Chronicillnesswarrior1 ♿️💙✝️💟🇺🇦

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Chronicillnesswarrior1 ♿️💙✝️💟🇺🇦

Chronicillnesswarrior1 ♿️💙✝️💟🇺🇦

@ME_Bev7

Wife, mum, Severe ME, MCAS, LC, MALS, hEDS, POTS, dogs, peace, love & forgive ❤️ #Chronicillness #takingthepip @MEWarrior1.bsky.social

UK Katılım Şubat 2014
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Chronicillnesswarrior1 ♿️💙✝️💟🇺🇦
Chronicillnesswarrior1 ♿️💙✝️💟🇺🇦@ME_Bev7·
My Story…… I wasn’t diagnosed by our county’s head of ME/CFS services despite seeing him privately in 2012. He said I had fibromyalgia which I agreed but I knew that my fatigue began after an infection along with several viruses inc Epstein Barr.
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EllyKayUSA
EllyKayUSA@EllyKayUSA·
@atensnut Well, they left out the one man who can beat his younger self in a competition of hotness: Patrick McDreamy Dempsey. Although older vs. younger Rob Lowe is too close to call.
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Christina Koch
Christina Koch@CK65375·
We need doctors living with #MEcfs and #LongCovid to speak up openly and publicly. I know this is asking a great deal, but remaining hidden in anonymity will not help patients or advance the cause. This is not the time for silence — it is the time for courage and action.
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Chronicillnesswarrior1 ♿️💙✝️💟🇺🇦
Chronicillnesswarrior1 ♿️💙✝️💟🇺🇦@ME_Bev7·
@lunettaporchett I’ve just got used to it tbh. I’ve got to that point now where I simply don’t have the energy to keep going to hospital for tests! I’m just so exhausted mentally and physically. Unfortunately, I no longer have faith in the NHS and I’m an ex nurse. So sad! X
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Ļųņęțțą Porchetta 🙅‍♀️🙅‍♀️
Ļųņęțțą Porchetta 🙅‍♀️🙅‍♀️@lunettaporchett·
@ME_Bev7 I’m so sorry you’re not getting good answers or care. I’ve been sent to hospital by GP as my O2 was in the 80’s. They didn’t know what was causing it. It normalised on its own, but it must be so scary to be sent home with no improvement or diagnosis ❤️‍🩹
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Ļųņęțțą Porchetta 🙅‍♀️🙅‍♀️
Ļųņęțțą Porchetta 🙅‍♀️🙅‍♀️@lunettaporchett·
I don’t think the public are aware that you can be so sick that hospitals & A&E can’t, or won’t, help you. I’ve had it happen a few times. Even acknowledged I was extremely sick but had no idea what to do so sent me home. My BP was 227/176. They had no idea what was wrong.
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Kelly
Kelly@life_horizontal·
@ME_Bev7 @TraceyABurgess Thanks for your reply, I don’t have photo id, just wondered if it was a definite thing that was needed. Hope that you have positive outcomes from your medication.
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Chronicillnesswarrior1 ♿️💙✝️💟🇺🇦
Chronicillnesswarrior1 ♿️💙✝️💟🇺🇦@ME_Bev7·
@lunettaporchett Was meant to attend outpatient appointment this week for respiratory tests but was too fatigued to attend. Still experiencing intermittent breathlessness & air hunger. A&E is only for life or death cases it seems. If they can’t find the cause you’re sent home 🤦‍♀️
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Chronicillnesswarrior1 ♿️💙✝️💟🇺🇦
Chronicillnesswarrior1 ♿️💙✝️💟🇺🇦@ME_Bev7·
@lunettaporchett I was taken to A&E in Feb by ambulance due to breathlessness. I couldn’t sustain good O2 sats so was on O2 for 20 hours. CT scan & X-ray ‘only’ showed atelectasis. Was transferred to a ward & because nothing serious was found O2 removed & sent home still in the same state! 🤷‍♀️ 1/
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Chronicillnesswarrior1 ♿️💙✝️💟🇺🇦
Chronicillnesswarrior1 ♿️💙✝️💟🇺🇦@ME_Bev7·
@KSchnickelfritz Thank you Kirsty for sharing this. I can’t see anything beautiful from my bedroom as we live on a side road, but we also have shutters. But I can’t cope with too much light anyway so it’s so much easier to see beautiful scenes from a short video. Spring has sprung! 🌼
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Kirsty Schnickelfritz
Kirsty Schnickelfritz@KSchnickelfritz·
For my bedbound friends. Spring has sprung. Apologies I tried to steady the camera but there is a bit of shake. #ME
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Benonwine
Benonwine@benonwine·
Be Honest…What do you see?
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Chronicillnesswarrior1 ♿️💙✝️💟🇺🇦 retweetledi
Lizzy H
Lizzy H@hopefullizzy·
@wesstreeting @SharonHodgsonMP @UKLabour @DHSCgovuk @NHSEngland Some people will not make it to the next year. And if they do, it’ll be without safe healthcare, and worse off. #finaldeliveryplan #severeME
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#ThereForME@ThereForME_UK

@SharonHodgsonMP @wesstreeting ETA: We've now got a briefing up here - for people reaching out to MPs 👇 We're calling on DHSC to put in place robust interim measures to make sure that specialised support and, crucially, patient safety, don't need to wait until April 2027 and beyond. tr.ee/c6lx0MzBsx

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Naomi Harvey “PhD Witch” #WearAMask
Naomi Harvey “PhD Witch” #WearAMask@Naomi_D_Harvey·
For those who relied on Dr Taylor for prescriptions, this thread will share other options: 1. For LDN the best source is to get it prescribed by Dickson’s Chemist here shop.dicksonchemist.co.uk/the-ldn-privat…
markmooch@MarkMooch

@AlbaDocherty Do you have a source for a NDA? I never got one when a patient of hers. She has been cyber bullied out of her job by the sounds of it, many patients will be worse off for it.

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Lizzy H
Lizzy H@hopefullizzy·
As a couple of you know, I’m back in hospital. Have been here a week, some incredibly poorly moments where mum stayed with me overnight. Stabilised a little. Back in my usual room, usual ward (thankfully because although the staff on AMU were brilliant, being in a bay was hard)
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Keşfet

@life_horizontal @TraceyABurgess @EllyKayUSA @atensnut @CK65375 @FionaPWME @NickyProctor @SpinosaPrunus