ME/CFS Research Foundation

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ME/CFS Research Foundation

ME/CFS Research Foundation

@MECFSResearch

Für mehr ME/CFS Forschung! We promote & finance #MECFS research! 🍋 https://t.co/M9rXZkNPX2 ME/CFS: Myalgic Encephalomyelitis / Chronic Fatigue Syndrome

Hamburg, Germany Katılım Mart 2023
201 Takip Edilen3.2K Takipçiler
ME/CFS Research Foundation
ME/CFS Research Foundation@MECFSResearch·
New ME/CFS research 🔬 worth 2.4 million euros funded by our supporters 🙏: This summer, seven new research projects will start at eight institutions in 🇩🇪, investigating new therapeutic approaches, disease mechanisms and biomarkers. t.ly/PPGlX #MECFS #LongCovid
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ME/CFS Research Foundation
ME/CFS Research Foundation@MECFSResearch·
Neue ME/CFS-Forschung für 2,4 Mio.€, finanziert von unseren Spendenden 🙏: Noch diesen Sommer starten sieben neue Forschungsprojekte an acht Einrichtungen in 🇩🇪. Sie erforschen neue Therapieansätze, Krankheitsmechanismen und Biomarker. t.ly/XCbFB #MECFS #LongCovid
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ME/CFS Research Foundation
ME/CFS Research Foundation@MECFSResearch·
Patient*innen sitzen jetzt mit am Tisch: die vom BMFTR finanzierte und gesteuerte Nationale Dekade gegen Postinfektiöse Erkrankungen beruft in die 3 Arbeitsgruppen 6 Organisationen, um die Betroffenen-Perspektive zu vertreten. #MECFS #LongCovid 🔗: t.ly/bT4bm
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ME/CFS Research Foundation
ME/CFS Research Foundation@MECFSResearch·
Patients now have a seat at the table: across the National Decade Against Post-infectious Diseases' (funded and managed by the German research ministry) 3 working groups include 6 organisations to represent the patient perspective. #MECFS #LongCovid 🔗 t.ly/ZoqFg
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ME/CFS Research Foundation
ME/CFS Research Foundation@MECFSResearch·
New talks from this year's International #MECFS Conference are online! 📌 "Autoantibodies analysis in Long COVID and ME/CFS" - @keylas3​ 📌 "Effects of Autoantibodies on Neuronal Function" - Marlen Alisch 📌 "Bio-SEG PEM study" - @chris_puta​ 🔗 t.ly/of9LS
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ME/CFS Research Foundation
ME/CFS Research Foundation@MECFSResearch·
Understanding I: Vascular dysregulation. The next talks from our ME/CFS Symposium 2026 are now online. Vascular and endothelial dysregulation marks ME/CFS, and endothelial health emerges as a therapeutic target. Watch now: t.ly/of9LS #mecfsresearch #pais #longcovid
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ME/CFS Research Foundation
ME/CFS Research Foundation@MECFSResearch·
2025 update: For the first time, ME/CFS causes higher societal costs than Long COVID. 32.8bn € ME/CFS, 31.6bn € Long COVID. The reason: many Long COVID patients develop ME/CFS, and recovery rates are extremely low. Report: t.ly/5HMbW
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ME/CFS Research Foundation
ME/CFS Research Foundation@MECFSResearch·
@NobleRingleader Hi! Thanks for asking. There are PDFs available - please click on the image of the speaker and then you find the video plus supplementay materials like a pdf and a speaker profile. Kind regards The research foundation team
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ME/CFS Research Foundation@MECFSResearch·
Update 2025: Erstmals verursacht ME/CFS höhere gesellschaftliche Kosten als Long COVID. 32,8 Mrd. € für ME/CFS vs. 31,6 Mrd. € bei Long COVID. Der Grund: Viele Long COVID-Betroffene entwickeln ME/CFS, die Genesungsrate ist extrem niedrig. Bericht: t.ly/KjUqt
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Lotte Schwert
Lotte Schwert@LotteSchwert·
@MECFSResearch Seit wann gibt es ME/CFS, und welche Hypothesen gibt es zum Aufkommen der Erkrankung?
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ME/CFS Research Foundation
ME/CFS Research Foundation@MECFSResearch·
Erste Förderrichtlinie der „Nationalen Dekade" ist da: Fokus auf klinische Studien zur Diagnostik und Therapie postakuter Infektionssyndrome. Bewerbung bis 2. September. Aus unserer Sicht ein guter Anfang. Mehr in unserem Beitrag. 🔗 t.ly/bHdCw #MECFS #LongCovid
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ME/CFS Research Foundation
ME/CFS Research Foundation@MECFSResearch·
🚀 New talks from this year's International #MECFS Conference are online! More presentations coming soon. 📌 White Matter Neuroinflammation in ME/CFS – Qiang Yu 📌 Findings from Functional MRI in ME/CFS & PCS – Carsten Finke 🔗 t.ly/of9LS
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ME/CFS Research Foundation
ME/CFS Research Foundation@MECFSResearch·
Key Breakthroughs I: Genetics and autoimmunity markers. The talks from the ME/CFS Conference 2026 are now online. ME/CFS is polygenic, heritability lies in neural tissue, immune endotypes point toward targeted therapies. Watch now: t.ly/of9LS #mecfsresearch
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