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Granny
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Granny
@JustClockIt
Dog Mom. RFK Jr MAHA Top of Gen X.📈📉Awareness about Ehler’s Danlos, Sjogren’s, POTS and MCAS. We need better treatments.
Katılım Nisan 2022
612 Takip Edilen698 Takipçiler

@teachthemx3 This is incredible. Should replace the norm at public and private schools everywhere.
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@broadwaybabyto 32 degrees has a lot of great staples that are cooling fabrics and inexpensive. 32degrees.com
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@sampleswill In Florida, some HOA’s state that if you are found to have chickens, they have the legal right to take your property. Know what you’re signing with HOA’s.
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We shouldn’t have to live like this, begging to HOAs and municipalities to have chickens. Every home in America should legally be able to possess chickens. We need a second amendment for chickens.
William Samples 🇺🇸@sampleswill
Just dropped off a dozen fresh eggs on my HOA president’s doorstep so I can keep chickens in my backyard. This is what corruption looks like!
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@DiaryofaSickGrl This is true for me as well. I have to wear shoes with orthotics after breaking both feet. Clothes that aren’t too hot. Very little makeup.
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@DiaryofaSickGrl It can be a Pernicous Anemia 9(a kind of B12 deficiency thing). It causes burning mouth Ami g other things. B12 shots got rid of that for me.
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@RealTalk8386 Just finished planting a flower garden, in honor of our little dog that died last summer. I cannot wait to see all of the blooms. Gladiolus, Dahlias, Peonies, Daisies and wildflowers. Will add some pretty stones and waterers for bees and butterflies.
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@broadwaybabyto @DiaryofaSickGrl This is true. Everyone is one illness, accident or injury away from life change. They just don’t realize it yet.
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@DiaryofaSickGrl As an MCAS patient, I can only use mineral sunscreens. I have a terrible reaction to all others.
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@DiaryofaSickGrl I drink two 30 gram protein drinks a day. That’s 60…eat another meal and snack with protein and you’ll hit 100 easily.
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This movie is fabulous. Highly recommend.
Netflix@netflix
Remarkably Bright Creatures, based on the bestselling novel, premieres in 12 HOURS 🐙
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In 1984 when I came down with symptoms, there was no such diagnosis as POTS. They referred to it as “Soldier’s Heart” and migraines in my chart. While it’s much more widely known among physicians now than it was 10 years ago, this illness needs much more funded research from NIH. It’s not uncommon, especially now. I would love to see research in genetics on this. It runs in my family and I know other families that have the predisposition as well. While viruses can bring it out, I wonder how many people already had the predisposition to it.
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2026 research is STILL confirming the massive post-COVID POTS surge.
The new JACC Advances study found most Long COVID tachycardia cases were actually POTS or POTS/IST overlap, with brain fog, nausea, and symptoms that go way beyond just heart rate.
We’re talking 1 in 3 highly symptomatic Long COVID patients meeting POTS criteria. At the same time, post-Covid POTS diagnoses have surged enough that the medical system can’t ignore the condition anymore.
As someone who’s been dealing with POTS, it’s unfortunate that it took a pandemic to bring attention to this awful illness.
But here’s the part that we don’t say enough. This wasn’t created from nothing. POTS was already here. It was under diagnosed, dismissed, and repeatedly written off as “anxiety” for decades, especially in women.
Long COVID patients and the research momentum they created finally forced the spotlight this condition always needed.
COVID didn’t invent POTS from scratch. It triggered and amplified a condition that was already affecting huge numbers of people while exposing just how badly dysautonomia had been overlooked.
I’m thankful for every long hauler who has been fighting for answers, contributing to research, and not giving up. Your fight is helping patients diagnosed pre and post COVID.
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@DiaryofaSickGrl I drink a few protein drinks daily. Every meal and snack must have protein.
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@kitcateleven I had to get a tetanus shot a few weeks ago after he/she scratched me. 😂
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@JustClockIt I feed two feral cats at my house and they act like I’m a murderer anytime I step towards them.
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