K

33K posts

K banner
K

K

@LongCovid_Me

Formerly healthy, sidelined by #LongCovid since 2020. Scribo ergo sum.

The Wayside Katılım Ağustos 2020
1.4K Takip Edilen1.5K Takipçiler
K retweetledi
Dr Not A Proxy
Dr Not A Proxy@DrNotAProxy·
2 trainee ACPs literally training on the job to do exactly what I'm doing today as a medical doctor. They couldn't even name the main arteries supplying the brain. Even the qualified ACP had no idea which symptoms/signs corresponded to the different areas of brain involved
English
7
25
114
8.5K
K retweetledi
Rebecca Tidy
Rebecca Tidy@DrRebeccaTidy·
@JennyAThatcher I got dismissed from a university job during cancer treatment, as I cried in 2 meetings & they said it showed I was emotionally unstable. I've got all the paperwork. I've never spoken publicly about it actually. This is the first time I've acknowledged it in public.
English
9
7
112
3.3K
K retweetledi
Barry Hunt
Barry Hunt@BarryHunt008·
INCREDIBLE SUCCESS STORY: A patient in Canada who has suffered with a chronic Peripheral Joint Infection (PJI) Was successfully treated after 11 years of pain, inflammation, antibiotics & surgeries By injecting viruses that eat bacteria known as bacteriophages
English
10
15
120
2.5K
K retweetledi
tern
tern@1goodtern·
This is *absolutely right*. It's far better to take serious precautions and be wrong than to take mickey mouse precautions and be wrong.
Outbreak Updates@outbreakupdates

France is escalating. French authorities are now saying that if exposure details are unclear, ANY passenger sharing a flight with a confirmed/probable MV Hondius case should be treated as HIGH RISK. Not “monitor casually.” 42 days. Restricted social interactions. Avoid international travel. FFP2 masks. Active follow-up.

English
5
102
614
9.1K
K retweetledi
Cat Herding Science Nerd 🔬
Cat Herding Science Nerd 🔬@catladyactivist·
If you can't have open, honest discussions with your doctor without fear of violence or weaponization of your medical record, you're dealing with an abuser, not a healthcare provider.
English
1
23
72
680
K retweetledi
Todd Davenport
Todd Davenport@sunsopeningband·
Funny how I don’t remember any jokes about 9/11 first responders, @jonstewart. Just years of consistent, heartfelt education and advocacy. And yet you’ve chosen to punch down on a group of vulnerable people with miserable quality of lives who really need your help. Sad and gross.
Adam@ABrokenBattery

TW: Jon Stewart recently joked about hantavirus coverage and said: “this virus can cause Chronic Fatigue Syndrome, mostly amongst the experts who have to repeatedly answer the same questions.”

English
10
31
216
3.7K
K retweetledi
Todd Davenport
Todd Davenport@sunsopeningband·
This raises an important point. We often must use measures governments would recognize from other areas of research because PEM-specific measures are so early in psychometric development. However, fatigue surveys do not have adequate content validity for PEM. #ContentValidityGap
Thomas Heinzmann@ThomasHeinzman_

Gerade am Ausfüllen von Fragebögen für eine #MECFS Forschungsstudie. Dieser hier ist was für's Altpapier. ME/CFS ist KEINE Müdigkeit oder Erschöpfung.

English
4
12
44
1.3K
K retweetledi
TheHost
TheHost@TheHost_·
My brother has autism. He’s twenty-nine now. Works at a grocery store. Restocks shelves. Good at it actually. Very organized. Very systematic. He’s been at the same store for six years. The manager there is a woman named Sharon. When my brother started she didn’t hide him or keep him separate or make his disability a thing. She just put him to work. Treated him like any other employee. Gave him feedback. Corrected him when he needed it. Praised him when he did well. Didn’t perform kindness.
English
11
56
1.2K
82.6K
K retweetledi
Swiftsandswallows
Swiftsandswallows@Swiftsswallows·
Remembering Isla today on the second anniversary of her death. Thinking of happier times like these before her health deteriorated. #ME #MECFS #SevereME #grief
Swiftsandswallows tweet media
English
33
30
213
2.7K
K retweetledi
tern
tern@1goodtern·
This article that says there have been 890 cases of Hantavirus Pulmonary Syndrome in the USA since 1993, and talks about the Andes *Strain* of Hanta. But Andes is not just a different 'strain' to the Hantavirus in North America... aol.com/articles/docto…
English
1
7
45
1.4K
K retweetledi
tern
tern@1goodtern·
I don't think I have ever been so appalled about public health policy, information, and communication than by what I'm hearing about hanta at the moment. It's like people's brains are just switched off. Like they can't think straight. It's unbelievable.
English
26
146
808
11.5K
K retweetledi
sophia•of•the•Crows🐦‍⬛
sophia•of•the•Crows🐦‍⬛@DSEDunn·
I’m trying to get something removed from my notes atm. A rheum got angry because I disagreed with her — & said my lupus was in ‘remission’. This has fukt up trearments from other specialities — specifically my Respiratory consultant. It’s a mess. Medical notes ARE being weaponised. So. As you’ve said, I’ve added notes. Had test results and letters from a well regarded rheum (who is also in the NHS) scanned in. It the best I can do.
English
1
1
7
107
K retweetledi
Cat Herding Science Nerd 🔬
Cat Herding Science Nerd 🔬@catladyactivist·
Holy shit, you guys. Husband was concerned because he had a FIRST TIME abnormal urine cyto since high-grade aggressive cancer following a 10-month treatment gap he didn't get a say in. MD added "psychiatric (+) anxiety" in his chart for wanting to take this change seriously.
English
9
21
300
7K
K retweetledi
Zdenek Vrozina
Zdenek Vrozina@ZdenekVrozina·
A new warning study that deserves attention. SARS-CoV-2 leaves a long-term endothelial and metabolic footprint in the blood months after infection - even in people without obvious Long COVID symptoms. And that matters🧵
English
12
212
730
38K
K
K@LongCovid_Me·
@michael_hoerger As an adult Covid decimated my reading ability. It's not returned to how it was. Can't imagine the impact on kids who are just learning.
English
0
0
0
28

Keşfet

@JennyAThatcher @jonstewart @TheCanaryUK @Swiftsswallows @michael_hoerger @elonmusk @BarackObama @taylorswift13