Maria Beekman
450 posts

Maria Beekman
@Maria_HAE_
I have HAE…. What is your superpower? President HAE the Netherlands. Patient advocate. #HAE #hereditaryangioedema
Katılım Ekim 2023
103 Takip Edilen18 Takipçiler

@RWSverkeersinfo Dank voor je reactie! Gelukkig geen schade aan de tunnel
Nederlands

@Maria_HAE_ Dat ging om een hoge wagen, Maria. Inmiddels is de tunnel weer vrij. 💪 ^SM
Nederlands

@RWSverkeersinfo wat is er aan de hand bij de schipholtunnel richting Amsterdam? We staan al een minuut of 2
10 voor een rood stoplicht
Nederlands

Aanwezig namens de Vereniging voor Angio-oedeem bij het nationaal event zeldzame ziektendag #zzd25 #HAE #hereditaryangioedema

Nederlands
Maria Beekman retweetledi

What role does factor XII play in each type of HAE? An expert breaks it down. Tune in now: bit.ly/4h8jtJD
#HereditaryAngioedema #HAE #HAEAwareness #LivingWithHAE #HAECare
English

@daantjeRdam En vaders jankt vrolijk mee. Hechte familiebanden prima, maar dit is toxic
Nederlands

Ze zitten pas in de date fase en Monique jankt nu al dat ze Mike niet kwijt wilt raken.
Als je gaat leven naar je angst, wordt je angst werkelijkheid.
#wintervolliefde
Nederlands
Maria Beekman retweetledi

New paper, Advocacy in Action: Intl Patient Group Improves HAE Diagnosis & Care Across Asia–Pacific shows patient groups significantly enhance medication availability & improve HAE diagnosis, esp in region countries classified as emerging economies: buff.ly/4jxLNHM

English
Maria Beekman retweetledi

Columnist Danita LaShelle Jones has too often found herself in the "One-Up" Olympics when others try to compete about care and symptoms. bit.ly/3EbgqCj #Angioedema #AngioedemaAwareness #AngioedemaFighter

English
Maria Beekman retweetledi

Blauwe bessen Albert Heijn mogelijk besmet met hepatitis A ift.tt/EGmNU0c
Nederlands
Maria Beekman retweetledi

Here is this week's most read article featured on our #AngioedemaNews website! Are you caught up? bit.ly/4j2gPaj
#HereditaryAngioedema #HAE #HAEA #HereditaryAngioedemaAwareness

English
Maria Beekman retweetledi

Register for our Fast-Track Training! 📢
Gain in-depth knowledge about Health Technology Assessment (#HTA), the EU HTA regulation, and your role as a patient representative.
🗓️ Upcoming dates: 21/01/2025 & 04/02/2025
👉 Register here: forms.office.com/e/Fy80Svdiya?o…

English
Maria Beekman retweetledi

Living with and managing a swelling disorder can take focus away from other aspects of life, like relationships. How do you juggle it all?
#Angioedema #AngioedemaAwareness #RareDisease

English

@daantjeRdam Zo komen we de saaie, donkere maanden wel door.
Nederlands

Dit programma maakt de winter toch een stuk leuker he mensen?!😃
#wintervolliefde
Nederlands

Ik heb even met m’n bakkes in de zon gestaan en vond dat wel een tweet waard…
#winterzon
Nederlands
Maria Beekman retweetledi

A survey study found similar difficulties in managing and recovering from acute HAE attacks with preventive versus on-demand medications. bit.ly/3W5uzag #Angioedema #AngioedemaAwareness #AngioedemaFighter

English
Maria Beekman retweetledi

From 3 to 6 Oct, around 750 HAE advocacy board members/leaders, physicians/scientists, and industry representatives from 90 countries met in Copenhagen for the 2024 HAEi Global Leadership Workshop and the ACARE Global Angioedema Forum 2024.
Read more here: buff.ly/4gdKUBp

English
Maria Beekman retweetledi

"Bezuinigen op geesteswetenschappen is kortzichtig" nrc.nl/nieuws/2024/10…
Nederlands
Maria Beekman retweetledi

Confused about how HAE is inherited? We break it down here: buff.ly/3A1WuQE
#HereditaryAngioedema #HAEA #HAEAwareness #HereditaryAngioedemaAwareness

English
Maria Beekman retweetledi

#WAOJournal: Is there a difference between women and men in #chronic #spontaneous #urticaria? A systematic review on gender and sex differences in #CSU patients. Open Access. sciencedirect.com/science/articl…

English

