James Cooper

Thank you to Sir Julian Lewis MP, @ChelFulhamBen & @StuartAndrew for standing up for seriously ill children in yesterday’s palliative care debate. Despite some promising developments, the gov must now commit to action on workforce & funding while strengthening accountability.

This year we’ve been there for more families and professionals than at any point in our history. Read more in our latest Impact Report: bit.ly/47ZStJj

The @CommonsHealthExpert Panel has published its evaluation of palliative care in England – and the findings are stark. The report reveals that inconsistent commissioning across local NHS bodies is driving a postcode lottery in children’s palliative care. bit.ly/3Mqazgy

Over 250 families benefitted from a trailblazing three-year project funded by @KentownWizard in Lancashire & South Cumbria that brought our co-ordinators together with @RainbowTrustCC's Family Support Workers & @LSCICB NHS nurses. Read more: togetherforshortlives.org.uk/groundbreaking…

Thank you @SKinnock and amazing parent Laura whose family uses @jessiemaytrust for speaking at the APPG for Children Who Need #palliativecare today. We look forward to new DHSC palliative care plan in the coming days and to continuing to work closely with @DHSCgovuk

At today's APPG for Children Who Need Palliative Care event, I was pleased to meet with James Cooper, Head of External Affairs and Membership @Tog4ShortLives, which @supportCHAS is a member organisation and discuss @scotgov's new palliative care strategy and support for CHAS.

@SeamusLoganMP @Tog4ShortLives @supportCHAS @scotgov Great to meet you today Seamus, many thanks for your support.

While the £80m for children's hospices over three years is hugely welcome, further commitments are still needed to tackle the postcode lottery in children and families' access to 24/7 end of life care at home. Thanks to Sir Julian Lewis MP for raising these vital points.

While £80m over 3 years is hugely welcome, further commitments are still needed to close the £310m funding gap and address inconsistencies in local NHS and council funding. The government’s all-age palliative and end of life care delivery plan is a vital opportunity to act.

The @NAOorguk report on adult hospices is deeply concerning. But children's hospices face significant funding challenges too. Only 1/3 of their costs are covered by the state compared to 40% for the hospice sector as a whole.

🚨 Help make the 10-Year Health Plan a reality for seriously ill children On 18 November, the APPG for Children Who Need Palliative Care is holding a drop-in event and roundtable meeting. 👉 We need your help to get MPs there. Invite your MP here: togetherforshortlives.org.uk/campaign/pleas…

Today, we were pleased to attend a roundtable discussion at #labourpartyconference2025 exploring the current gaps in access to palliative care, and how we can work together to close them.

@villareport 👏🏼👏🏼👏🏼

🫡 The continued support & interaction throughout this transfer window has not gone unnoticed — a HUGE thank you from me. Time to get behind Unai & the boys! 💜

The new @CommonsEd report highlights important concerns about disabled children's social care, shining a light on the challenges facing many children and their families. We welcome the report's focus and its clear calls for action. committees.parliament.uk/committee/203/…

There are many opportunities to improve children’s palliative care from the UK government’s new 10 Year Health Plan for England, but also many questions. Read our reaction here 👉🏼 bit.ly/44zQD0h

👇🏼For families like Archie's, ministers must act now.

@radionewshub @Tog4ShortLives Thank you @radionewshub for covering this vital story.

Seriously ill children may be denied end-of-life care without further funding for hospices, a charity has warned. Together for Short Lives said hospices are being forced to rely on donations and funds raised from charity shops to prop up services as it called on ministers to increase ring-fenced NHS funding for children’s hospices. A new poll of 30 hospices in England found almost nine in 10 (89%) expect their costs to exceed their income this financial year.

Her Royal Highness The Princess of Wales @KensingtonRoyal has written a personal and heartfelt message to mark #ChildrensHospiceWeek. In it she says, thanks to our children’s hospices, families will never face the future alone: bit.ly/3TxEkwk @tyhafan @EACH_hospices

@Tog4ShortLives @KensingtonRoyal @tyhafan @EACH_hospices Fantastic support for our children's hospices. Thank you @KensingtonRoyal #ChildrensHospiceWeek

We understand MPs’ decision to ban health professionals from raising assisted dying with under 18s. But families and palliative care services will still need guidance on holding conversations about this issue. Read our statement 👉 bit.ly/3FEH5sC