CFS Association@IrishMECFSAssoc·
Tom Kindlon @tomkindlon : I was happy with how it went. As usual, after the carvery closed at 3pm, we had the room to ourselves. #MEcfs #PwME
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Tom Kindlon-IrishME retweetledi
Tom Kindlon
Tom Kindlon@TomKindlon·
2/ This is an extract from our PACE trial rejoinder to give a sample of what is in it #MyalgicEncephalomyelitis #PwME x.com/RobertHMcMulle…
Robert Saunders (aka McMullen)@RobertHMcMullen

@johnthejack @davidtuller1 I hope David may add something about the BMC correspondence which followed the reanalysis. Wilshire and @TomKindlon’s patient repsonse to Sharpe et al is a thing of beauty: bmcpsychology.biomedcentral.com/articles/10.11…

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Tom Kindlon-IrishME retweetledi
Tom Kindlon
Tom Kindlon@TomKindlon·
Today is 9-year anniversary of this rejoinder, where we defend our recovery reanalysis paper which found no difference in rates of recovery from CFS with graded exercise therapy or CBT vs specialist medical care-alone group in £5m #PACEtrial Free researchgate.net/publication/31… #MEcfs
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Tom Kindlon-IrishME retweetledi
Irish ME/CFS Association
Irish ME/CFS Association@IrishMECFSAssoc·
(Ireland) Upcoming social gatherings organised by the Irish ME Trust Note: The one in Bray is only for patients aged 18 or more #MEcfs #PwME
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Tom Kindlon-IrishME retweetledi
Tom Kindlon
Tom Kindlon@TomKindlon·
Pleased that the extra time/energy I have been putting into my FB page, "Tom Kindlon's ME CFS & related page: News, Research and more", is yielding results Social media is far from dead. #MEcfs #PwME
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Tom Kindlon-IrishME retweetledi
Irish ME/CFS Association
Irish ME/CFS Association@IrishMECFSAssoc·
One week to go. Apart from the 23 people who have indicated they are interested on the Facebook event, two people contacted directly they hope to go. #MEcfs #PwME
Irish ME/CFS Association@IrishMECFSAssoc

Informal ME/CFS social meet-up in Dublin hosted by Tom Kindlon @tomkindlon on Friday, March 27 Hopefully we’ll see some of you there irishmecfs.org/blog/friday-ma… Carers/parents/similar welcome. #MEcfs #PwME

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Tom Kindlon-IrishME retweetledi
Tom Kindlon
Tom Kindlon@TomKindlon·
It's 9-year anniversary of this paper of mine. It could be useful if somebody feels coerced into doing graded activity or exercise programmes; also to counter claims that the #PACEtrial showed graded activity programs are safe. journals.sagepub.com/doi/full/10.11… #MEcfs #CFS
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Tom Kindlon-IrishME retweetledi
Irish ME/CFS Association
Irish ME/CFS Association@IrishMECFSAssoc·
2/ “on Monday,we’ll be drawing the 1st 100 charities to be awarded £1000 in this year's Benefact Movement for Good Awards…It’s 1 nomination per charity per person,so u can nominate as many charities as u like,& if u get them in the running early,they’ll be in for all the draws”
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Tom Kindlon-IrishME retweetledi
Irish ME/CFS Association
Irish ME/CFS Association@IrishMECFSAssoc·
Delighted to receive a €3000 core funding grant from @HSFCharity this week. Will be very useful as there has been relatively little fundraising for us in recent times In photo: Vera Kindlon & @TomKindlon Longer message in next tweet #MEcfs #PwME 1/2
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Tom Kindlon-IrishME retweetledi
Tom Kindlon
Tom Kindlon@TomKindlon·
Best of luck to Lee for Saturday. 👏 Background information on why Lee is so passionate here: awalkforme.com I've just donated to his fundraiser here idonate.ie/fundraiser/Lee… #MEcfs #PwME
Irish ME/CFS Association@IrishMECFSAssoc

Repost of @a_walk_for_m.e on IG: It’s that time of year again. March 14th will always mean something to me. It’s Josh’s birthday. This year I’m climbing the height of Mount Everest in my local gym to honour him and raise funds for those living with M.E. #MEcfs #PwME 1/

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Irish ME/CFS Association
Irish ME/CFS Association@IrishMECFSAssoc·
4/ Read Lee’s main fundraising page here including information on his brother’s struggles with ME (he eventually became severe and passed away) awalkforme.com #severeme #pwME
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