Julie Carr
806 posts
Day 22
How is your energy level, and what would you like to do?
I would say I fall into a very small percentage of people living with ALS whose energy level has not been significantly impacted by the disease. Don’t get me wrong, I enjoy a good afternoon nap every now and then—but honestly, who doesn’t? I’m also very fortunate to sleep through the night most nights. Many people living with ALS struggle with sleep because of the inability to reposition themselves independently, and I truly believe quality sleep makes a huge difference in my overall energy and outlook.
The only time during this fight that my energy truly suffered was because of my own stubbornness. I pushed my body far beyond its limits trying to continue breathing on my own without fully relying on my breathing machine. Looking back, I was exhausting myself every single day without realizing just how much energy my body was burning simply trying to breathe.
Learning to trust my BiPap and allowing it to do the work for me has been one of the most beneficial adjustments I’ve made on this journey. Once I stopped fighting it and accepted the help, I gained so much more energy and quality of life back.
As for what I enjoy doing, my favorite thing is spending time with family. I love being at The K watching the Royals, and I’ve never met a true crime show I didn’t like.
You may have seen or read about my obsession with the eagle live cameras. I still tune in every day and can’t believe how fast the eaglets have grown. Recently, I got a smart bird feeder, and I absolutely love it. Our home backs up to a wooded area, so naturally it has become a very popular spot for birds—and entertainment for me. Who knew bird watching in your 30s could become one of life’s simple joys?
ALS has forced me to slow down in many ways, but maybe that’s also taught me to appreciate things I once would have overlooked. The big moments will always matter, but so do the quiet ones—family time, baseball games, a good TV show, or watching birds gather outside my window. Those little moments still bring me a lot of happiness, and that feels pretty special to me.
#ALS #ALSAwareness #FightLikeAGirl #BirdWatchingEra
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Question of the WEEKEND just for here.. What year did you graduate and where did you go to high school at?
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Day 20
Are you still working on your book?
Yes and no.
I have written over 200 pages solely with my eyes, sharing a much deeper look into this wild ALS journey I’ve been on — the good, the bad, and the ugly.
A few years ago, though, I got stuck and stopped writing altogether. Part of me questioned whether my story was compelling enough to truly capture people’s attention. But throughout this month, all of you have shown me otherwise. Through your messages, encouragement, and willingness to follow along, you’ve reminded me that sharing my story has the potential to help people from every walk of life.
I also really appreciate the compliments on my writing. Truthfully, English was always my least favorite subject in school. As a young child, I loved creating stories, but somewhere along the way I lost that passion. Even though I was a straight-A student, writing and grammar never came as naturally to me as other subjects did.
Ironically, becoming a police officer pushed me right back into writing. Reports were a huge part of the job, and they required you to be detailed, descriptive, and precise. You never knew when a report might later become critical in court or when you’d have to rely on your own words while testifying about a case.
Now, especially over these last 20 days, writing has become therapeutic for me again. It has given me a way to reflect, process, and connect with all of you in a meaningful way.
As this month starts to come to a close, I think it may finally be time to revisit those pages and finish what I started. My story isn’t over yet — and maybe that’s the most beautiful part of all.
So tell me honestly… if I finally finish my book, would my journey with ALS be worth the read?
#ALS #ALSawareness #FightLikeAGirl #SarahsSoldiers
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At an LA Fitness in Cobb County, Damian Voltaire was allegedly caught after a woman heard a camera sound and discovered he had taken a nonconsensual photo of her.
He was fired, charged with a felony, and booked into Cobb County Jail.
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@ddmccullough I'm late today. Gonna be so hot when I go. Great job, Donna! Cant wait to run in California with you!
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Summers almost here!Great warm 4 miles!! Time to inch mileage up!
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Julie Carr retweetledi
From @SoldierSuicide: Awareness opens the door. Action saves lives.
This Mental Health Awareness Month, we're asking the harder question – what actually saves lives when it comes to suicide?
Read our latest blog to learn what prevention looks like. 🔗 bit.ly/4nNoyvT
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Dear X friends,
Maybe some of you have noticed my lack of running posts recently. I contracted E Coli poisoning ON MY BIRTHDAY and spent 3 days in the hospital 🤮🤮
I’m on the mend but please be aware of what you eat and where you eat. I have no idea where I got this but it’s NOT for the weak
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This quote hit me really hard yesterday.
It really sums up a lot of why I try to honor Mike they way I do and why the Miles for Mike community means to much to me.
#milesformike #StopSoldierSuicide #motivation #quote
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@JccJulie Before Mike was an ultra talented, successful high school wrestling, he played some baseball. We were both catchers. So that's perfect. Also, that's me on the far left. I was an umpire. We had some fun back in the day.
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