Jenna💙

Thank you to all the bereaved parents who have spoken with me so far about their experiences of the Child Death Review Process in England. We still would love to hear from a few more especially from the North East Of England but anyone welcome. 1/2

“[A diagnosis] can seem so daunting, so scary. You don't know what's to come." Last night, CLAPA starred on BBC television news in an interview with professional cricketer Tom Kohler-Cadmore, his partner Melissa Avison. ▶️ Watch the BBC interview: buff.ly/R0aPn1z

📢 The updated leaflet When a Child Dies: A guide for parents and carers is now available. Developed with bereaved families and @NHSEngland, it reflects important process changes, including the role of medical examiners. 🔗 ncmd.info/videos/when-a-…

🩵This summer, CLAPA is here to support you and your family to prepare for the school year ahead and stay connected with others over the school holidays. Visit clapa.com to find out more or to access the services we provide.

We are pleased to share with you our latest thematic report on Children with Life-Limiting Conditions and #palliative and #endoflife care needs. Read it here: ncmd.info/publications/l…

🚨We're hiring!🚨 We're looking for a Digital Communications Coordinator for maternity cover (Fixed Term Contract to cover period of maternity cover up to 12 months.) ➡️ Find out more or apply now: buff.ly/MW3khZP 📆 Applications close: Friday 1st August 2025, 9.00am

On Wednesday 25th June, we will be holding a live Q&A on the topic of 'The Treatment Pathway, for ages 0-18 years'. You can now pre-submit your questions to ensure our panel of experts will answer them live during the event: buff.ly/N5InHgK

Our annual Cleft Youth magazine is out now!📰 The magazine is packed with inspiring stories, celebrations of achievements, information on CLAPA's Young People's Services, tips and advice and fun activities. 🔗 Request your copy: buff.ly/WAgt0Ss

We want to hear directly from those affected about their experiences with cleft dental care. By sharing your story, you can help us highlight the issues people born with a cleft are facing and push for real change. 🔗 Take the survey: buff.ly/f6QZ5C2

CLAPA is building a brand new website and we need YOUR help to make it amazing. If you have a connection to cleft, or are a cleft health professional, please take 15-20 minutes to tell us what you want from our website: buff.ly/IlRXfwz (mobile not currently available)

Earlier this month, our Chief Executive, Claire Cunniffe, and CLAPA staff and volunteers attended the Craniofacial Society of Great Britain and Ireland Conference. They shared updates about CLAPA’s services, policy and campaigning work and plans for the future. #CFSGBI2025

I'm recovering from a breakdown at the moment so things have been pretty tough- if you could spare a few moments to RT my post about the prints of my photos in my Etsy shop (previous tweet) it would help to maybe put my shop in front of a few extra eyes. Thankyou so much 🌿

“Isn’t a cleft fixed when they’re a baby?” Some people born with a cleft will need over twenty operations in their life, it’s important to raise awareness that cleft isn’t always a simple ‘fix’. 💙 Learn more about supporting people affected by cleft: buff.ly/HF5XYyl

At CLAPA, we want to ensure we can bring our community together, to share experiences and offer a listening ear. For those aged 10-17 we offer our Cleft++ Mentoring service to support them through their cleft journey. 🔗 Find out more today or sign up: buff.ly/3QmZFqz

Please consider taking part in this brief survey of UK-based researchers, or clinician conducting palliative care research, to help funders understand what is needed to sustain and grow palliative care research in the UK. Now open until 12.1.25: app.onlinesurveys.jisc.ac.uk/s/edinburgh/uk…

I was wrong… #pinkwashing #breastcancer @breastcancernow

Calling all NMAHPs looking for salary replacement PhD funding. The GW4-CAT HP scheme welcomes applications for proposals on discovery science including population health, cardiovascular sciences, neuroscience, mental health, infection. gw4-cat.ac.uk/how-to-apply-2/

If you missed our first CLAPA-CRANE Q&A for patients/public, you can watch the recording at buff.ly/40tCzoR Find out: 🔸 Who we are 🔸 What we collect 🔸 How we use patient data @CLAPACOMMUNITY @UseMyData

At CLAPA, we work collaboratively with the Cleft Collective. ▶️ They have shared with us their new short film outlining their new research project, Cleft@18-23. The project looks at what it is like for young adults leaving regular cleft care: buff.ly/3AH3a7a

We have a long history of world-leading cleft research - changing lives and improving outcomes for the future. Hear from our experts about partnerships and progress👉 bristol.ac.uk/campaigns/equi…

It’s #WorldMentalHealthDay 🌍 Take that first step to getting help. Save and share this post and help us make sure there’s no mind left behind. You could also try 👇 @PAPYRUS_Charity Hopeline: 0800 068 4141 Text SHOUT 85258 @GiveUsAShout @samaritans @theCALMzone @TheMixUK