Maya Uccheddu - Lady Myasthenia / LadyM retweetledi
Our paper on empowering people with lived experience in neurological research made it to the cover of Nature Reviews Neurology ❤️🥳🤩 @MayaUcc @RichelleFlan
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Maya Uccheddu - Lady Myasthenia / LadyM
1.5K posts
Maya Uccheddu - Lady Myasthenia / LadyM
@MayaUcc
Freelance digital artist and pharmacist. living with Myasthenia Gravis. LadyM on Instagram - lady.myasthenia) support @womensbrainpro
Katılım Şubat 2012
390 Takip Edilen197 Takipçiler
I'm thrilled to share an inspiring interview I recently conducted with Tánia Keramydá a remarkable athlete representing Greece at the Paralympics. As someone who also lives with Myasthenia Gravis, this conversation was incredibly special to me
#myastheniagravis #paralympics2024
EuMGA@EuropeanMGA
Tania, a 35-year-old athlete with Myasthenia Gravis, is representing Greece at the Paralympics! 🔗 Read her inspiring story on our website: eumga.eu/post/living-wi… #myasthenia #myastheniagravis #raredisease #paraathletes #paralympics #paralympics2024
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Maya Uccheddu - Lady Myasthenia / LadyM retweetledi
It's wonderful to see the unity and diversity across Europe in raising awareness for myasthenia during June! Discover all the activities we carried out in our latest article. Read here: eumga.eu/post/highlight…
#Myastheniagravis
#myasthenia #MGawareness
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@MaTeFerretti 💙💙💙 congratulations 🙌🏻 I’m so proud of you 🥹
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Habilitation ceremony yesterday at the Medical University in Vienna. Very proud and incredibly emotional for this one! 🥹
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Excited to share that I was interviewed by Vanity Fair Italia! Check out the full article
vanityfair.it/branded/articl…
#VanityFair #Interview #myastheniagravis
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Maya Uccheddu - Lady Myasthenia / LadyM retweetledi
June is Myasthenia Gravis Awareness Month. Let’s spread the word and support those affected by this rare autoimmune disease. #MGAwareness #mgawarenessmonth #myastheniagravis #myasthenia
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Thrilled to join the board of the European Myasthenia Gravis Association! Looking forward to making a difference alongside our dedicated team. 💙✨#myastheniagravis
EuMGA@EuropeanMGA
Exciting news from our AGM! Dimitris Zaftis confirmed as Secretary, Lut Allard confirmed as Treasurer and elected as President, and Maya Uccheddu joins us as a new Board Member. As we approach #Myasthenia Gravis Day, we’re more committed than ever to supporting our community.
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Maya Uccheddu - Lady Myasthenia / LadyM retweetledi
A quick update:
THANK YOU 🙏 so much to all the people who donated so far- this is absolutely great, I am mind-blown by your generosity!
But we are still far from the goal, so any additional help out there is highly appreciated. Please share!
gofund.me/1c426141
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Maya Uccheddu - Lady Myasthenia / LadyM retweetledi
In a very first in my life, I am launching a fundraiser to support a cause that is very dear to me - #dementia. I will be running the #Frauenlauf in Vienna in May and will need your help to reach my goal 🙏! more infos-> gofund.me/45726cc5 (1/x)
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In the last few months, some scientific articles have really caught my attention.
-maternal and neonatal outcomes in #Myastheniagravis
- A guide for MG
- For the first time since many years, a new symptomatic treatment for MG.
👉 mayaucc.com/post/catching-…
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Maya Uccheddu - Lady Myasthenia / LadyM retweetledi
Neurosexism: could this app bridge the gender gap in Parkinson’s disease?
femtechworld.co.uk/entrepreneur/p… #womenshealth #Parkinsons #Parkinsonsawarenessmonth #WomenEmpowerment #tech #womenintech #womeninbusiness @MyMovesMatter
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Maya Uccheddu - Lady Myasthenia / LadyM retweetledi
Having a rare disease can feel overwhelming, especially if you have a rare form of a rare disease. Join our seronegative #myastheniagravis support group. Find others who get it. Register here: ow.ly/54G450R5XFi
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Maya Uccheddu - Lady Myasthenia / LadyM retweetledi
We take facial expression for granted. Without realising it one of my #parkinsons symptoms was possibly #facialmasking as my son remarked the year in which I was diagnosed that “I didn’t smile as much as I used too”. I never noticed. Now I put an extra effort in when I smile 😀
Barbara Salsberg Mathews@SalsbergMathews
Facial masking in Parkinson’s Disease is one of the lesser known symptoms. Let's raise more awareness. Our campaign starts tomorrow @Sarah_says_hi @Conpdeparkinson @Avng_Medusa @lochossian @RichelleFlan @ParkinsonsLand @basbloem @PdAvengers @ParkinsonsUK @ParkinsonCanada
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Maya Uccheddu - Lady Myasthenia / LadyM retweetledi
Let's come together to make a difference for MG
👉🏻 Sign the petition now!
change.org/p/improve-qual…
Let's make a difference together! #AllUnitedForMG #MGCommunity #MyastheniaGravis #MGpetition #MGCallforAction @AllUnitedforMG
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Maya Uccheddu - Lady Myasthenia / LadyM retweetledi
for #IWD I guess this is a good message to send out there. In science, but also in life in general-
girls you are good enough, GO FOR IT, the world needs you
UK in Austria@UKinAustria
Neuroscientist Maria Teresa Ferretti @MaTeFerretti has a message for girls and young women interested in science. We caught up with Maria Teresa at the @oeaw in Vienna, where she was speaking at an #IWD2024 panel on Women in Science: Breaking Frontiers.
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Join me tomorrow
16:00 CET
9-10am CST
Register here 👇
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Maya Uccheddu - Lady Myasthenia / LadyM retweetledi
Lots of scientists are amazing artists. But this thread isn't about them. It's about the rest of us, who are just trying to get through our methods figure so we can get back to showing you graphs.
First, a rat made entirely out of ovals:
(Morales-Botello et al., 2012)
(1/x)
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Maya Uccheddu - Lady Myasthenia / LadyM retweetledi
We are pleased to share information about the XVII
National Congress of #Myasthenia Gravis , organized by the Spanish association AMES.
Register here: congresomiastenia.com
The congress is open and free for anyone who wishes to attend in person or online.
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@jonny_acheson @AACE_org @NHS This is a very needed infographic: With #Myasthenia Gravis, the biggest issue during sudden ambulance emergencies is also the list of contraindicated medications.
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