MND Victoria

MND sucks! There's currently no known cure but there is something we can all do to help right now. mndrelay.org.au/my-fundraising… @MNDVic #GreatMNDRelay Your support would mean the world to so many people and their families living with MND 💙

I'm honoured to be teaming up with @mnd_vic as their official ambassador for 𝗧𝗛𝗘 𝗚𝗥𝗘𝗔𝗧 𝗠𝗡𝗗 𝗥𝗘𝗟𝗔𝗬. Head to MNDrelay.org.au and join me in supporting those currently living with MND. I'll see you all in Coburg in June! ✌🏼💙   #GreatMNDRelay

Stage four lockdown is a difficult time for everyone and accessing assistance when looking after a loved one may be challenging. Carerhelp is a practical resource that supports carers manage some of these challenges. Click carerhelp.com.au for more information.

#MND #News is on its way!📮 Our MND Newsletter Volunteers are looking forward to when they can get together to mail it out. For now, they are doing the most important thing – staying home and staying safe. 🏠 It was great to catch up with them online today. 🙌😀☕️ #volunteers

Melbourne’s weather is getting colder. Grab a stylish and comfy hoodie to keep warm this winter, whilst showing support for people with MND. #nevergiveup #MND #ALS Shop at: bit.ly/NeverGiveUpMND…

facebook.com/watch/?v=32050… Click above to listen to Leah’s reminiscent, poignant and beautiful story as a carer for her beloved husband who lived with #MND. #ALS #story

The Allied Professionals Forum will be held virtually this year over two days - 3 & 4 December 2020. A forum for health professionals who support people living with #MND ABSTRACTS now open ⬇️

MND NSW will be hosting a Facebook live event, "Ask the Experts" on 5th August at 10:30am. A panel of leading #MND researchers will talk about their work and to provide insight into current and future research. Save the date and click facebook.com/mndnsw to join on the day.

Karl has been volunteering with MND for 10 years.

Daniella, Jessica, Geoff, Amanda, John, Louise, Lorraine, Caroline, Gina and Leonie have all given 5 years service as volunteers.

If you or a family member has been diagnosed with motor neurone disease(#MND), attending our information session will help you develop an understanding of the disease as well as outlining the support services available from MND Victoria. To RSVP, (03) 9830 2122 or info@mnd.asn.au

📢 An exciting milestone in the search for effective therapies for #MND – Phase 1/2 results published in @NEJM showed that @biogen's tofersen #ASO has promise for treating patients with SOD1-ALS. 🧬 Read more in our new blog post ⬇️ mndresearch.blog/emerging-gene-…

MND Research Australia 2021 research grant applications are now open. Learn more & apply: mndaust.asn.au/Discover-our-r… Applications close 28 August 2020. Through research we will one day live in a world free from #MND

Today we say thanks to Betty and Sally who have both volunteered with MND Victoria for 15 years. Sally one of our Bereavement Call Volunteers, and Betty volunteering in Information and Resources, ensure people feel supported wherever they are in the #MND journey. #volunteer

If you or a family member has been diagnosed with motor neurone disease(MND), attending our information session will help you develop an understanding of the disease as well as outlining the support services available from MND Victoria. To RSVP,☎️(03) 9830 2122 or info@mnd.asn.au

Maureen, one of our wonderful volunteers and a past carer of someone living with motor neurone disease wrote this poem "Caring and Sharing" about her experience during the time. To share your story for publication in our newsletter and online, please email: info@mnd.asn.au

Thank you @aglenergy for installing solar panels for $1 ! The savings on our energy bill will enable us to buy vital equipment for people with MND. In the first year this could mean 5 people with MND will have manual wheelchairs. #solar #grateful #MND #ALS

Christine has coordinated the Western Metro Support Group for MND Victoria for 20 years. Joan has been actively working to support the organisation including keeping our Information and Resource folders up to date for 20 years. #MND Victoria #volunteers are awesome! 💙 💙

Interesting real-world study showing Riluzole actually provides between 6 and 19 months survival benefit - this is substantially longer than the 2- to 3-month survival benefit observed in the pivotal clinical trials of riluzole ow.ly/MhvU50AxqYc