Kadey BJ Schultz

@kevikev0507 @oligogirl @worldduchenne Excellent news! We have you all in our hearts and are wishing your son the very best 🫶

@KadeyBJSchultz @oligogirl @worldduchenne After 4 weeks, it works. no change 🙌🏻🫶🏻🙌🏻

#apaperaday from home with a pick from @frontiersin Cell & Developmental Biology by Fernandez-Simon & @querques2000 on single cell sequencing for fibro-adipogenic precursor cells (FAPs). Yuzu had little interest in confetti making - she's molting DOI: 10.3389/fcell.2024.1399319

"Social media apps live and die on their vibes, and right now, Bluesky’s vibes are better than the alternatives." - @kevinroose.com in NYT nytimes.com/2024/11/22/tec… Hope to see you there: bsky.app/profile/schult…

I hope you’ll join me where the Sky is Blue @schultzielawyer We deserve happiness and more kindness. Tweet tweet farewell.

Table 41 is having the absolute best time at #IBAwardsCA

#ibawardsca having the best time!

@kevikev0507 @oligogirl @worldduchenne Hi Kevin, sorry, Emery did not have a platelet count change as a result and f the givinostat.

@KadeyBJSchultz @oligogirl @worldduchenne May I ask whether the platelet counts changed drastically while taking Givinostat? We finally have it now and after two weeks the Thromobyte halved to 191. Now we are extremely anxious and don't know what to do next :-(

The Remarkable Life of Ibelin. A boy, Mats, #DuchenneMuscularDystrophy & impact of gaming on his life. Love, experience, friendship-what we all want & deserve in life Please read & watch the film. It will change you. bbc.com/culture/articl… #DMD #Duchenne #gaming

Urge architects you know to watch this video! Billion dollar #accessibility bungle: #Accessibility blunders at new Toronto courthouse 14 minute video youtube.com/watch?v=h6XNVM… 49 minute one youtu.be/zvo9jYIUvSc #AODA

@oligogirl @worldduchenne Emery was part of the Givinostat trial in Canada. He is 17.5 years old. This is him walking last week. I appreciate your paper a day. Thank you 🙏

Given the suggested mechanism of action of givinostat I'd be interested in single cell sequencing of Duchenne FAPs with an without givinostat treatment. For more information on givinostat's mechanism of action, see this post by @worldduchenne 👇worldduchenne.org/news/givinosta…

@TopsyFarms You can dig, or you can rest, or float. It will come out if you give yourself permission. No embarrassment, no worry that things will fall apart. You will continue. Ian is all around you.

@KadeyBJSchultz It is so intense, it is deeply buried. I've had to dig hard just to enable this first squeek.

I have finally been able to howl the first fragment of my grief, though Ian left us, April 26th. I have buried my pain in my physical body and behind busyness. Please send comfort, prayers, sweet grass smudging.

The “unanticipated adult” Every #DMD #DuchenneMuscularDystrophy #Duchenne organization should have this research on their agenda.

@MaxsBigRide And the Corolla comes with safety features like lights…imagine! We’re in the same boat tho Emery is not as far along as Max. I’m convinced the mortality rate for boys with #DMD is directly impacted by resources. Equipment=safety=⬇️injury, slower degeneration and healthier lives

We are in the process of getting Max a powerchair so he can have more independence + freedom. We can’t wait for him to get it but like all of the mobility devices he’s needed, we are blown away by the high price. To put it in perspective, his new chair will cost $28,257 while..

@MikeBubbins @BBCiPlayer Congrats Mike, reading this review made me smile from ear to ear.

Emery’s class made friendship bracelets for #MusicHeals10 tonight. The blue is for #Duchenne and a 🎵charm for Music Heals to remind us to dance, with our feet, minds or hearts. Not going to lie, I’m feeling pretty excited for tonight at the @theelmocambo! @HBKidsHospital

Final count down to #MusicHeals10! June 5 @theelmocambo in support of the Biggar Endowment for Muscular Dystrophy @HBKidsHospital A huge 🙏: Gourmet Solutions & Ambassador Pizza for donating the catering & to the incredible @BigHeadWine for the amazing vino! #DMD @EndDuchenne

@rjabikes @defeatduchenne Thank you 🙏 💙

Started the @defeatduchenne 33km founders challenge!

@OI_Mike13 @AirCanada How could it be acceptable from a health and safety perspective for anyone? The employees could have been seriously injured too. Unsafe from every perspective.

This has got to stop. ⁦@AirCanada⁩ do better. #RightsonFlights Toronto woman who uses wheelchair carried off Air Canada flight | CBC News cbc.ca/news/canada/to…

Being a mom is a gift, and not easy. A #DMD mom lives with love and hope and a fight and fear. Never is there a moment to stop and feel sure, truly calm, truly confident. To all the #Duchenne moms out there, you are incredible. 💙 Happy Mother’s Day. @defeatduchenne