Marisa Troy

@MondayNightIBD @EliLillyandCo @thisimmunelife @nataliesparacio @aboutIBD @mustbthemusic @Crohnoid @IldikoMe @gutsyknots @JournalingIBD @ownyourcrohns @Sahara88uk #MondayNightIBD #IBDPoll2️⃣ Reflecting on Intestinal Ultrasound (IUS) What is appealing about IUS over other monitoring tools? Would you prefer IUS - why/why not? 🤔 Please answer the poll & share your experiences in replies ⬇️ #PatientExperience #SouthAsianIBD

@MondayNightIBD @EliLillyandCo @thisimmunelife @nataliesparacio @aboutIBD @mustbthemusic @Crohnoid @IldikoMe @gutsyknots @JournalingIBD @ownyourcrohns @Sahara88uk 📢#IBD patients & caregivers: #MondayNightIBD #IBDPoll1️⃣ 📊Thinking about your IBD experience, what mode of disease monitoring do you prefer to stay on top of your care? 🔽 In replies, please share your #PatientExperience, preferences/barriers to monitoring ✏️ #SouthAsianIBD

🙏🏽Patients, advocates & caregivers for sharing their journey w us! 📡 Scanning #PatientExperience on disease monitoring & #IUS w @rebelliousgut leading the convo 🗳️2 #IBDPolls👇🏽 📣RT & share your💭 w us! #StrongerTogether #MondayNightIBD Supported by edu grant @EliLillyandCo

Monday I go in for my first #cataract surgery. Some thoughts about surrendering control & how tough that can be when you've been burned so much. #chronicillness #patient #doctor instagram.com/p/Czd5uIfOOf5/…

Honored to have spoken to DPT students at @Hunter_College @CUNY on #physicaltherapy in #painmanagement! PT 👉🏽 critical in my #IBD surgery recovery 👉🏽 managed #pelvicfloordysfunction 👉🏽prevented prolonged use of pain meds Important for med students to learn from patients 🙏🏽

@ownyourcrohns @Hunter_College @CUNY @DrTayAhmed @SolsticePhysio1 @DCharabaty @FITWITMD @SimonaFourie @drlauriekeefer @GutlessGlamour @ibddoctor @UOAA So proud of you! And proud to call you my friend!

@GutlessGlamour @aboutIBD @ownyourcrohns @CrzyCreoleMommy @thecrohniemommy I use vegan Orgain.

Does anyone have any recommendations for gut friendly protein powder? Currently using #Vega #IBD #WeightGain @aboutIBD @ownyourcrohns @CrzyCreoleMommy @thecrohniemommy

@Crohnoid @DCharabaty @DeviousDwyer @MondayNightIBD @mustbthemusic @ownyourcrohns @aboutIBD @bottomlineibd @CrzyCreoleMommy @snehadave98 @LoriPlung @Sahara88uk @F8Martine @marajshapiro @AEBuechi @nataliesparacio @AaronBlocker_ Not at all! I was 14& in a terrible place. Having another year of being a teenager without beginning the surgical rollercoaster was really great for me. It also allowed me to feel confident I exhausted all medicinal options before cutting. Great question tho!

@JournalingIBD @DCharabaty @DeviousDwyer @MondayNightIBD @mustbthemusic @ownyourcrohns @aboutIBD @bottomlineibd @CrzyCreoleMommy @snehadave98 @LoriPlung @Sahara88uk @F8Martine @marajshapiro @AEBuechi @nataliesparacio @AaronBlocker_ Do you regret postponing surgery, looking back?

#MondayNightIBD is 🙏🏽to pts, advocates & caregivers for sharing their #IBD journey w clinicians & pts! 🔺Despite available #IBD Rx, steroids are occ still needed 🔺Today’s #Steroids #PatientExperience is led by @DeviousDwyer 🗳️2 #IBDPolls👇🏽 📝Share your💭 🔁RT to ⬆️ awareness

@DCharabaty @DeviousDwyer @MondayNightIBD @mustbthemusic @ownyourcrohns @aboutIBD @bottomlineibd @Crohnoid @CrzyCreoleMommy @snehadave98 @LoriPlung @Sahara88uk @F8Martine @marajshapiro @AEBuechi @nataliesparacio @AaronBlocker_ They allowed me to get out of the hospital, go to school and postpone surgery for a yr. However, had huge physical side effects incl massive weight gain, acne and now have osteopenia and cataracts. Best and worst drug imo.

@DeviousDwyer @MondayNightIBD TY for sharing your experience @DeviousDwyer w steroids! How did others do? @mustbthemusic @ownyourcrohns @aboutIBD @JournalingIBD @bottomlineibd @Crohnoid @CrzyCreoleMommy @snehadave98 @LoriPlung @Sahara88uk @F8Martine @marajshapiro @AEBuechi @nataliesparacio @AaronBlocker_

@GutlessGlamour LOVED seeing you Gaylyn!!! Been too long. 🤗

So good to see you friend! 🤗 #GoodTimes

It was great to reconnect w/ old friends &advocates in person! We learned a ton,shared thoughts about various topics, &had vulnerable discussions. Throughout the long wkd,we planned new ways to help serve the #IBD community.  I'll be sharing more 📸 &insights soon. #crohns #UC

If you're in the DC area this weekend, please join us for a happy hour meet & greet with fellow #IBD community members. #inflammatoryboweldisease #crohns #crohnsdisease #UC #ulcerativecolitis #ostomy #Jpouch #meetup

@Runsforcoffee1 I always wondered what they prefer. Taking or silence. I imagine some feel they "should" talk in order to give better customer service.

@JournalingIBD Our hairdresser appreciates it as well

Random but it's so awesome to sit in silence while getting a haircut. No meaningless small talk. Just relaxing.

I never share things like this but this org is in desperate need of help. #adoptdontshop #rescue

So proud of @ownyourcrohns !!! 💜💜💜💜

This Pride Month on Lights, Camera, Crohn’s a look at the most common concerns & patient experiences, helpful guidance to support the LGBTQIA+ community, the added risk factors & screenings, tips for communicating with your care team, and much more. lightscameracrohns.com/2023/06/12/ope…

@LoriPlung @PittGILiverNutr @CrohnsColitisFn @CCfdnWPAWV Way to go! What kind of #ORS do you drink if you don't mind me asking?

An early morning walk to start the day. #Sunscreen followed by a grape flavored #ORS That's how an #IBD patient with #SBS rocks and rolls! #IBDCantStopMe

Webinar 👩‍💻 Supporting young people with a #stoma: current challenges & future directions: bit.ly/StomaWebinar June 7th, 6.30 - 8pm BST. I'll be there 👋 talking about unmet needs & the importance of advocacy groups such as @IBDSuperHeroes. PLUS...

I MAY be looking for people with, or who have had, #ColorectalCancer for some paid interviews. I was just wondering whether there's anyone in my current network that might be interested if that project moves forward? #ColonCancer