KCIMESG

10.4K posts

KCIMESG

KCIMESG

@KCIMESG

Kirklees and Calderdale Independent ME Support Group. We are a local ME/CFS Support group covering Kirklees and Calderdale as well as surrounding areas.

UK Katılım Şubat 2011
185 Takip Edilen260 Takipçiler
KCIMESG retweetledi
Adam
Adam@ABrokenBattery·
"This is not rare. This is one of life's worst diseases." Professor Chris Ponting speaking about harm from graded exercise therapy and hospital care, and how patients have been let down for decades because #MECFS was wrongly thought to be psychological. (Clip from 2024)
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ME Foggy Dog
ME Foggy Dog@MEFoggyDog·
M.E. is INJUSTICE A disease that can erase futures while society looks away. When a disabling, complex, neurological illness is met with disbelief instead of care, suffering becomes silence. #OneWord #ME
ME Foggy Dog@MEFoggyDog

M.E. is INJUSTICE. Millions are missing from society in dark rooms. Doctors call it psychological, governments starve biomed research of funding, and the medical system abandons the M.E community. #OneWord #ME

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Katy B
Katy B@KatyBruce108·
This is one of the most impressive letters I've read from any ME advocacy org. It would be great if it could perhaps be used to help to inform those writing on this issue in the MSM in future #pwME #MEAwareness #MedTwitter #PACETrial
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Debbie Burkett
Debbie Burkett@birdsong4deb·
It’s #MEawarenesshour. I’m tweeting in the hope that if more people are aware of M.E. and the way it devastates lives, more effort and funding will be allocated to investigating and searching for answers. We need an agreed, objective diagnostic test for detailed clinical trials.
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WAMES
WAMES@WAMESMECFS·
Disabled parking bays in private car parks remain poorly enforced and frequently abused. To tackle this issue, Disabled Motoring UK’s (DMUK’s) Baywatch campaign returns, calling for greater accountability from supermarkets and parking operators tinyurl.com/3572btb7
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Bateman Horne Center
Bateman Horne Center@BatemanHorne·
Reminder: Submissions are due Wed., Aug. 5. Share your story for our In Their Words series with a short written reflection, audio, or video in recognition of Severe ME/CFS Awareness Day. 💙 Submit here: bit.ly/4ftJXq5 #SevereMEAwareness #MECFS
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Adam
Adam@ABrokenBattery·
My 27-minute #MECFS Medical Scandal Explainer video has now passed 300,000 views on YouTube. YouTube’s AI summary has analysed over 3,100 comments.
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ME/CFS Science
ME/CFS Science@mecfsskeptic·
1) 🇩🇪 There's now more info about the PIONEER study which will test inebilizumab (a drug that targets B-cells), in a subgroup of ME/CFS patients. It's a randomised trial at the Charité that aims to include 38 participants.
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ME Association
ME Association@MEAssociation·
Yorkshire Live: Kirklees Council called to 'bridge gap' in 'debilitating' chronic condition care "At Wednesday's Health and Adult Social Care Scrutiny Panel (July 22), concerns were raised over Kirklees Council's plans to provide support for people with Myalgic Encephalomyelitis (ME)." Read the article: examinerlive.co.uk/news/local-new… #MECFS #pwME
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ME Research UK
ME Research UK@MEResearchUK·
Read more about this newly published research on the glymphatic system in people with ME/CFS at our website: bit.ly/4vNixld
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