MayRo
2K posts
MayRo
@MRoseRoberts
Chief Operating Officer @RareBeacon 🔥 | Diet Coke Addict🥤 | West Wing Aficionado📺 | Eurovision Fanatic🎤 | Keele Grad 2014🎓 | Views Are Mine 🗣
Cambridge, England Katılım Haziran 2016
255 Takip Edilen314 Takipçiler
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@RareBeacon Shame to mis this workshop with @sookio
Chatted with Blayne, yesterday (in venue around corner
cc @RickSThomp
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We’re all set up and ready for today’s masterclass! 🥳
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Excited to be in #Newcastle today with the @RareBeacon team, hosting the Final Conference on behalf of MCDS Therapy!
Really interesting to hear from everyone who has been involved in delivering this project and clinical trial over the past 5 years. 💊
MCDS-Therapy@MCDS_Therapy
It’s almost time for the MCDS-Therapy Final Conference!! Lights, camera…almost action 😜 Get here safely! #McdsTherapy
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MayRo retweetledi
Calling patient group leaders! 📢
Beacon is looking to team up with @GeneticAll_UK to design specialised training for rare disease patient groups.
With a general election coming up, would you be interested in free policy, advocacy and campaign training?
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@DebbieClapham So pleased you enjoyed it 😄 Thank you so much for coming along!
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@MRoseRoberts Throughly enjoyed the #rareshowcase23 today. Learnt so much & heard so many inspiring talks. Thank you for organising
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Already seen over 170 turn up for todays #RareShowcase23! Our biggest in-person turnout ever!! Looking forward to what promises to be an amazing day 😁
Beacon for Rare Diseases@RareBeacon
Our COO, Mary Rose and CEO, Rick Thompson are kicking off what’s set to be an incredible day! 🥳
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MayRo retweetledi
Our COO, Mary Rose and CEO, Rick Thompson are kicking off what’s set to be an incredible day! 🥳
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NOMINATE CHARITY OF THE YEAR 2024
We’re delighted to announce that nominations for our 2024 ‘Charity of the Year’ are now open.
As a local business we want to give you the opportunity to nominate and vote for the charity that you would like to see our support go to over the year
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Absolutely loved meeting Christine! 😄
Beacon for Rare Diseases@RareBeacon
One of the best parts of this year’s #WODC has been meeting @cmutena in person! 🧡 Christine runs Rare Disorders Kenya and has been part of our Patient Group Engagement Committee for the last 2 years - so pleased we could finally meet outside of a computer screen!
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MayRo retweetledi
Come say hello to me and my team! 👋
Beacon for Rare Diseases@RareBeacon
Come find us on stand 123 at #WODC! We’ve been told we’ve got some of the best swag of the conference! 👀🌟
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We're thrilled to be at #WODC23!
Our CEO, Rick Thompson, is chairing today’s workshop on drug repurposing for rare diseases, featuring our exciting partnership with @REMEDi4ALL. 🙌
@orphan_drugs
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@cmutena @RareBeacon @REMEDi4ALL @orphan_drugs Are you going to be here Christine?? This has made my day! 😃
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Heading to London bright and early for @RareBeacon’s #RareWorkshop on #DigitalFundraising! 💸
Looking forward to seeing some real life faces today!😄
#Tired #5amAlarm
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MayRo retweetledi
Heavy is the rump that wears the crown. Introducing your Fat Bear Week 2023 champion, 128 GRAZER!!
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MayRo retweetledi
If you have no experience in the charity world and want to expand your knowledge on areas that matter most to rare disease patient groups, create a FREE account on The Resources Hub! 📚
💡Discover what you can achieve today!
Sign up:
ow.ly/aOq550PJkIH
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MayRo retweetledi
@rarebeacon are looking for an experienced fundraising manager to join their team!
View the full job description here and apply or share today: buff.ly/46GfMGI
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Our new website is now live!👩💻🔥
We have revamped our online presence, bringing a fresh design + improved functionality, creating a seamless user experience.
Can you spot Jasper the cat hiding somewhere on our website?🐾
View our new website here & RT
rarebeacon.org
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