Tom Kindlon

🧵 A talented individual (WantedAlive) thought up these cartoons and employed Rick Menard to illustrate them. Well done to them for this initiative. 👏👍 #MEcfs #PwME  1/

Our paper is (finally) out in @CellRepMed: antibodies from #LongCOVID patients transfer symptoms to mice, pointing to a potential causal role for autoimmunity: cell.com/cell-reports-m… @amsterdamumc @UMCUtrecht 1/12

"Intersectionality, healthcare and myalgic encephalomyelitis: Reflections from experience" by Joanne Hunt @JoElizaHunt @HealthHubris journals.sagepub.com/doi/10.1177/09… Screenshot from latest Science for ME weekly update #MEcfs #PwME

2/ Evidence of White Matter Neuroinflammation in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Diffusion-Based Neuroinflammation Imaging Study onlinelibrary.wiley.com/doi/10.1002/hb… Screenshot from latest Science for ME weekly update #MEcfs #PwME

New from Australia: Evidence of White Matter Neuroinflammation in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Diffusion-Based Neuroinflammation Imaging Study Free fulltext: onlinelibrary.wiley.com/doi/full/10.10… #MEcfs #CFS

3/ Incidence age is bimodal for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, with higher severity burden for early onset disease dx.doi.org/10.1093/oxfimm… Screenshot from latest Science for ME weekly update #MEcfs #PwME

2/ Informative thread on this as usual from this account

Incidence age is bimodal for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, with higher severity burden for early onset disease academic.oup.com/ooim/advance-a… "early onset peak with a mean of 16.0 years old...and a late onset peak at 36.6 years old" #MEcfs #PwME

Primary Health Care Resource for Adults with Long COVID #LongCovid #MedTwitter

"A Victoria University of Wellington team has launched a resource for GPs, following co-design workshops to understand patient experiences of illness and care." wgtn.ac.nz/fehps/centres/… youtu.be/ym8KZJRORdI Screenshot from latest Science for ME weekly update #LongCovid

Sorry to hear that Former Never Mind The Buzzcocks host Mark Lamarr has chronic fatigue syndrome "Mark Lamarr banned from driving despite claiming exceptional hardship" corklive.ie/news/arts---en… #MEcfs #CFS

Every COVID-19 infection carries a risk of Long COVID - affecting the brain, heart, lungs, and immune system in ways that can last months or longer. Prevention still works. - Masking: Wear a high-quality mask (N95 or better) to reduce spread - Ventilation: Bring in fresh air and use HEPA filtration indoors - Distancing: Reduce crowding, use hybrid/remote options when possible - Testing: Test early and often - Vaccination: Helps protect against severe illness, especially with other measures #PublicHealth #COVIDIsNotOver #COVID #COVID19 #LongCOVID #LongCOVIDAwareness

“Long COVID isn’t just being tired.” For Matjaž it means cognitive decline, GI issues, sleep problems—and needing recovery time after simple tasks. These lived experiences shaped WHO Europe’s Long COVID Mythbusters, created alongside patients. 👉 More: bit.ly/3O6Ji3X

"We're six years after the pandemic started and there's still not the investment in the research to fund the treatments we need and that's one thing that has to absolutely change." On the 6th anniversary of the first covid lockdown I spoke to the BBC about life with #LongCovid.

I wear a #mask because COVID-19 disabled me as a healthy firefighter/ paramedic at age 30. One infection took my entire future away. Six years later, there is still approved no treatment or cure for Long COVID. Now, my immune system struggles to handle all challenges, which can be deadly. The only way to #preventLongCOVID is to #preventCOVID-19 infection. #LongCOVIDAwareness

Meningitis outbreaks are spreading beyond the UK — a reminder that prevention matters. Crowded events can drive rapid transmission. Stay informed, act early, protect yourself. This Thursday Teach Day: Reducing Infection Risk

This Sunday! We are so happy to have Dr. Aimee Nefcy share her experience as a physician and a patient! Please join Sunday Conversations, 3/15 @ 4pm ET. massmecfs.org/events/sunday-… #massmecfs #MECFS #chronicfatiguesyndome #fibromyalgia #iacci #longcovid

Millions for ME/CFS research – because patients and their families are forced to take matters into their own hands. The article shows how private initiatives are driving progress forward, whilst public funding continues to lag behind – in Austria too. Greater commitment from the business sector and civil society is urgently needed to support research. Many thanks to @manager_magazin for the coverage. Unfortunately, the article is behind a paywall. manager-magazin.de/lifestyle/kran…

PRIME Research Project Workshop The Similarities and Distinctions between Long Covid & ME/CFS actionforme.org.uk/prime-workshop… us02web.zoom.us/webinar/regist… Screenshot from latest Science for ME weekly update #MEcfs #LongCovid

New Zealand COVID-19 and long COVID 2024/25: New Zealand Health Survey Links: health.govt.nz/publications/c… tvnz.co.nz/shows/breakfas… longcovidsupport.co.nz/news/survey-ki… rnz.co.nz/national/progr… Screenshot from latest Science for ME weekly update #LongCovid #PASC

UK NHS England releases e-learning module “Supporting people with severe ME/CFS” learninghub.nhs.uk/Resource/79376… Screenshot from latest Science for ME weekly update #SevereME #MEcfs

15/ More from a series of comic strips about life as a person with ME/CFS. "George and His ME/CFS" 🎨Rick Menard This is the last one. #MEcfs #SevereME

14/ More from a series of comic strips about life as a person with ME/CFS. "George and His ME/CFS" 🎨Rick Menard #MEcfs #PwME

🧵 A talented individual (WantedAlive) thought up these cartoons and employed Rick Menard to illustrate them. Well done to them for this initiative. 👏👍 #MEcfs #PwME  1/

Refreshingly accurate article about severely ill M.E. patients who are routinely neglected or mistreated by the medical profession. #MyalgicEncephalomyelitis