J Roberts

1.1K posts

J Roberts banner
J Roberts

J Roberts

@JonRob08

Classical hematologist; hemostasis/thrombosis, hemophilia, VWD, rare bleeding disorders specialist; severe hemophilia A blood brother🩸, opinions my own

Illinois, USA Katılım Aralık 2019
750 Takip Edilen795 Takipçiler
J Roberts
J Roberts@JonRob08·
Interesting news and was really only a matter of time. Companies should listen to patients, and each individual weigh risks/benefits of all evolving hemophilia therapies. Sometimes patience is the wise approach. #hemophilia #genetherapy reuters.com/business/healt…
English
0
0
1
130
Brian O Mahony
Brian O Mahony@Brianhemophilia·
Celebrating the @WHO Essential Medicines List 2025 Update today which removes unsafe products and adds safe products thanks to the team @wfhemophilia
Brian O Mahony tweet media
English
10
4
34
836
J Roberts
J Roberts@JonRob08·
Happy to share our study of recombinant VWF real-world treatment patterns and outcomes at 11 centers in the U.S. We demonstrate that routine rVWF prophylaxis reduced bleed rate and healthcare resource utilization compared to prior VWD treatments. #VWD #VWF tandfonline.com/doi/full/10.10…
English
3
2
6
1.1K
J Roberts
J Roberts@JonRob08·
Proud to work with esteemed colleagues to improve future research priorities. The patient voice, through lived experience experts, must be incorporated into cutting-edge research programs from start to finish. ashpublications.org/bloodadvances/…
English
2
2
8
489
J Roberts retweetledi
Mark Skinner
Mark Skinner@MSkinnerDC·
Contrasting Approaches in the Implementation of GRADE Methodology in Guidelines for Haemophilia and VWD. onlinelibrary.wiley.com/doi/abs/10.111… This article developed by a global team of 48 experts and international organizations rigorously examines a number of GRADE methodology adaptations.
English
1
2
6
734
J Roberts retweetledi
Brian O Mahony
Brian O Mahony@Brianhemophilia·
A critique of the ISTH Haemophilia Guidelines was published in #Haemophilia Journal today with 49 eminent authors representing a global mixture of expertise, all united in their serious concerns about these guidelines which were already outdated on publication 1/3
Brian O Mahony tweet media
English
1
10
25
1.5K
J Roberts retweetledi
National Bleeding Disorders Foundation
With 70% of bleeding events linked to identified or suspected causes, this study highlights the pressing need for better strategies, including long-term VWD factor (VWF) prophylaxis, to reduce hospitalizations and improve quality of life. Read More: bit.ly/3UWiu6Z
National Bleeding Disorders Foundation tweet media
English
1
4
5
344
J Roberts retweetledi
Brian O Mahony
Brian O Mahony@Brianhemophilia·
Centessa have discontinued development of their rebalancing agent, Serpin PC despite encouraging Phase 2 PREScent clinical trial results Decision due to competition from marstacimab and possibly concizumab. This leaves these 2 plus Fitusiran in trials or licenced @ProfMakris
Brian O Mahony tweet media
English
0
2
3
768