Sarah Nauser

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Sarah Nauser

Sarah Nauser

@SarahNauser

Dominating ALS one day at a time since 2018. Retired Police Officer. “Love the life you live and live the life you love” Go Royals! 💙#FightLikeAGirl

Kansas City, MO Katılım Aralık 2018
559 Takip Edilen14.4K Takipçiler
Sarah Nauser
Sarah Nauser@SarahNauser·
That’s a nice shirt Q! 🥰
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Sarah Nauser
Sarah Nauser@SarahNauser·
Day 25 What is something you were not prepared for with ALS? A fitting question for Memorial Day. Let me start with a fact. Did you know our service members are twice as likely to receive an ALS diagnosis? Being so open and public with my ALS journey has connected me with many others who are fighting this same brutal disease. There’s an unspoken understanding between people living with ALS. No explanations needed. We simply get it in a way most others never could. It’s a community no one ever wants to become part of, yet within it I have met some of the strongest, kindest, most incredible people. People who continue to laugh, love, encourage others, and fight with everything they have despite knowing exactly what this disease can take away. What I wasn’t prepared for was how often I would have to say goodbye. The harshest reality of ALS is that it is always fatal. Over the years, I have lost more friends and fellow warriors than I can count. Every loss leaves a mark. Every obituary, every memorial post, every empty space where someone once was hurts. It never gets easier. Each passing is a painful reminder of the cruelty and unrelenting power of the disease we are all fighting, but it is also a reminder of the incredible people behind the diagnosis. People whose courage deserved so much more time. Today, on Memorial Day, I find myself thinking not only about the friends I’ve lost to ALS, but about the way they lived. Their strength. Their humor. Their determination to keep showing up even on the hardest days. ALS may have taken them physically, but it will never erase the impact they made on the world and the people who loved them. Today, along with our soldiers who paid the ultimate sacrifice, I remember them. And I will keep fighting for them too. #ALS #ALSAwareness #FightLikeAGirl #SarahsSoldiers
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Linda
Linda@Lindaperkins47·
@SarahNauser Who's that in the picture with you? He's a cutie!
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Sarah Nauser
Sarah Nauser@SarahNauser·
Day 24 When did you receive your diagnosis of ALS? Eight years ago today. I sat in a small neurology clinic in Liberty and heard the words that would change my life forever. A moment permanently etched into my memory. I was alone. Terrified. Overwhelmed with fear, uncertainty, and questions no one could truly answer. In an instant, life as I knew it split into a before and an after. At 29 years old, I was told I had a terminal disease. I didn’t know what the future would look like. I didn’t know how much time I had, how much I would lose, or how I was supposed to carry the weight of a diagnosis like ALS. There is no guidebook for this life. No perfect way to process it. No roadmap for surviving the unimaginable. But eight years later, I’m still here. I’ve endured more than I ever thought possible, but I’ve also experienced deeper love, stronger faith, greater perspective, and more meaningful connections than I could have imagined back then. ALS has taken a lot from me, but it has not taken my ability to fight, to laugh, to love, or to live a life that still holds purpose. If that scared 29-year-old version of me could see who she would become, I think she’d be proud. Not because this journey has been easy — it hasn’t — but because somehow, through all of it, I kept going. And maybe that’s what courage really is. Not living without fear, but continuing to move forward in spite of it. #Courage #ALS #FightLikeAGirl
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Joel Goldberg
Joel Goldberg@goldbergkc·
#Royals win 8-6. Finish year 5-1 vs Mariners. Scoreless until the 5th when they scored four. M’s intentionally walked Vinnie Pasquantino to load the bases w/2 outs. Salvador Perez knocked in a pair. Carter Jensen followed w/a 2-RBI double Salvy 3-4 3RBI Seth Lugo 6.1IP 6H 3R
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Jack Johnson
Jack Johnson@JohnyJ_15·
Stephen Kolek should never spend a second in Omaha again. In fact, he should make every start when his turn is up in Kansas City for the rest of 2026.
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Sarah Nauser
Sarah Nauser@SarahNauser·
Day 23 How did you fall in love with baseball? The short answer? I grew up in it. All of my older siblings played, so baseball was always part of my life, and from the very beginning, I wanted to be just like them. I started playing when I was 4 years old and never looked back. By the age of 8, I was already playing competitively. Some of my favorite memories were made during those long tournament weekends at the ballpark — covered in dirt, usually sunburnt, and having the absolute time of my life. As I got older, baseball became even more than just a sport to me. During my teenage years, nights at Kauffman Stadium watching the Royals became the go-to hangout spot for my friends and me. There was just something special about being at the K watching our heroes. What I never could have imagined was how much deeper my love for the game would grow after my ALS diagnosis. The Royals organization has completely wrapped their arms around me throughout this journey. They have supported me, encouraged me, and truly lifted me up during some of the hardest moments of my life. They’ve made all of my baseball dreams come true. You’ve probably heard me call the K my happy place, and it truly is. So many of my most cherished memories over the past eight years have happened there. From the moment we pull into the parking lot until the moment we leave, I’m surrounded by kindness — from the staff, the players, and even fellow Royals fans. It’s hard to explain just how much that means to someone living with ALS. For a few hours, baseball gives me something invaluable: the chance to simply be a fan again. Not a patient. Not a diagnosis. Just someone enjoying the game they’ve loved their entire life. And that’s what makes baseball so special to me. It has always been a part of my story, but during this fight with ALS, it has also become a source of comfort, joy, community, and hope. #AlwaysRoyal #ALS #SarahsSoldiers #FightLikeAGirl
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Sarah Nauser
Sarah Nauser@SarahNauser·
Why does J-Rod hate the Royals?!?
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Julie Carr
Julie Carr@JccJulie·
@SarahNauser What great shots of the birds! What is the one on the top left? 💙🤍
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Sarah Nauser
Sarah Nauser@SarahNauser·
Day 22 How is your energy level, and what would you like to do? I would say I fall into a very small percentage of people living with ALS whose energy level has not been significantly impacted by the disease. Don’t get me wrong, I enjoy a good afternoon nap every now and then—but honestly, who doesn’t? I’m also very fortunate to sleep through the night most nights. Many people living with ALS struggle with sleep because of the inability to reposition themselves independently, and I truly believe quality sleep makes a huge difference in my overall energy and outlook. The only time during this fight that my energy truly suffered was because of my own stubbornness. I pushed my body far beyond its limits trying to continue breathing on my own without fully relying on my breathing machine. Looking back, I was exhausting myself every single day without realizing just how much energy my body was burning simply trying to breathe. Learning to trust my BiPap and allowing it to do the work for me has been one of the most beneficial adjustments I’ve made on this journey. Once I stopped fighting it and accepted the help, I gained so much more energy and quality of life back. As for what I enjoy doing, my favorite thing is spending time with family. I love being at The K watching the Royals, and I’ve never met a true crime show I didn’t like. You may have seen or read about my obsession with the eagle live cameras. I still tune in every day and can’t believe how fast the eaglets have grown. Recently, I got a smart bird feeder, and I absolutely love it. Our home backs up to a wooded area, so naturally it has become a very popular spot for birds—and entertainment for me. Who knew bird watching in your 30s could become one of life’s simple joys? ALS has forced me to slow down in many ways, but maybe that’s also taught me to appreciate things I once would have overlooked. The big moments will always matter, but so do the quiet ones—family time, baseball games, a good TV show, or watching birds gather outside my window. Those little moments still bring me a lot of happiness, and that feels pretty special to me. #ALS #ALSAwareness #FightLikeAGirl #BirdWatchingEra
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Sarah Nauser
Sarah Nauser@SarahNauser·
Day 21 How do you combat falling into despair or resentment? I’ll start with resentment, because for me, there has never been anyone to blame for the battle I’m facing. ALS knows no boundaries. It can happen to anyone, at any stage of life. Contrary to what many people believe, it is not just “an old man’s disease.” Even Lou Gehrig himself was only 36 years old when he was diagnosed. Let me take you back to the first time I saw ALS attached to my name. That night, I turned to God. I prayed for strength and guidance if this was truly the fight He had chosen for me. I never asked, “Why me?” Since realizing the battle I was facing I have believed this was part of God’s plan for my life, and who am I to question that? Does it always make sense? Does it always feel fair? No. But despite everything, I have never felt resentment. As for despair, I would be lying if I said I never experience it. I’m human. Of course those moments come. The difference is that I don’t allow myself to live there. Gratitude is what pulls me through the darkest moments. It sounds simple, because it is simple. When I focus on what I still have instead of everything ALS has taken, my perspective shifts. I stop grieving what’s gone and start appreciating what remains. No matter how small. I’ve also learned that isolating myself only makes the hard days heavier. Like most people, my instinct when I’m struggling is to retreat inward. But over the years, I’ve realized that being around the people I love is often the very thing that lifts me out of despair. Their presence fills my cup, warms my heart, and reminds me that even in the middle of hardship, there is still so much joy to be found. This life has given me countless reasons to give up if I choose to see it that way. But I choose differently. I choose to see the love, the purpose, the laughter, the faith, and the people who continue to make this life beautiful. ALS may have changed my life, but it has never taken away my ability to find gratitude in it. #Gratitude #GodsPlan #ALS #FightLikeAGirl
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Sarah Nauser
Sarah Nauser@SarahNauser·
Day 20 Are you still working on your book? Yes and no. I have written over 200 pages solely with my eyes, sharing a much deeper look into this wild ALS journey I’ve been on — the good, the bad, and the ugly. A few years ago, though, I got stuck and stopped writing altogether. Part of me questioned whether my story was compelling enough to truly capture people’s attention. But throughout this month, all of you have shown me otherwise. Through your messages, encouragement, and willingness to follow along, you’ve reminded me that sharing my story has the potential to help people from every walk of life. I also really appreciate the compliments on my writing. Truthfully, English was always my least favorite subject in school. As a young child, I loved creating stories, but somewhere along the way I lost that passion. Even though I was a straight-A student, writing and grammar never came as naturally to me as other subjects did. Ironically, becoming a police officer pushed me right back into writing. Reports were a huge part of the job, and they required you to be detailed, descriptive, and precise. You never knew when a report might later become critical in court or when you’d have to rely on your own words while testifying about a case. Now, especially over these last 20 days, writing has become therapeutic for me again. It has given me a way to reflect, process, and connect with all of you in a meaningful way. As this month starts to come to a close, I think it may finally be time to revisit those pages and finish what I started. My story isn’t over yet — and maybe that’s the most beautiful part of all. So tell me honestly… if I finally finish my book, would my journey with ALS be worth the read? #ALS #ALSawareness #FightLikeAGirl #SarahsSoldiers
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Sarah Nauser
Sarah Nauser@SarahNauser·
Day 19 Are you afraid? Sometimes. But not nearly as much as I was in the beginning of this fight. No 29 year old expects to essentially be given a death sentence in a doctor’s office. I think fear of the unknown is something we all carry, and early on, everything about ALS felt uncertain and terrifying. I coped by staying busy, constantly moving, refusing to sit still long enough to think too deeply about the future—or what I feared it might hold. Over time, that fear has changed. I’m not afraid to die. I have peace in the way I’m living my life. I trust that God will call me home when it’s my time, and until then, I’ll continue doing my best to shine His light and make the most of every day I’m given. Each and every day is a gift. What I am afraid of is the pain my absence may someday cause the people I love. I don’t want them to hurt. I don’t want them to grieve. They are the reason this life is so beautiful to me and the reason I continue to fight so hard. That thought is what weighs on my heart the most. A while back I said, “I’m not afraid to die, but I am terrified of not living.” That still couldn’t be more true. I never want to simply exist. I want to truly live—to love deeply, laugh often, make memories, and find purpose in every season, even this one. This is why we stay so busy. Living in a body so deeply affected by ALS is incredibly difficult at times, but a hard life can still be a meaningful and fulfilling one. And as long as I’m here, that’s exactly the kind of life I intend to live. “Faith over fear” is something I hold tightly to through every twist and turn of this journey. When fear begins to creep into my mind, I give it to God and allow Him to calm my mind and heart. #FaithOverFear #ALSAwareness #ALS #FightLikeAGirl
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