Kelly Rodoski
3.2K posts
@mikejwhelan Been praying for you and glad you got better news than expected. I am on oral chemo for Stage 4 metastatic breast cancer and have tolerated it well. Will be praying you do too!
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CANCER UPDATE
Thinking positively, my Tumor Board meeting at Orlando Health Cancer Center went about as good as I could expect. It's amazing when you put 8 oncologists in a room it quickly becomes evident that not all of the doctors whose expertise is CANCER don't all agree. Two well trained physicians can look at the same Scan and see it so differently which confuses the patient. 🤷♂️ So on the projector we first watched the CT Scan from September 11, 2024. It's quite evident from the picture that a 'very shiny silver oval shaped mass' can be seen on my tongue measuring 2cm in size. Originally, it was 3-5cm. Side by side from 6 months earlier there's no evidence of a silver, shiny mass! So something grew! The CT Scan narrative from the pathologist says a 70 year old man shows signs of a metastasized squamous cell malignant carcinoma stage 4 cancer to the base of the tongue. The margin is "grossly markable."
To accurately delineate the margins a PET Scan was immediately ordered. So days after my stage 4 diagnosis I did the PET Scan. Long story short the radiologist's PET Scan findings were a bit different than the CT Scan. The tongue "barely lit up! Showing normal surgar distribution" The tongue stage 4 squamous cell malignant carcinoma - early stage I or II. The surgeon, chemotherapy and radiation oncologists all felt that removing most of the tongue along with 35 radiation treatments and chemotherapy was a bit radical at this point. The recommendation was to remove the small area of the tongue where the cancer is hiding. About the size of a dime along with the margins. Next Friday is when they'd like to schedule this. One or two nights in the hospital. Then instead of radiation, they'd like to opt for the chemotherapy route. In fact, if my insurance covers it they proposed the idea of 3 months. 90 oral treatments of 5-FU an antineoplastic or cytotoxic chemotherapy pill that stops the growth of cells that reproduce very quickly. It's similar to a nutrient that cancer cells need to grow, so the cancer cells take in the 5-FU as if it were food. However, 5-FU also harms normal cells that reproduce quickly, such as cells in the blood, gastrointestinal tract, hair, and skin. As much as I love hanging out at the infusion bay, being treated in the comfort of my home where I can take care of Rebecca sounds appealing. 90 days of chemotherapy oral or IV is a BITCH which ever way you choose. I like the idea of a conservative approach that's constantly monitored. In the next 3-4 months if this treatment is NOT WORKING then we're going back to the original recommendationA more radical 1/4 removal of my tongue. 35 heavy dosages of radiation. I'm going to have a mask created. So I'm up for this less invasive experimental approach. My tongue will be very sore for about 2 weeks. The 90 days of chemotherapy will do it's best to fu*k with me. But, I'm okay with this approach. All of my medical information is being sent to MD Anderson for their opinion on this plan. Once I get a thumbs up - then surgery on Friday followed by chemo. Their biggest concern was my weight. I seem to be losing a lot - way too much. I'm eating and I also was a bit surprised when I heard the number. Still 40 pounds lighter than 8 months ago. Their concern if I understood correctly is - if this plan doesn't work and more surgery and radiation are required will I be healthy enough for radiation? I actualy feel pretty good. I'll never be able to eat, drink or swallow like I did prior to my head and neck surgery on August 1, '22. But I do need to add a few pounds. So I'm okay with a 3 month test regarding my tongue cancer. Right now we have to get the okay from my insurance. Insurance companies are better equipped for tradional IV chemotherapy than pills. We checked, the pills cost $8,000 a month. Now I'm waiting for their blessing. Sorry if I left anything out. I'm ready and excited for my surgery next Friday and let's put those chemo pills back into my Pez Dispenser. 💙


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@MiniArtOriginal @sage1411 While her young children mindlessly scroll on their devices.
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@sage1411 She cares so much about what people think that she spends many hours on many social media accounts scrolling through to see what people say about her. She has no life.
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@John_Dabell @andy_wing1 You are such an amazing inspiration to all of us cancer warriors, John!
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I have amazing followers that respond to my messages with amazing encouragement and support. My message today was "Pole vault your optimism and clear the bar". @andy_wing1 did this really great, and comical, sketch! Thank you Andy for your efforts and creativity! I am flattered that anyone takes the time to interact and so thank you to all those that join me.
Andrew Wing BEM.@andy_wing1
@John_Dabell Count me in Captain..
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💔On Thursday September 26 my best friend Sherman crossed the rainbow bridge 😭🌈He passed away in my arms on the floor at the vet's exam room. Xrays showed a cancerous tumour on his spine that had pretty much left him paralyzed in his back legs. I am shattered 💔#fuckcancer

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Daniel is 18 years old Sunday. A gentler soul you will never meet. He has no friends as he won’t leave home and can’t work. Autism does that to you. Please wish him a happy birthday and RT everywhere . ❤️#happybirthdaydaniel

Kev & Daniel’s #autism journey (& Bruce 😉)@kevharrison_
Daniel’s my son. Profoundly Autistic. Hasn’t one friend. It’s his birthday today. In his ECHP he wrote that his two wishes were to learn to drive and make friends 😣 Please wish him a happy birthday. Please show him you care. Please share. ##happybirthday #autism #rt
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CREATING ENJOYMENT
Rebecca loves watching the birds in our backyard. I think she might enjoy watching them rather than talking with me. 🤣 So I built her a family of BIRD HOUSES and attached them to our backyard stump so she can sit in the sun, or, sit by the window and watch the cardinals and bluejays.💙🦜🦜

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@BarkJack_ The soap opera that she wrote, directed and starred in!
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@shannonrwatts @cmclymer @HungCao_VA I have stage 4 cancer and my medical bills have exceeded $1 million. I will die if I don’t have health care.
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Virginia GOP candidate Hung Cao: “No one in the United States is like ‘Oh my gosh, I will die if I don’t have health care.’”
Share your life or death story with @HungCao_VA below.
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@claudiamconwayy She is just precious! Congratulations! Heaven sent from Bonnie…
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@SUSIE1932 Amen! It changes your life forever. You are never physically the same again. One day you are feeling good, the next you can’t get out of bed. No one should be judging her.
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Having been through chemotherapy myself, I can only wonder how the King and Princess Catherine can get dressed up, smile and face an audience of millions when all you feel like doing is getting back under the duvet. It takes true grit! 💪
#CatherineTheGreat #troopingthecolour


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@KensingtonRoyal As a fellow cancer warrior, I am in awe of your strength. You are the most important person on this journey, and I know your beautiful family is giving you the strength you need. You are in all our prayers for a complete recovery ❤️
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I have been blown away by all the kind messages of support and encouragement over the last couple of months. It really has made the world of difference to William and me and has helped us both through some of the harder times.
I am making good progress, but as anyone going through chemotherapy will know, there are good days and bad days. On those bad days you feel weak, tired and you have to give in to your body resting. But on the good days, when you feel stronger, you want to make the most of feeling well.
My treatment is ongoing and will be for a few more months. On the days I feel well enough, it is a joy to engage with school life, spend personal time on the things that give me energy and positivity, as well as starting to do a little work from home.
I’m looking forward to attending The King’s Birthday Parade this weekend with my family and hope to join a few public engagements over the summer, but equally knowing I am not out of the woods yet.
I am learning how to be patient, especially with uncertainty. Taking each day as it comes, listening to my body, and allowing myself to take this much needed time to heal.
Thank you so much for your continued understanding, and to all of you who have so bravely shared your stories with me.
C

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