Max's Big Ride

This year is Max's Big Ride's 10th anniversary! Help us complete the 600km by donating your muscle power during the week of Sept 15-21. Let's fight Duchenne together! maxsbigride.com #DuchenneAwareness #DMD #research #MakingADifference

Cool car! #nissancrossing #playground #thegamechangers

@KadeyBJSchultz I agree - and something needs to change!

@MaxsBigRide And the Corolla comes with safety features like lights…imagine! We’re in the same boat tho Emery is not as far along as Max. I’m convinced the mortality rate for boys with #DMD is directly impacted by resources. Equipment=safety=⬇️injury, slower degeneration and healthier lives

We are in the process of getting Max a powerchair so he can have more independence + freedom. We can’t wait for him to get it but like all of the mobility devices he’s needed, we are blown away by the high price. To put it in perspective, his new chair will cost $28,257 while..

..pay for these devices, but they are still an enormous stress and I often wonder about how those less fortunate make do - or don't. 😢 #disabilityrights #inclusion #accessibilitymatters #assistivedevice #disability #disabilityawareness #wheelchair #accessibility

..chair will be covered by a government program, but we still need to pay over $10,000 out of pocket and then try to claw this money back through insurance (no easy task) or request funding through charities or other means. We both have good jobs and family support to help..

Thrilled to share our story on the first rationally designed #covalent #HDAC inhibitor! YSR734 uses an SNAr-reactive electrophile to engage a noncatalytic nitrosylation site cysteine in #HDAC2, showing in vitro activity in AML & #DuchenneMuscularDystrophy! pubs.acs.org/doi/10.1021/ac…

Congratulations to first author @DrYasirRaouf for his incredible efforts leading this project, as well as the rest of the HDAC team @Taleb_Sedighi, @GeletuMulu, @geordifrere, @NabanitaNawar, @RebeccaGAllan, & @e_dearaujo for all the work that went into this stellar project!

@GunningLabUofT @DrYasirRaouf @Taleb_Sedighi @GeletuMulu @geordifrere @NabanitaNawar @RebeccaGAllan @e_dearaujo Love this!!!

@DrYasirRaouf @Taleb_Sedighi @GeletuMulu @geordifrere @NabanitaNawar @RebeccaGAllan @e_dearaujo We are so proud to present this work & would especially like to thank Andrew Sedmihradsky & his family @MaxsBigRide who supported three of the authors of this paper through Max’s Big Fellowship. Your tireless fight to raise funds & awareness for DMD continues to inspire us. ❤️

This is amazing! Huge congrats to everyone involved and thank you for all your hard work!!

@GunningLabUofT @RebeccaGAllan @chemuoft @UTM_CPS @researchuoft @UTM @UTM_Research @DeansOffice_UTM @UofTPRiME Superstar! We are lucky to have you on our side @RebeccaGAllan 👍👍👍

We are so proud of @RebeccaGAllan for defending her thesis on the discovery of ligands for rare diseases like fibrolamellar hepatocellular carcinoma & Duchenne muscular dystrophy! Becca is a meticulous & driven scientist with a passion for research translation & entrepreneurship.

#duchennemusculardystrophy #wdad #dmd #musculardystrophy #FCKDMD

..of this adversity. Research is making a difference and more treatments are becoming available – and one day I hope we no longer need this day – but until then, FCK DMD!! Fundraise, Care, Knowledge – in the fight against Duchenne, the only thing missing is ‘U’. 😊+ + + #duchenne

Today is World Duchenne Awareness Day – a day meant to ‘shine a light on what Duchenne is, how it affects lives and what we can do about it’. It seems impossible to list all the ways this terrible disease has impacted our family but we try to remain optimistic in the face..

..10-3 at 46 MacDonald. 🍪+++ #duchenne #dmd #muscukardystrophy #family #love #research #hamont

..available home nursing care. 😠 Today we ride for Alex and his awesome family in the hope that he can come home and that one day there will be better outcomes for all those living with Duchenne muscular dystrophy. ♥️ FCK DMD. +++ Ride starts momentarily. Bake sale today from..

Today is Day 5 and we are riding for Alex. He's 22 and likes gaming, sports, and the Buffalo Bills and lives directly across the street from us. He and his older brother Errict have Duchenne muscular dystrophy just like Max. They usually come over and visit the ride each year..