
Over-diagnosis / misdiagnosis / self-diagnosis of EDS, MCAS, POTS, & Lyme is a real problem, and it would appear that there is little appetite by medical professionals to discuss this issue publicly.
Isanthrope
6.3K posts

@Isanthropia
“Facts are not repealed by a refusal to face them.” —William Catton.

Over-diagnosis / misdiagnosis / self-diagnosis of EDS, MCAS, POTS, & Lyme is a real problem, and it would appear that there is little appetite by medical professionals to discuss this issue publicly.





The last 24 hours has enlightened me about the way people think about their doctors. I'm truly floored, and deeply saddened by statements like this: "Patients have no responsibility to act in a particular way. Period."


Btw my allergist wants to start me on Xolair for my MCAS. Has anyone here tried it? Did it help? Any side effects?





The outrage over this is something. If you want to tell doctors your diagnosis and take issue with them questioning it, just waive your right to sue. I've personally had a patient complain of heartburn when they were having a heart attack... So yeah, I'm asking questions.





@kirabira If you went to the doctor and they just unquestioningly gave you antibiotics in 2 minutes, but then it turned out to be something else, you'd complain that they rushed it and didn't listen to you.

