Long COVID Foundation

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Long COVID Foundation

Long COVID Foundation

@LongCFoundation

U.S. 501(c)(3) non-profit supporting those with Long COVID & others affected by the pandemic. Advocates for those with chronic illness & chronic SARS-CoV-2.

Katılım Eylül 2023
362 Takip Edilen5K Takipçiler
Long COVID Foundation retweetledi
Covid Castaways
Covid Castaways@CovidCastaways·
There is nothing like Long COVID. This chronic disease is absolutely uniquely wretched & wicked. The virus persists. Lumping it with other things is wrong & harmful to patients. Just speaking as someone who has had a different chronic disease before LC … #LongCOVID #pwLC #AntiviralsNow
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ApresJ20 - Association Covid Long France
@LEXPRESS Nous soutenons l’association @winslow_la et demandons à@LEXPRESS le retrait de cette vidéo trompeuse.
ApresJ20 - Association Covid Long France@apresj20

📢#ApresJ20 exprime sa solidarité et son respect pour les malades (Winslow Santé Publique & Action Covid Long Les Oubliés du Covid) qui ont eu le courage de se dresser publiquement pour dénoncer le déni et la psychologisation fallacieuse du #CovidLong. youtu.be/WK0T6njZ67Q?si…

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Association Action Covid Long
Association Action Covid Long@ActionCovidLong·
Cette vidéo tronquée circule. Les faits sont incomplets. Les patients sont restés non violents. Le devoir d’exactitude n’est pas respecté. Nous refusons cette présentation des faits. L’intégralité des images doit être rendue publique. x.com/actioncovidlon…
L'Express@LEXPRESS

Après avoir assisté à une série de conférences organisées dans le cadre du projet « Long Covid », notre journaliste Victor Garcia explique pourquoi les scientifiques explorent le rôle potentiel du cerveau dans les cas de Covid long. ➡️ l.lexpress.fr/1mS

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Sassyhomo
Sassyhomo@clcisme·
It’s telling how often people say “during the pandemic” as if saying it over and over pushes it into the past. I hear it every day. Please adapt.
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Long COVID Foundation
Long COVID Foundation@LongCFoundation·
@erikmoldwarrior Possibly they feel too sick. With Long COVID you have even more layers of issues since SARS-CoV-2 is ever mutating & reinfection is not rare.
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Erik Johnson
Erik Johnson@erikmoldwarrior·
@LongCFoundation A bit of CFS history. Dr Daniel Peterson couldn't understand why patients were so passive.
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Long COVID Foundation
Long COVID Foundation@LongCFoundation·
Stop the psychologizing of #LongCOVID & chronic disease! Stop the pacification of patients who have serious & debilitating chronic disease by using vague terms to placate them for monetary purposes … we need solutions. Nothing more than treatments for the root cause(s) will suffice for Long COVID & other chronic diseases. #pwLC #AntiviralsNow
Association Winslow Santé Publique@winslow_la

La psychologisation des #CovidLong, ça suffit. Action non-violente de patient·es CL de Winslow et @ActionCovidLong lors d’une conférence européenne sur le COVID long organisée par les Pr Lemogne/ Ranque, de l'unité Casper 👇

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Long COVID Foundation retweetledi
Mike Hoerger, PhD MSCR MBA
Mike Hoerger, PhD MSCR MBA@michael_hoerger·
Op ed calls for air quality monitors in every public school classroom in Illinois. The supporting bill awaits a vote in the IL State House. (link in next)
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Long COVID Foundation
Long COVID Foundation@LongCFoundation·
There is no #LongCOVID without SARS-CoV-2 infection. This virus is persistent. The world & those suffering are not getting anywhere unless this virus is addressed via: - Mitigation - Tests/Biomarkers - Trials (Real Ones) - Treatments (Antiviral Development) #pwLC #AntiviralsNow
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Long COVID Foundation retweetledi
Covid Castaways
Covid Castaways@CovidCastaways·
Guess what? - HIV has subtypes - The cause is the same (persistent HIV) - Antiretroviral Therapy is the treatment for all Stop weaponizing subtypes in a way to mean there has to be a different cause based on symptoms … #LongCOVID #pwLC #Subtypes #AntiviralsNow
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Long COVID Foundation retweetledi
Jalen Brown
Jalen Brown@itsJalenB·
Sen. Young asks RFK Jr. for an update on the department’s Long COVID efforts. RFK Jr. says they’re still working to develop biomarkers, and they’re also creating an online patient resource hub to connect folks with doctors who’ve had the most success in treating the illness.
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Long COVID Foundation retweetledi
Cat (CovidSolidarity)
Cat (CovidSolidarity)@CovidSolidarit1·
Possible outcomes of Covid / Long Covid that concern me more than brain fog and fatigue atm: 🚩Cardiovascular disease (incl. heart attack and stroke) 🚩Neurodegeneration (incl. Alzheimer’s and Parkinson’s) 🚩Cancer (linked to immune dysregulation and chronic inflammation)
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Long COVID Foundation retweetledi
MaskTogetherAmerica
MaskTogetherAmerica@TogetherWeMask·
EYES: The Window to #LongCOVID Highlighting 2 key studies: Non-Hospitalized LC Patients Exhibit Reduced Retinal Capillary Perfusion: A Prospective Cohort Study (Journal of Imaging, Feb 16, 2025) Ocular Symptoms in LC: A Cross-Sectional Study (Clinical Ophthalmology, Oct 22, 2025)
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CIDRAP
CIDRAP@CIDRAP·
Study links long COVID in kids to worse grades, attention span, and social life. School-aged children with long COVID had more than double the risk of decreased academic performance than those without the condition. 📝 Read more: ow.ly/GKNm50YLc1s
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Long COVID Foundation retweetledi
Mike Hoerger, PhD MSCR MBA
Mike Hoerger, PhD MSCR MBA@michael_hoerger·
The American Lung Association (@LungAssociation) is hosting a 3.5-hour virtual "Clean Air School Symposium" on May 5. (Registration link in next post)
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Nina Wildflower
Nina Wildflower@Ninawildflower·
There are nearly half-a-million pieces of research into the health impacts of COVID. They are not hidden. You can simply Google them. Or you can check out this searchable database. Search for terms like "children" or "working memory". ncbi.nlm.nih.gov/research/coron…
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