Mary Dwight retweetledi
English
Mary Dwight
2.6K posts
Mary Dwight
@MaryDwight
SVP of policy and advocacy @CF_Foundation. Tweets are my own. Get involved and sign up for #CFadvocacy action alerts!
Washington DC Katılım Nisan 2011
382 Takip Edilen723 Takipçiler
Mary Dwight retweetledi
@mary @CIDRAP During the episode, @MaryDwight also discussed why policy solutions like the PASTEUR Act are crucial in bringing new antibiotic options into the hands of patients and urged its passage immediately. #CFAdvocacy
English
Mary Dwight retweetledi
Important symposium highlighting the high cost of CF care and discussing strategies to address these costs! @RyanPerkins211 @CF_Foundation #nacfc2023
Dr Meghan McGarry@DrMeghanMcGarry
@GregSawickiMD And to round out Thursday, come in the afternoon to hear about the high costs of CF & how it creates disparities #nacfc
English
Mary Dwight retweetledi
#OpenEnrollment is here! Beat the rush and connect with Compass today to compare available insurance plans side-by-side so you can make an informed decision. on.cff.org/47cOqrb
English
Mary Dwight retweetledi
A record number of Heath Equity and Access sessions at NACFC this year!
Phoenix, AZ 🇺🇸 English
Mary Dwight retweetledi
As part of our ongoing commitment to advance equity, racial justice, diversity, and inclusion, the Foundation’s External Racial Justice Working Group has finalized recommendations to help guide our work to foster a more inclusive community. on.cff.org/3Fyb1Tj
English
Mary Dwight retweetledi
Hard to understate how big this is for patients. I recently switched to a health plan WITHOUT a copay adjustment program (eg. Accumulator). I filled three specialty medicines and my deductible and OOP max were met in a week.
@CF_Foundation Compass proved to be a huge help.
Adam J. Fein@DrugChannels
Big copay #accumulator news! @USDC_DCCircuit struck down @HHSgov rule allowing non-grandfathered individual & group plans to exclude manuf copay assistance from deductibles Huge win for patients thanks to @HIVHep, @DiabetesPAC, & @DiabetesLeaders ==> drugch.nl/3RIwY9z
English
Mary Dwight retweetledi
As part of our work to address discrepancies in #newbornscreening, we award Screening Improvement Awards to researchers to improve the newborn screening system in their state.
Since 2011, we have funded more than $2.5 million across 35 awards. on.cff.org/3LAG0lm
English
Mary Dwight retweetledi
Thank you, @RepMcGovern for your leadership and the dedication you show for all people with cystic fibrosis. We must #PassPASTEUR to address antimicrobial resistance and bring effective options into the hands of those who need them most.
Rep. Jim McGovern@RepMcGovern
As co-chair of the bipartisan, bicameral Cystic Fibrosis Caucus, it was an honor to welcome @RobGronkowski to the Valley Fever Task Force briefing on antimicrobial resistance. Glad to do the important work of raising awareness about these rare diseases with a former Patriot!
English
Mary Dwight retweetledi
As co-chair of the bipartisan, bicameral Cystic Fibrosis Caucus, it was an honor to welcome @RobGronkowski to the Valley Fever Task Force briefing on antimicrobial resistance.
Glad to do the important work of raising awareness about these rare diseases with a former Patriot!
English
Mary Dwight retweetledi
Today, we, along with our coalition partners, are urging Congress to take immediate action and #PassPASTEUR, legislation key to fighting the public health crisis of antimicrobial resistance and protecting Americans from deadly superbugs. #CFAdvocacy act.cff.org/mNUudoI
English
Mary Dwight retweetledi
“We really are in a pandemic of ineffective #antibiotics,” @CF_Foundation’s @MaryDwight says. washingtonexaminer.com/policy/healthc…
English
Mary Dwight retweetledi
"Innovators have no way to earn a return on their investment, which makes it difficult to attract investment," @IDSAInfo’s Amanda Jezek says of the broken #antibiotics market. The #PASTEURAct would help change that. axios.com/2023/07/12/inf…
English
Mary Dwight retweetledi
We’re proud to have Melanie Lawrence, an adult with CF, testify at today’s Senate HELP subcommittee hearing on “Superbugs: The Impact of Antimicrobial Resistance on Modern Medicine.” Watch live at 10 a.m. ET. #CFAdvocacy on.cff.org/3XLF2r3
English
Mary Dwight retweetledi
Kim Reno, senior manager of health systems innovation and navigation, discusses how food insecurity can be a particular problem for people with cystic fibrosis. We have made great progress to address food insecurity in the CF community, but there’s a lot left to do.
HealthWell Foundation@HealthWellOrg
In this week's @RWHCblog, Kim Reno of the @CF_Foundation discusses the importance of regular food insecurity screenings and highlights special initiatives designed to provide nutritious foods and financial relief to cystic fibrosis patients in need. bit.ly/3JPzZQX
English
Mary Dwight retweetledi
We’re calling on Congress to centralize discussions on PBM reform around the patient experience.
While we thank Congress for the work done to address the harm caused by PBMs, further steps won’t be successful without considering the patient voice. on.cff.org/3PdC4tf
English
Mary Dwight retweetledi
If you’re having trouble paying for Trikafta, please contact @CF_Foundation Compass cff.org/support/get-he…
English
Mary Dwight retweetledi
The incidence of antibiotic resistant infections are endangering more lives by the day.
The #PASTEURAct is a strategic investment that brings together the public & private sectors to develop strong & effective antibiotics.
Congress must act!
ferguson.house.gov/news/documents…
English
Mary Dwight retweetledi
NEW: 23 patient advocacy orgs are concerned by coverage losses in Arkansas, especially the high % of procedural denials. @ACSCAN
The Sanders administration must evaluate why so many Arkansans are not making it through the process. fightcancer.org/releases/patie…
English
Mary Dwight retweetledi
As states redetermine eligibility, it’s important to check on your Medicaid status and ensure that your info is up to date. Connect with Compass to learn how to protect your status. cff.org/support/get-he…
English