LymeX

“For decades, Americans suffering from Lyme disease have been denied the accurate diagnostics and meaningful care they deserve. Today’s actions push us decisively toward reliable testing and treatment grounded in the real-world experiences of patients. We are committed to delivering the tools that families have waited far too long to receive.” — @SecKennedy

.@SecKennedy: “One of the reasons we wanted to host this meeting, as I make clear, is to announce to the world that the gaslighting of Lyme patients is over.”

.@SecKennedy: “Today I’m proud to announce the renewal of the LymeX Innovation Accelerator which @POTUS launched…This announcement fulfills commitments made in the MAHA Strategy Report to address chronic illnesses that affect millions of Americans.”

.@SecKennedy: “For many years, this agency had a deliberate policy to refuse to engage with the Lyme community.”

.@SecKennedy: “My family has been directly affected by Lyme disease.”

Happening now:

Root cause health issues 🎯 Chronic to Cures moonshot time has come! ✨💫🚀

Where there is controversy we need more data #OpenData #OpenDiscussion 📈 🐮 🔔

“Against all odds, Lyme disease activists & nonprofit groups are leading the way for earlier diagnostics. It may yet work” This Lyme Moonshot is for you, Joseph Elone + your loved ones + everyone touched by Lyme. Onward, much work remains!💚 People first, data always❣️ 🌟🚀💫✨

A 17 yo camper got Lyme disease. He tested negative so wasn’t given antibiotics. He collapsed, died suddenly of Lyme carditis. Here is why we need to replace a disgracefully unreliable Lyme test. A ‘moonshot’ may work. @Lyme_X @Lymenews @StevePhillipsMD rescue.substack.com/p/the-lyme-dis…

Congratulations to the winners of the Phase 3 @Lyme_X #diagnostics #prize. We need better tests, and are excited to see these teams making progress on this important public health problem. #Lymedisease @cohengive lymexdiagnosticsprize.com/announcing-the…

"I was the recipient of a lot of generosity early in life," said Alex Cohen. “All of this is about paying it forward.” Alex is the president of the Steven & Alexandra Cohen Foundation, the nonprofit organization that she and her husband Steve co-founded in 2001. ❤

I was a Phase 3 judge in @CohenGive’s $10+ million #LymeXDiagnosticsPrize, please join me in congratulating our winners: lymexdiagnosticsprize.com/announcing-the…

What are the goals of @Lyme_X? 🔹 Engage Stakeholders to Facilitate Patient-Centered Innovations 🔹 Foster Breakthroughs in Education and Awareness 🔹 Accelerate Development of Next-Gen Diagnostics Learn more about #LymeX: buff.ly/4dIytgM @cohengive #InnovationX

This #LymeDiseaseAwarenessMonth, @CDCgov and @HHS_Health met with researchers, clinicians, public health officials, patients, and patient advocates to discuss public priorities in implementing the Vector-Borne Disease National Strategy. Learn more: hhs.gov/blog/2024/05/2…

HHS' Lyme Innovation initiative is providing an innovation pipeline, scientific guidance, and technical assistance for emerging technologies to detect #Lyme disease in humans. Read our multi-year plan to tackle the threat: hhs.gov/blog/2024/05/1… #LymeDiseaseAwarenessMonth

The HHS Vector-Borne Disease National Strategy is the largest federal effort on vector-borne disease prevention, building upon prior initiatives such as the Tick-Borne Disease Working Group. Learn more: hhs.gov/about/news/202… #LymeDiseaseAwarenessMonth

Through 2024 Lyme Infection Associated Chronic Illnesses collaborations, @HHS_Innovates, @CohenGive, and @theNASEM are changing the #Lyme disease status quo. Watch HHS InnovationX remarks from the spring session: nationalacademies.org/event/42569_04… #LymeDiseaseAwarenessMonth #IACI #IACC

It's #LymeDiseaseAwarenessMonth! Learn how our activities are making a positive real-world impact on #LymeDisease. Check back often for links to reports, apps, games, blog posts, videos, guides, and other material related to our ongoing work: buff.ly/48xqteo #Innovation

Today at 10 a.m. and 3 p.m. ET, join @HHS_Innovates for a #LymeDiseaseAwarenessMonth webinar on the National Public Health Strategy for the Prevention and Control of Vector-Borne Diseases in People. The session will cover #Lyme and #tickborne disease. hhs.gov/live/index.html