Jessica Y. Allen, PhD

Many of the Birmingham-Southern College students say professors are fundamental in shaping their success, concern and care for others, and staying in AL for contributing to the state. We decided it was time to share our story. al.com/opinion/2023/1… #bsc #youngboozer

Friends! As part of #ForwardEverDay, following exciting news from BSC Board of Trustees, I am excited to share that the College has chosen to highlight the Embodied Labs VR software subscription as part of its fundraising initiatives. More here: givecampus.com/schools/Birmin…

So excited to see our long-term #NEC outcomes paper up! This project stemmed from the @NECsociety's 2019 Symposium & was a patient-led effort! Thank you to everyone who made this work possible! @epNICURDN @Linseigh @JHarrisonPhD @ravimpatelmd @SusanHintzMD doi.org/10.1016/j.semp…

We must save hospice. statnews.com/2022/12/14/hos… Recent article by @AvaKofman has sparked heated discussion w/in hospice & palliative care. Much of it defensive. My MD colleagues seem the exception. General sense among HPC docs is: Enough! Time for clinicians to take back our field.

Looking forward to a fabulous day of presentations on patient-centered research and healthcare! #pcori22 @PCORI

Such a pleasure meeting @anjalifp and King Cohen at the Horizons School yesterday! What a testament she gave to advocacy and research in disability populations across the lifespan!

Inspirational Friday! Join our panel on 9/22 in partnership with South Fulton Ministerial Alliance. We will be talking about dementia caregiving and mental health. The link: tinyurl.com/SFMAFacebookLi… #atlerdementia #mentalhealth #caregiving #Alz #supportdementia

Calling all dementia #biomarker researchers! #NIA is #funding applications to establish a transdisciplinary network to explore #dementia biomarkers in people with multiple chronic conditions. Check out the FOA here: bit.ly/3KlK1rJ

@UABHeersink is hiring! open-rank faculty position in the Center for Advanced Intestinal Rehabilitation program- Division of Pediatric Gastroenterology, Hepatology and Nutrition! uab.peopleadmin.com/postings/16408 #intestinalrehab #intestinalfailure #sbs #gastroschisis #atresia

A1: #ShortBowelSyndrome is often seen as a “pediatric” disease. This may mean limited availability for knowledgeable healthcare for adults which can feel scary & overwhelming. Using resources like @NORD and @OleyFoundation and joining online support groups on socials can help

@oley @Nord Apologies, it should be @OleyFoundation

@JessicaYAllen @Nord I am not sure why I was tagged on this post.

#wellbeing #communityengagement #data #patientexperience #tubielife #tubie #tubefeeding #ostomy #ostomylife #AskPatients #askfamilies #chronicillness #invisibleillness #chronicpain #rarediseases #rarediseaseawareness #rarediseasewarrior #rarediseaseadvocate

#shortgutsowhat #sbswarrior #RareDisease #tpnstrong #enteralnutrition #ParenteralNutrition #centralvenousaccess #sbs #QOL #qualityoflifematters #qualityoflife #ResearchMatters #ptexperience #careaboutrare #smallintestine #smallintestinetransplant #intestinaltransplant

We are so excited to share this community-driven video in recognition of #ShortBowelSyndrome Awareness Month! We are committed to continuing to shed light on the SBS experience and bringing the SBS community together! Full video: bit.ly/3R4dhpD @SwapnaSpeaks

A6: Can we have child life & music therapy for adults please! There is power in doing crafts with your hands when in a hospital bed that is if your hands are not full of PIVs #ShortBowelSyndrome

@SwapnaSpeaks That’s good stuff @SwapnaSpeaks

A6: The clinicians I remember and have so much gratitude for make sure they come to my eye level and come to the head of the bed during rounds instead of gathering around the foot of the bed unintentionally talking down to me. #ShortBowelSyndrome

A7: For your own quality-of-life, it’s continue plans and goals, but hold them loosely. Consider explaining to partners, co-workers and friends that your schedule may change suddenly ahead of an event so that you aren’t worried about who will step in. #ShortBowelSyndrome

A7: If you are seen in multiple clinics, ask if a social worker or clinic scheduler can work with you to make appointments on the same day, especially if you are traveling from out-of-town. Consider having a “go bag” with you #ShortBowelSyndrome

A7: It can be mentally taxing to have frequent medical visits/hospitalizations.If you are a patient or caregiver with access to medical leave (FMLA) or leave of absence, take advantage of those if you are able to do so. #ShortBowelSyndrome