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Laurent ARNAUD@Lupusreference·1d

✅ Do you have #Lupus #brainfog? Try the #LBFSS (cf table 3 in the pdf) at lupus.bmj.com/content/lupuss… and compare your brainfog severity to others, it's very easy: 50% of lupus patients have a LBFSS score > 25 and the other half has < 25 on the 0 (no symptom) to 52 (max) LBFSS scale

🚨 Very happy to report that the #Lupus #BrainFog Severity Scale (#LBFSS), the first lupus-specific patient questionnaire specifically designed to assess brainfog in #SLE has just been published 🦋 Check the pdf and assess your brainfog 💪🧠👀🌧 📥LINK: lupus.bmj.com/content/lupuss…

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Kaleidoscope Fighting Lupus@Kaleidoscope_FL

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Laurent ARNAUD@Lupusreference·1d

✅ Thank you for quoting our #NPSLE study about the #Lupus #Brainfog Severity Scale (#LBFSS), the first disease-specific questionnaire dedicated to the assessment of #cognition symptoms in lupus

Lupus in the News: Finally, a valid tool for measuring lupus brain fog and cognitive symptoms has been developed, called the Lupus Brain Fog Severity Scale. Link: ow.ly/KCP150ZnCge

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Laurent ARNAUD@Lupusreference·1d

@TovePeer Thank you very much 🙏 I hope the Lupus BrainFog Severity Scale #LBFSS will be useful to as many patients as possible.

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Tove K Cassøe@TovePeer·2d

@Lupusreference Some of the danish Lupus members had a lunch meeting Yesterday in Aarhus. And I should let you know that the new “brainfog tool” are highly appreciated to them. But they all want to tell you, how thankfull they are to you, to help Them and all other Living with SLE. T. Y. 🇩🇰

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Laurent ARNAUD@Lupusreference·4d

- Do you have #LUPUS? 🦋 - Do you have #BRAINFOG? ⛈ - If so, check the Lupus Brainfog Severity Scale (#LBFSS) - Using table 3 you can assess the SEVERITY of your brainfog and compare with others 🔓 OPENACCESS FREE LINK: doi.org/10.1136/lupus-…

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Laurent ARNAUD@Lupusreference·2d

@smuep Danke! I would be great to perform cross-cultural adaptation in German 👍 Let's plan for it!

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🦋SimSim🦋😷🇺🇦@smuep·2d

Viele #Lupus-Betroffene klagen über #Brainfog (Gehirnnebel), also verschiedene neurologische Symptome wie mentale Erschöpfung, Konzentrationsprobleme, Vergesslichkeit, verlangsamtes Denken & Wortfindungsstörungen. Liebe Co-Lupus 🦋, good news! Euer #Brainfog ist jetzt messbar.

- Do you have #LUPUS? 🦋 - Do you have #BRAINFOG? ⛈ - If so, check the Lupus Brainfog Severity Scale (#LBFSS) - Using table 3 you can assess the SEVERITY of your brainfog and compare with others 🔓 OPENACCESS FREE LINK: doi.org/10.1136/lupus-…

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Laurent ARNAUD@Lupusreference·2d

✅ Our novel @ERN_ReCONNET #ELICIT methodology is published!!!! 👍 #ELICIT is an innovative approach to gather #CONSENSUS 🤝 on complex, 'high-level' concepts related to rare connective tissue and musculoskeletal diseases 🔥 Openaccess 🔓 DOWNLOAD at: doi.org/10.1186/s13023…

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Lupus Europe@LupusEurope·2d

✅ #SLAKE is still open! 🦋How well do you understand #lupus? Try #SLAKE: a 15-minute quiz created by Prof @LupusReference & the SLAKE team with major support from @LupusEurope & @ern_reconnet. ✔️20 languages ✔️Different questions every time you use it maladie-autoimmune.fr/SLAKE/

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Laurent ARNAUD@Lupusreference·3d

✅ Comparison of #LBFSS - #Lupus #BrainFog Severity Scores in 378 lupus participants with and without brainfog 🌪🌩🦋 The median LBFSS value is 25 (in the 0-52 score) in those with brainfog, which is really easy to remember 👍 DOWNLOAD the full study 📥 at doi.org/10.1136/lupus-…

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Laurent ARNAUD@Lupusreference·3d

✅ Check the press release by the @LupusOrg about the #Lupus #BrainFog Severity Scale (#LBFSS) 👍 Link to the study: doi.org/10.1136/lupus-…

Lupus S&M@Lupus_SM

An #international group of #lupus #researchers have developed a new #measurement #tool to assess #brain fog and #cognitive symptoms in people with systemic lupus erythematosus (#SLE ). @Lupusreference @LupusOrg bit.ly/450mjMT

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Lupus Foundation of America@LupusOrg·4d

Up to 80% of people with #lupus experience brain fog. A new tool, the Lupus Brain Fog Severity Scale, helps assess and track these cognitive symptoms. Read the study: buff.ly/6O988Yf

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Laurent ARNAUD@Lupusreference·4d

✅ The #Lupus #BrainFog Severity Scale is VERY EASY TO USE 📥 Download the pdf (free openaccess 🔓) and check your score on table 3. Based on the validation study (n=378), the median LBFSS score is 25 so you can easily compare yourself to others 👍 doi.org/10.1136/lupus-…

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Laurent ARNAUD@Lupusreference·5d

🚨 Very happy to report that the #Lupus #BrainFog Severity Scale (#LBFSS), the first lupus-specific patient questionnaire specifically designed to assess brainfog in #SLE has just been published 🦋 Check the pdf and assess your brainfog 💪🧠👀🌧 📥LINK: lupus.bmj.com/content/lupuss…

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Lupus Europe@LupusEurope·4d

🤩Great milestone for the 41.7% of patients who, according to our Swiss Knife survey, live with brain fog. 🧠Proud to have contributed to the work behind the first lupus-specific tool to assess brain fog in SLE. 🎉 Congratulations, Prof @Lupusreference and the whole LBFSS team!

🚨 Very happy to report that the #Lupus #BrainFog Severity Scale (#LBFSS), the first lupus-specific patient questionnaire specifically designed to assess brainfog in #SLE has just been published 🦋 Check the pdf and assess your brainfog 💪🧠👀🌧 📥LINK: lupus.bmj.com/content/lupuss…

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Laurent ARNAUD@Lupusreference·10 Tem

@nhtert @ern_reconnet Please ask your referring doctor to send me an email using an official hospital email, as we cannot provide medical advice through social media

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Nihat Ertekin@nhtert·7 Tem

@Lupusreference @ern_reconnet Professor Arnaud, I have a very unusual biopsy-proven recurrent panniculitis case with PM-Scl100 positivity. May I kindly ask whether I could send you a brief case summary for your opinion? Thank you very much.

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Laurent ARNAUD@Lupusreference·6 Tem

✅ Happy to report that the @ERN_ReCONNET new methodology for eliciting #consensus on high-level complex definitions in the context of rare connective tissue and inflammatory diseases, such as #lupus (ReCONNET #ELICIT) has been ACCEPTED FOR PUBLICATION 👍 More...soon

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Laurent ARNAUD@Lupusreference·8 Tem

✅ Honestly one of the best reads of those last years about the PRACTICAL management of #sicca #dry symptoms in #sjogren 👍 Congrats to Price & colleagues 👏 Definitely a MUST-read for anyone taking care/living with #Sjogren 💦 OPEN-ACCESS LINK:doi.org/10.3390/jcm150…

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Lupus Europe@LupusEurope·7 Tem

Consensus is not just agreeing on predefined items. #ELICIT starts earlier: eliciting facets experts, incl. patients, see in complex rare-disease concepts, structuring & testing agreement. For clearer #lupus & rare CTD definitions. Congrats @Lupusreference, @ERN_ReCONNET et al!

✅ Happy to report that the @ERN_ReCONNET new methodology for eliciting #consensus on high-level complex definitions in the context of rare connective tissue and inflammatory diseases, such as #lupus (ReCONNET #ELICIT) has been ACCEPTED FOR PUBLICATION 👍 More...soon

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